Overview
What is Ash Registry Inc?
Ash Registry Inc, based in Washington D.C., is a nonprofit organization dedicated to advancing knowledge in hematology, focusing on both malignant and benign blood conditions. They operate through collaborative partnerships, with the ultimate goal of improving lives for individuals affected by blood diseases. The backbone of their mission is the ASH Research Collaborative Data Hub, a technology platform that facilitates data sharing and research inquiry. Currently, the Data Hub focuses on collecting information related to COVID-19, multiple myeloma, and sickle cell disease. The Sickle Cell Disease (SCD) Clinical Trials Network is another key component of their work, aimed at accelerating clinical trials research in SCD and enhancing outcomes for patients with the condition. To date, the Data Hub houses data on over 16,000 patients with sickle cell disease and 2,000 patients with multiple myeloma.
Official website here: www.ashresearchcollaborative.org
What do the Facebook reviews say about Ash Registry Inc?
Although Ash Registry Inc. currently has only four reviews on Facebook and has not yet been rated, the comments received convey positive sentiments. One reviewer specifically highlights the organization's significant contributions to the Sickle Cell Disease (SCD) community, indicating the nonprofit is viewed favorably by those familiar with its work.
This appreciation suggests that Ash Registry Inc. is effectively addressing relevant issues within its focus area and is likely making a difference in the lives of those affected. Overall, the emerging impressions are encouraging and reflect a community that values the nonprofit's efforts.
This AI summary has been generated from reviews found on Facebook.
Is Ash Registry Inc legitimate?
Ash Registry Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ash Registry Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $342,904
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,559,091
For more financial information, click here
Official website here: www.ashresearchcollaborative.org
What is the mission statement of Ash Registry Inc?
Ash Registry Inc's mission is centered around collaborative partnerships in the field of hematology, with the ultimate goal of enhancing the lives of people affected by blood diseases. The backbone of their initiatives is a data repository, referred to as the Data Hub, which facilitates the exchange of research-grade data on hematologic diseases by aggregating and making it readily available for inquiry. Additionally, Ash Registry Inc has established the Sickle Cell Disease (SCD) Clinical Trials Network. The objective of this network is to create a collaborative network of clinical research sites, aimed at accelerating and optimizing clinical trials research in SCD, ultimately improving outcomes for individuals living with sickle cell disease.
Official website here: www.ashresearchcollaborative.org
What is the revenue of Ash Registry Inc?
Ash Registry Inc's revenue in 2024 was $2,978,964.
Official website here: www.ashresearchcollaborative.org
Who are the executives of Ash Registry Inc and what are their salaries?
There 85 volunteers at Ash Registry Inc.
Here are 28 key members and their salaries:
- Compensation: $299,209
- Related: $299,208
- Other: $71,253
- Compensation: $237,160
- Related: $237,158
- Other: $64,871
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- Other: $56,609
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- Other: $55,591
- Compensation: $225,294
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- Other: $46,646
- Compensation: $177,753
- Related: $0
- Other: $21,974
- Compensation: $0
- Related: $27,000
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- Related: $13,500
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- Related: $13,500
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Official website here: www.ashresearchcollaborative.org
Where can I find the form 990 for Ash Registry Inc?
Ash Registry Inc's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.ashresearchcollaborative.org
Learn more at the official website: www.ashresearchcollaborative.org
Mission Statement of Ash Registry Inc
Ash Registry Inc, with its data repository known as the Data Hub, is dedicated to fostering collaborative partnerships in the field of hematology. The ultimate aim is to enhance the lives of individuals affected by blood diseases. The Data Hub serves as a technological platform, aggregating and making research-grade data on hematologic diseases readily available for inquiry. This facilitates the exchange of information, thereby accelerating progress in hematology research.
In addition to its data repository, Ash Registry Inc also spearheads the Sickle Cell Disease (SCD) Clinical Trials Network. The primary objective of this network is to establish a collaborative network of clinical research sites. By doing so, it aims to expedite and optimize clinical trials research in SCD and eventually improve outcomes for individuals living with sickle cell disease. This network works towards accelerating advancements in the understanding and treatment of sickle cell disease, ultimately benefiting those affected by this condition.
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Impact
October, 2024
Ash Registry Inc plays a transformative role in advancing research and understanding of hematologic conditions. By establishing the Ash RC Data Hub, the organization has created a vital resource for the hematology community, facilitating the sharing and analysis of data on both benign and malignant blood disorders. This collaborative approach aims to support scientific inquiry and discovery, significantly enhancing the ability to conduct impactful research.
The Data Hub currently features extensive data collections, including information on over 16,000 patients with sickle cell disease and 2,000 patients with multiple myeloma. In addition to these focus areas, the hub is actively collecting data related to the effects of COVID-19 on patients with hematologic conditions, ensuring that urgent and relevant concerns are addressed.
Through its initiatives, Ash Registry Inc fosters partnerships that accelerate progress in understanding and treating blood diseases. The organization’s mission underscores a commitment to improving the lives of individuals affected by these conditions through the aggregation and availability of research-grade data, ultimately aiming to expand its focus to encompass the full spectrum of hematologic diseases. This strategic approach not only enhances ongoing research but also optimizes clinical trial networks to facilitate better outcomes for patients living with conditions like sickle cell disease.
This information is meant to be a general summary of Ash Registry Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Program Service Revenue: $382,119
- Gross Receipts: $2,978,964
Assets and Liabilities:
- Total Assets: $1,364,727
- Total Liabilities: $29,373,615
- Net Assets: -$28,008,888
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROJECTS
Revenue
$382,119
Organization Details
Founding Year
2017
Principal Officer
Matthew Gertzog
NTEE Category
Code: U20 - Science research
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