Overview
What is Asxl Rare Research Endowment Foundation?
The Asxl Rare Research Endowment Foundation is a family-driven nonprofit organization based in Portland, Maine. With a small team of just one employee, their primary focus is on supporting research to deepen our understanding of the ASXL gene family and enhance care for individuals impacted by ASXL Syndromes. They have established an ASXL Registry and Biobank, fundamental resources that researchers will leverage to explore and expand our knowledge of ASXL Syndromes, utilizing patient data and samples. The organization's mission is to advance research and education, ultimately aiming to improve the quality of life for those living with ASXL syndromes.
Official website here: www.arrefoundation.org
Is Asxl Rare Research Endowment Foundation legitimate?
Asxl Rare Research Endowment Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Asxl Rare Research Endowment Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $102,487
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.arrefoundation.org
What is the mission statement of Asxl Rare Research Endowment Foundation?
The Asxl Rare Research Endowment Foundation, a family-driven organization, is committed to supporting research and education aimed at enhancing the understanding of the ASXL gene family and improving the overall care for individuals living with ASXL Syndromes. Their mission is to foster research that ultimately leads to an improved quality of life for those affected by ASXL Syndromes. The foundation has established the ASXL Registry and Biobank, two crucial tools based on patient data and samples, which researchers can utilize to expand their knowledge of ASXL Syndromes.
Official website here: www.arrefoundation.org
Who is the CEO of Asxl Rare Research Endowment Foundation?
Amanda Johnson is the Executive Director of Asxl Rare Research Endowment Foundation.
Official website here: www.arrefoundation.org
What is the revenue of Asxl Rare Research Endowment Foundation?
Asxl Rare Research Endowment Foundation's revenue in 2022 was $228,516.
Official website here: www.arrefoundation.org
Who are the executives of Asxl Rare Research Endowment Foundation and what are their salaries?
The average compensation at Asxl Rare Research Endowment Foundation during 2022 was $102,487. There is 1 employee and 20 volunteers at Asxl Rare Research Endowment Foundation.
Here are 6 key members and their salaries:
- Compensation: $102,487
- Related: $0
- Other: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.arrefoundation.org
Where can I find the form 990 for Asxl Rare Research Endowment Foundation?
Asxl Rare Research Endowment Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.arrefoundation.org
Learn more at the official website: www.arrefoundation.org
Mission Statement of Asxl Rare Research Endowment Foundation
The Asxl Rare Research Endowment Foundation, a family-driven organization, is dedicated to furthering research aimed at enhancing the comprehension of the ASXL gene family and improving the care for individuals living with ASXL Syndromes. Its mission is to back investigations and education that ultimately contribute to an improved quality of life for those affected by these syndromes. The foundation's primary tools for achieving this goal are the ASXL Registry and Biobank. These foundational resources, built on patient data and samples, serve as vital instruments for researchers, enabling them to expand their understanding and knowledge of ASXL Syndromes.
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Impact
October, 2024
The Asxl Rare Research Endowment Foundation significantly impacts the understanding and treatment of ASXL syndromes, conditions linked to the ASXL gene family. By developing the ASXL Registry and Biobank, the foundation has created crucial resources for researchers, providing them with valuable patient data and biological samples. This initiative enables in-depth studies that enhance knowledge about ASXL syndromes, ultimately aiming to improve care and quality of life for affected individuals.
Through its focus on research and education, the foundation facilitates advancements in medical knowledge and fosters a community committed to advancing care for those living with these rare conditions. Its efforts are instrumental in paving the way for innovative treatments and support mechanisms, demonstrating a profound commitment to enhancing the lives of individuals impacted by ASXL syndromes.
This information is meant to be a general summary of Asxl Rare Research Endowment Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $175
- Program Service Revenue: $5,773
- Gross Receipts: $228,516
Assets and Liabilities:
- Total Assets: $614,250
- Total Liabilities: $1,357
- Net Assets: $612,893
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Event Registration
Revenue
$5,773
Organization Details
Founding Year
2018
Phone
(845) 598-6359Principal Officer
Amanda Johnson
Main Address
PO Box 4662, Portland, ME, 04112
Website
www.arrefoundation.orgNTEE Category
Code: H12 - Medical research
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