Overview
What is The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation for 4H Leukodystrophy is a nonprofit organization based in Minneapolis, Minnesota. Established with a mission, it has launched an international collaboration network, known as 4H Leukodystrophy Collaboration Network (4HLCN), to bring together patients, families, researchers, and healthcare professionals. The primary objective of this network is to drive therapeutic advancements for 4H Leukodystrophy, a rare genetic disorder, enabling those afflicted to live healthier and more fulfilling lives for a longer period. The foundation, with a small workforce of two individuals, is dedicated to making significant strides in the medical field related to this specific leukodystrophy.
Official website here: www.yayafoundation4hl.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 67%, Two-Star out of Four Star rating
The Yaya Foundation For 4H Leukodystrophy has received a Two-Star rating from Charity Navigator, indicating a moderate level of performance in accountability and financial health. The organization's strengths include having a fully independent board and a low liabilities to assets ratio, which suggests a stable financial position. Additionally, a significant portion of expenses (77.75%) is directed towards programs, which is a positive indicator of its commitment to its mission.
However, the foundation faces several limitations that impact its overall rating. Notably, it lacks financial statements, which are crucial for transparency and accountability. Furthermore, it does not have key policies in place, such as a conflict of interest policy, whistleblower policy, or document retention policy, which may raise concerns regarding governance practices.
In summary, while The Yaya Foundation demonstrates a strong commitment to its programs and has a solid financial foundation, the absence of critical governance policies and financial transparency hampers its overall effectiveness as assessed by Charity Navigator.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The Yaya Foundation For 4H Leukodystophy?
100% of reviewers recommend The Yaya Foundation For 4H Leukodystrophy, showcasing a strong commitment to its cause. Here is a summary of their insights:
Supporters express heartfelt encouragement for others to contribute to the foundation, emphasizing the impact of donations on improving the lives of children affected by 4H Leukodystrophy. The message reflects a collective hope and determination to enhance the quality of life for those diagnosed with the condition, highlighting personal connections and the importance of community support.
Overall, there is a clear appreciation for the foundation's mission and the positive changes it aims to foster in the lives of children suffering from this rare disease. Donors and advocates alike rally behind the cause, seeing their contributions as crucial to ongoing efforts and research related to 4H Leukodystrophy.
This AI summary has been generated from reviews found on Facebook.
Is The Yaya Foundation For 4H Leukodystophy legitimate?
The Yaya Foundation For 4H Leukodystophy is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Yaya Foundation For 4H Leukodystophy submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $95,192
Professional Fundraising Fees: $0
Other Salaries and Wages: $68,750
For more financial information, click here
Official website here: www.yayafoundation4hl.org
What is the mission statement of The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation for 4H Leukodystrophy has established the 4H Leukodystrophy Collaboration Network (4HLCN), a global initiative. This network brings together patients, families, researchers, and clinicians in a cross-functional collaboration. The primary objective of this collaboration is to foster therapeutic discoveries. These discoveries aim to enhance the quality of life and extend the lifespan of individuals affected by 4H (POLR3-Related) Leukodystrophy. The foundation's mission is centered around advancing research and fostering a collaborative environment to improve the lives of those affected by this condition.
Official website here: www.yayafoundation4hl.org
Who is the CEO of The Yaya Foundation For 4H Leukodystophy?
Christina Butterworth is the Executive Dir. of The Yaya Foundation For 4H Leukodystophy.
Official website here: www.yayafoundation4hl.org
What is the revenue of The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation For 4H Leukodystophy's revenue in 2022 was $542,579.
Official website here: www.yayafoundation4hl.org
Who are the executives of The Yaya Foundation For 4H Leukodystophy and what are their salaries?
The average compensation at The Yaya Foundation For 4H Leukodystophy during 2022 was $81,971. There are 2 employees and 12 volunteers at The Yaya Foundation For 4H Leukodystophy.
Here are 12 key members and their salaries:
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Official website here: www.yayafoundation4hl.org
Where can I find the form 990 for The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation For 4H Leukodystophy's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.yayafoundation4hl.org
Learn more at the official website: www.yayafoundation4hl.org
Mission Statement of The Yaya Foundation For 4H Leukodystophy
The Yaya Foundation for 4H Leukodystrophy has a mission to make a significant impact in the lives of individuals affected by 4H (POLR3-Related) Leukodystrophy. To accomplish this, the foundation launched the 4H Leukodystrophy Collaboration Network (4HLCN). This global initiative brings together patients, families, researchers, and clinicians in a cross-functional collaboration. The primary goal of this network is to advance therapeutic discoveries. The aim is to enable those living with 4H Leukodystrophy to not only survive but also improve their quality of life. By fostering collaboration and knowledge sharing among various stakeholders, the foundation hopes to drive progress towards finding effective treatments for this condition.
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Impact
July, 2024
The Yaya Foundation For 4H Leukodystophy has made a significant impact through the creation and launch of the 4H Leukodystrophy Collaboration Network (4HLCN). This global collaboration brings together patients, families, researchers, and clinicians with the common goal of advancing therapeutic discovery for individuals affected by 4H (POLR3-Related) Leukodystrophy. By fostering this cross-functional network, The Yaya Foundation is working towards enabling those impacted by 4H Leukodystrophy to live longer and better lives.
This information is meant to be a general summary of The Yaya Foundation For 4H Leukodystophy. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $7,029
- Gross Receipts: $542,579
Assets and Liabilities:
- Total Assets: $743,023
- Total Liabilities: $9,197
- Net Assets: $733,826
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Organization Details
Founding Year
2017
Phone
(347) 268-7066Principal Officer
Christina Butterworth
Main Address
PO BOX 80685, MINNEAPOLIS, MN, 55408
Website
www.yayafoundation4hl.orgNTEE Category
Code: E12 - Health
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