Overview
What is Krabbeconnect?
Krabbeconnect is a nonprofit organization committed to supporting families affected by Krabbe disease. Established in Rosemount, Minnesota, they offer a range of resources and information through their website, social media channels, and direct engagement. They connect families with clinical experts, researchers, and opportunities for clinical trials related to Krabbe disease. Their comprehensive resource library provides up-to-date literature on the disease, ensuring families have the necessary knowledge to manage their loved ones' care effectively. Krabbeconnect also maintains international connections and an outreach director to foster a supportive community for those impacted by the disease.
Official website here: www.krabbeconnect.org
Is Krabbeconnect legitimate?
Krabbeconnect is a legitimate nonprofit organization registered as a 501(c)(3) entity. Krabbeconnect submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.krabbeconnect.org
What is the mission statement of Krabbeconnect?
Krabbeconnect's mission is to serve as a comprehensive resource for families affected by Krabbe disease. They provide information and access to resources through their website, social media channels, and direct engagement with families. This includes contact details for clinical experts, researchers, and resources for ongoing research. Krabbeconnect also offers opportunities for clinical trials related to the disease. Furthermore, they interact with the global community through their international liaison, outreach director, and patient engagement manager, offering support and connections for managing patient care.
Official website here: www.krabbeconnect.org
Who is the CEO of Krabbeconnect?
Stacy Pike-Langenfeld is the Principal Officer of Krabbeconnect.
Official website here: www.krabbeconnect.org
What is the revenue of Krabbeconnect?
Krabbeconnect's revenue in 2022 was $201,297.
Official website here: www.krabbeconnect.org
Who are the executives of Krabbeconnect and what are their salaries?
Here are 11 key members and their salaries:
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Official website here: www.krabbeconnect.org
Where can I find the form 990 for Krabbeconnect?
Krabbeconnect's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.krabbeconnect.org
Learn more at the official website: www.krabbeconnect.org
Mission Statement of Krabbeconnect
Krabbeconnect, a comprehensive resource center, is dedicated to providing families affected by Krabbe disease with essential information and access to necessary resources. The organization's primary mission is to serve as a reliable source for families navigating the challenges associated with Krabbe disease. By leveraging their website, social media channels, and direct engagement, Krabbeconnect offers support and connections to manage patient care.
The resources provided by Krabbeconnect are extensive and diverse. They offer contact information for clinical experts and researchers in the field, ensuring families have access to the latest knowledge and insights. Additionally, Krabbeconnect houses a resource library filled with current research literature, enabling families to stay informed about advancements and developments in Krabbe disease treatment and understanding. Furthermore, the organization actively seeks out opportunities for clinical trials related to the disease, providing families with potential avenues for experimental therapies and treatments.
In their efforts to engage with the community, Krabbeconnect employs an international liaison, outreach director, and patient engagement manager. These individuals work tirelessly to connect families with one another, fostering a sense of community and shared experience. By offering support and resources, Krabbeconnect empowers families to better manage the care of their loved ones with Krabbe disease.
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Impact
October, 2024
Krabbeconnect significantly enhances the lives of families affected by Krabbe disease by serving as a vital source of comprehensive information and resources. Through its online presence—including a website, Facebook, and other social media channels—it facilitates patient engagement and provides essential support for managing the complexities of the disease.
The platform offers families access to crucial information, such as contact details for clinical experts and researchers specializing in Krabbe disease. Additionally, it features a resource library with current research literature, thereby empowering families with knowledge about the latest advancements in treatment and care.
Moreover, Krabbeconnect actively promotes participation in clinical trials, providing opportunities for families to engage in cutting-edge research initiatives. With dedicated personnel such as an international liaison, outreach director, and patient engagement manager, the organization fosters meaningful connections and support networks among affected families, enhancing their experience and ability to navigate the challenges posed by Krabbe disease. Overall, Krabbeconnect plays an essential role in uniting and supporting the Krabbe community.
This information is meant to be a general summary of Krabbeconnect. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $285,202
Assets and Liabilities:
- Total Assets: $280,117
- Total Liabilities: $5,934
- Net Assets: $274,183
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Organization Details
Founding Year
2017
Phone
(651) 252-4117Principal Officer
Stacy Pike-Langenfeld
Main Address
PO BOX 264, ROSEMOUNT, MN, 55068
Website
www.krabbeconnect.orgNTEE Category
Code: G30 - Disease
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