Overview
What is Fore Batten Foundation?
The Fore Batten Foundation, situated in Chapel Hill, North Carolina, is a nonprofit organization dedicated to raising awareness and funding innovative research aimed at curing Batten disease. Their mission is twofold: to support families impacted by this rare condition and to financially back pioneering studies. They operate with a small team of one individual and contribute to various tax-exempt 501(c)(3) organizations that share their objectives. The Foundation's primary role is to educate the public about Batten disease and secure funding for research, with a specific focus on juvenile Batten disease. Their ultimate goal is to enhance the quality of life for children suffering from Batten disease and to raise awareness of the urgency for new treatment developments.
Official website here: www.forebatten.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 78%, Three-Star out of Four Star rating.
The Fore Batten Foundation has received a Three-Star rating from Charity Navigator, indicating a solid performance overall with a score of 78%. The organization excels in Accountability & Finance, achieving an impressive 83%, reflecting strong practices in independent governance and financial management. Key strengths include having a fully independent board and a high program expense ratio of 93.75%, ensuring that a significant majority of funds are directed toward programs.
Despite its strengths, there are noted limitations in certain areas. The foundation is lacking in the implementation of a whistleblower policy and a document retention and destruction policy, which received zero points in their evaluation. This suggests potential areas for improvement in governance practices that could enhance transparency and accountability further.
Moreover, the foundation shows a perfect score in Culture & Community, indicating effective feedback collection and usage, and strong leadership capacity. Overall, while there are some gaps in policy adherence, the Fore Batten Foundation demonstrates a commitment to its mission through effective resource allocation and community engagement.
This AI summary has been generated from information found on Charity Navigator.
Is Fore Batten Foundation legitimate?
Fore Batten Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fore Batten Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $59,583
For more financial information, click here
Official website here: www.forebatten.org
What is the mission statement of Fore Batten Foundation?
The Fore Batten Foundation is dedicated to funding pioneering research and providing compassionate support to individuals and families affected by Batten disease. Its primary goal is to give children with Batten disease the best possible quality of life, raise awareness about the urgency for new treatments, and assist all Batten disease families. The organization accomplishes this by making grants to tax-exempt organizations that promote awareness of Batten disease and provide opportunities for scientists to collaborate and develop innovative research proposals aimed at finding a cure for Batten disease.
Official website here: www.forebatten.org
Who is the CEO of Fore Batten Foundation?
Karen Kahn is the Director of Fore Batten Foundation. The CEO's salary of Fore Batten Foundation is $0 and their total compensation is $0.
Official website here: www.forebatten.org
What is the revenue of Fore Batten Foundation?
Fore Batten Foundation's revenue in 2022 was $1,452,603.
Official website here: www.forebatten.org
Who are the executives of Fore Batten Foundation and what are their salaries?
The average compensation at Fore Batten Foundation during 2022 was $59,583. There is 1 employee at Fore Batten Foundation.
Here are 5 key members and their salaries (Fore Batten Foundation's CEO's salary is $0 and their total compensation is $0):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.forebatten.org
Where can I find the form 990 for Fore Batten Foundation?
Fore Batten Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.forebatten.org
Learn more at the official website: www.forebatten.org
Mission Statement of Fore Batten Foundation
The Fore Batten Foundation, committed to educational and charitable purposes, focuses primarily on raising funds for research to combat rare diseases, specifically Juvenile Batten Disease. Driven by its mission, the organization strives tirelessly to fund pioneering research and offer compassionate support to the Batten community. By providing grants to various tax-exempt 501(c)(3) organizations, the Foundation promotes awareness of Batten Disease and fosters opportunities for scientists to collaborate in creating and funding innovative research proposals. The ultimate goal is to work towards a cure for Batten Disease and offer children and families affected by this condition the best possible life.
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Impact
July, 2024
Fore Batten Foundation's impact lies in funding pioneering research and providing compassionate support to the Batten community. The organization works tirelessly to improve the lives of children with Batten disease, raise awareness about the urgent need for funding new treatments, and assist all families affected by this devastating condition. Through grants and initiatives that promote scientific collaboration and innovation, Fore Batten Foundation contributes to the advancement of research towards finding a cure for Batten disease.
This information is meant to be a general summary of Fore Batten Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $2,876
- Program Service Revenue: $96
- Gross Receipts: $2,224,127
Assets and Liabilities:
- Total Assets: $2,172,966
- Total Liabilities: $0
- Net Assets: $2,172,966
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Organization Details
Founding Year
2017
Phone
(440) 708-6008Principal Officer
Karen Kahn
Main Address
11312 US 15-501 NORTH 107-117, CHAPEL HILL, NC, 27517
Website
www.forebatten.orgNTEE Category
Code: H12 - Medical research
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