Overview
What is Cure Rare Disease Inc?
Cure Rare Disease Inc, situated in Woodbridge, Connecticut, is a dedicated nonprofit organization with a mission to advance the development of therapeutics for ultra-rare diseases. Their unique ecosystem fosters collaboration between renowned researchers, clinicians, policy experts, and generous donors, aiming to financially support the creation of life-saving genetic medicines for previously under-served patient populations. By pooling resources and expertise, they are transforming the experience and burden of ultra-rare diseases for millions worldwide, offering hope to patients eagerly waiting for a cure. The organization currently employs a team of 7 individuals.
Official website here: www.cureraredisease.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 85% (Three-Star out of Four Stars)
Cure Rare Disease Inc has received a commendable Three-Star rating from Charity Navigator, reflecting a strong commitment to accountability and financial management. With an Accountability & Finance score of 83%, the organization demonstrates robust governance practices, highlighted by its fully independent board and comprehensive conflict of interest policies. The charity excels in its program expense ratio and fundraising efficiency, ensuring that a significant portion of its funds is directed towards its mission.
The organization also showcases strengths in leadership and adaptability, achieving a perfect score of 100 in this area. This indicates a proactive approach to strategic planning and the establishment of effective therapeutic programs aimed at advancing treatments for ultra-rare diseases. The score for Culture & Community is also impressive at 89%, suggesting a positive organizational environment that engages stakeholders and fosters collaboration.
Despite these strengths, the organization faces challenges with its liabilities to assets ratio, which is notably low at 68.81%. This could indicate potential financial strain or reliance on liabilities that may affect long-term sustainability. Nonetheless, Cure Rare Disease Inc is positioned well within its mission, with a clear strategy to progress therapeutic innovations for those affected by rare diseases.
This AI summary has been generated from information found on Charity Navigator.
Is Cure Rare Disease Inc legitimate?
Cure Rare Disease Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Rare Disease Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $88,862
Professional Fundraising Fees: $3,750
Other Salaries and Wages: $36,191
For more financial information, click here
Official website here: www.cureraredisease.org
What is the mission statement of Cure Rare Disease Inc?
Cure Rare Disease Inc's mission is centered around enabling and financing the development of life-saving genetic medicines for ultra-rare patient populations, previously considered too scarce to treat. They achieve this by fostering collaboration between renowned researchers, clinicians, policy experts, and their generous donors. This unique ecosystem is fundamentally transforming the experience and burden of ultra-rare diseases for millions of people worldwide, offering hope to patients in search of a cure. Their efforts are significantly impacting the lives of people affected by these diseases, bringing about groundbreaking discoveries and methods.
Official website here: www.cureraredisease.org
Who is the CEO of Cure Rare Disease Inc?
Richard Horgan is the President of Cure Rare Disease Inc.
Official website here: www.cureraredisease.org
What is the revenue of Cure Rare Disease Inc?
Cure Rare Disease Inc's revenue in 2022 was $2,797,783.
Official website here: www.cureraredisease.org
Who are the executives of Cure Rare Disease Inc and what are their salaries?
The average compensation at Cure Rare Disease Inc during 2022 was $17,865. There are 7 employees and 12 volunteers at Cure Rare Disease Inc.
Here are 13 key members and their salaries:
- Compensation: $74,845
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- Other: $7,278
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- Other: $0
Official website here: www.cureraredisease.org
Where can I find the form 990 for Cure Rare Disease Inc?
Cure Rare Disease Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.cureraredisease.org
Learn more at the official website: www.cureraredisease.org
Mission Statement of Cure Rare Disease Inc
Cure Rare Disease Inc is dedicated to enabling and financing the development of life-saving genetic medicines for ultra-rare patient populations that were previously considered too rare to treat. To achieve this goal, the organization facilitates collaboration between renowned researchers, clinicians, policy experts, and generous donors. By working together, they are fundamentally changing the experience and burden of ultra-rare diseases for millions of people worldwide, while bringing hope to patients who are eagerly awaiting a cure. The unique ecosystem established by Cure Rare Disease Inc is revolutionizing the field of genetic medicine for these under-served populations.
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Impact
July, 2024
Cure Rare Disease Inc enables and finances the development of life-saving genetic medicines for ultra-rare patient populations that were previously deemed too rare to treat. Through their unique ecosystem that fosters collaboration between researchers, clinicians, policy experts, and donors, they are fundamentally changing the ultra-rare disease experience for millions worldwide. By advancing the development of therapeutics for ultra-rare diseases, Cure Rare Disease Inc brings hope to patients waiting for a cure and significantly reduces the burden of such conditions.
This information is meant to be a general summary of Cure Rare Disease Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $88,129
- Gross Receipts: $2,913,791
Assets and Liabilities:
- Total Assets: $839,519
- Total Liabilities: $213,008
- Net Assets: $626,511
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Organization Details
Founding Year
2018
Phone
(607) 215-6401Principal Officer
Richard Horgan
Main Address
4 RESEARCH DRIVE, WOODBRDGE, CT, 06525
Website
www.cureraredisease.orgNTEE Category
Code: G12 - Disease
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