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Med13L

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 822469441 ✦ Barrington, NJ ✦ Designated as a 501(c)(3)

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Overview

What is Med13L?

Med13L is a nonprofit organization that focuses on supporting research, advancement, and raising awareness for the rare genetic disease known as Med13L Syndrome. Based in New Jersey, their mission is threefold: to increase public and medical community awareness of the complexity and potential severity of this condition, provide educational and emotional support for affected individuals and their families, and raise funds to finance research and development aimed at finding a cure. Med13L strives to create a supportive network for families impacted by the disease while also offering funding opportunities to healthcare professionals and researchers working to unravel the mysteries of Med13L Syndrome.


Official website here: www.med13l.org

Is Med13L legitimate?

Med13L is a legitimate nonprofit organization registered as a 501(c)(3) entity. Med13L submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.med13l.org

What is the mission statement of Med13L?

Med13L, an organization dedicated to supporting research and raising awareness for the rare genetic disease, Med13L, aims to achieve its mission by fostering community understanding of the condition and providing funding for further investigation. The ultimate goal is to uncover the causes of Med13L and discover a cure. In pursuit of this objective, Med13L strives to establish a supportive network for families affected by the disease while offering funding opportunities to healthcare professionals and researchers working towards a solution. By promoting research and advocacy, Med13L aims to contribute significantly to the fight against this rare genetic disease.


Official website here: www.med13l.org

Who is the CEO of Med13L?

Kelly Sexton is the President of Med13L.


Official website here: www.med13l.org

What is the revenue of Med13L?

Med13L's revenue in 2022 was $323,934.


Official website here: www.med13l.org

Who are the executives of Med13L and what are their salaries?

There 12 volunteers at Med13L.


Here are 6 key members and their salaries:


Nick Seaver (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kelly Sexton (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Katie Barry Boyschuck (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kim Sokorai (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Vanessa Dias (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lacey Akins (Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.med13l.org

Where can I find the form 990 for Med13L?

Med13L's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.med13l.org

Learn more at the official website: www.med13l.org

Mission Statement of Med13L

Med13L, a nonprofit organization, is dedicated to supporting research, advancing understanding, and raising awareness about the rare genetic disease, Med13L. Their primary objective is to foster awareness in both local and national communities about this disease. They aim to accomplish this by providing funding for research, development, and advancement in the fight against Med13L. The ultimate goal of Med13L is to uncover the causes of this disease and, ultimately, find a cure. In pursuit of this goal, Med13L strives to create a supportive system for families affected by Med13L while also offering funding opportunities to healthcare professionals and researchers who are working tirelessly to find a solution to this rare genetic disease.

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Impact




October, 2024

Med13L significantly impacts the community by focusing on the awareness, research, and support surrounding the rare genetic disease known as MED13L syndrome. Its primary objectives include raising awareness both locally and nationally, which is crucial for fostering understanding of the disorder's complexity and potential severity. By collaborating with the global scientific community, Med13L plays a pivotal role in investigating the MED13L gene, thereby aiming to uncover its functions and contributing to the development of effective treatments and a potential cure.

The initiative also emphasizes the importance of education and emotional support for individuals and families affected by MED13L syndrome. This dual approach ensures that families are not only informed about the disease but also have access to the necessary resources and support systems to navigate the challenges posed by the condition. Moreover, funding opportunities for healthcare professionals and researchers are integral to advancing our knowledge of MED13L, which can lead to groundbreaking discoveries and innovations in treatment.

Overall, Med13L's impact extends beyond mere awareness, as it actively fosters a community of support and collaboration that is essential for tackling the challenges of this rare genetic disorder.




This information is meant to be a general summary of Med13L. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$323,934 (2022)
Expenses
$41,607 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $323,934

Assets and Liabilities:

  • Total Assets: $332,051
  • Total Liabilities: $0
  • Net Assets: $332,051

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Organization Details

Founding Year

2017

Principal Officer

Kelly Sexton

Main Address

17 TIMBER DRIVE, BARRINGTON, NJ, 08007

NTEE Category

Code: H11 - Medical research

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