Overview
What is Kif1Aorg Inc?
Kif1Aorg Inc is a nonprofit organization based in New York City, specifically at 808 Columbus Avenue, 10A. Their mission is to improve the lives of individuals affected by KIF1A-associated neurological disorders and accelerate research to find a cure. They operate as a global community, collaborating on translational research to rapidly discover treatments for KIF1A, a neurodegenerative disorder causing a range of medical challenges. Kif1Aorg Inc manages various programs to de-risk and accelerate therapeutic development, such as the KIF1A Research Network, direct research funding, and open-access tools for development, including natural history data, disease models, and biomarkers. With a team of five dedicated individuals, their work aims to provide support for families and patients, as well as advance scientific understanding of the disorder.
Official website here: www.kif1a.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 85% (Three-Star out of Four Star rating)
Kif1Aorg Inc has received a solid Three-Star rating from Charity Navigator, indicating a commendable level of efficiency and effectiveness in its operations. The organization has demonstrated strong accountability and finance management, with an impressive score of 83 in this category. Notably, it boasts a fully independent board and has no reported material diversion of assets, which enhances its credibility and trustworthiness.
Strengths of Kif1Aorg Inc include its high program expense ratio of 78.92%, suggesting that a significant portion of its funds is directed toward its mission and programs. The organization also excels in its culture and community engagement, achieving a score of 85. Feedback collection and usage practices are robust, reflecting a commitment to listening to constituents and addressing their needs effectively.
However, there are a few areas for improvement, particularly in governance practices. The absence of a whistleblower policy and document retention policy may be considered limitations in its operations. Despite these challenges, the organization maintains a strong leadership adaptability score of 100, indicating that it is well-prepared to navigate changes and challenges in the nonprofit sector.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Kif1Aorg Inc?
100% of the reviewers on Facebook recommend Kif1Aorg Inc. Here is a summary of their reviews:
The organization is praised for its impactful efforts in raising funds to support research for a rare disease. Reviewers express appreciation for the mission and the potential benefits brought by the initiatives spearheaded by Kif1Aorg Inc. The community sentiment reflects a strong belief in the organization's capability to make a difference in the lives of those affected.
Overall, the commitment and dedication of Kif1Aorg Inc. resonate positively with supporters, suggesting that they effectively fulfill their goals and foster hope for future advancements in research.
This AI summary has been generated from reviews found on Facebook.
Is Kif1Aorg Inc legitimate?
Kif1Aorg Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Kif1Aorg Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $215,186
For more financial information, click here
Official website here: www.kif1a.org
What is the mission statement of Kif1Aorg Inc?
Kif1Aorg Inc is a global community committed to enhancing the lives of individuals affected by KIF1A-associated neurological disorders and expediting research to find a cure. Their mission is to improve the quality of life for those battling these disorders and to advance research with the ultimate goal of discovering treatments. By managing several programs, such as the KIF1A Research Network, they aim to de-risk and accelerate therapeutic development, providing essential tools like natural history data, disease models, and biomarkers for researchers. Kif1Aorg Inc also engages in family support and patient advocacy to further their cause.
Official website here: www.kif1a.org
Who is the CEO of Kif1Aorg Inc?
Sally Jackson is the Chief Science Officer of Kif1Aorg Inc.
Official website here: www.kif1a.org
What is the revenue of Kif1Aorg Inc?
Kif1Aorg Inc's revenue in 2022 was $557,417.
Official website here: www.kif1a.org
Who are the executives of Kif1Aorg Inc and what are their salaries?
The average compensation at Kif1Aorg Inc during 2022 was $43,037. There are 5 employees and 20 volunteers at Kif1Aorg Inc.
Here are 10 key members and their salaries:
- Compensation: $84,696
- Related: $0
- Other: $0
- Compensation: $53,903
- Related: $0
- Other: $0
- Compensation: $41,876
- Related: $0
- Other: $0
- Compensation: $16,840
- Related: $0
- Other: $0
- Compensation: $6,690
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.kif1a.org
Where can I find the form 990 for Kif1Aorg Inc?
Kif1Aorg Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.kif1a.org
Learn more at the official website: www.kif1a.org
Mission Statement of Kif1Aorg Inc
Kif1Aorg Inc, a global community dedicated to improving the lives of those affected by KIF1A-associated neurological disorders, is on a mission to accelerate research and find a cure. This nonprofit organization is committed to providing support and advocacy for individuals living with KAND, a neurodegenerative disorder caused by mutations in the KIF1A gene. KAND presents a range of medical challenges, including spastic paraplegia, epilepsy, intellectual disability, optic nerve atrophy, cerebellar atrophy, peripheral neuropathy, and autism. The disorder has a progressive course and can cause severe, life-threatening complications.
In addition to family support and patient advocacy, Kif1Aorg Inc powers collaborative and translational research to rapidly discover treatments for KAND. The organization manages several programs to de-risk and accelerate therapeutic development. These include the Kif1A Research Network, direct research funding, and open-access tools for development, such as natural history data, disease models, and biomarkers. By enabling researchers to share and access critical information, Kif1Aorg Inc is helping to speed up the discovery of effective treatments for KAND.
In summary, Kif1Aorg Inc is a beacon of hope for those affected by KIF1A-associated neurological disorders. Through its mission, the organization is dedicated to improving the lives of those living with KAND, accelerating research to find a cure, and providing support and advocacy for patients and their families.
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Impact
July, 2024
Kif1Aorg Inc's impact lies in its dedication to improving the lives of those affected by KIF1A-associated neurological disorders, such as KAND, and accelerating research to find a cure. By providing family support, patient advocacy, and powering collaborative research efforts, Kif1Aorg Inc is actively working to address the medical challenges presented by these disorders, including spastic paraplegia, epilepsy, intellectual disability, optic nerve atrophy, and more. Through programs like the KIF1A Research Network and direct research funding, the organization is contributing to the development of treatments for KAND and related conditions. In doing so, Kif1Aorg Inc is making a significant impact on the lives of individuals and families affected by these rare and debilitating disorders, offering hope for a better future.
This information is meant to be a general summary of Kif1Aorg Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $557,417
Assets and Liabilities:
- Total Assets: $267,063
- Total Liabilities: $0
- Net Assets: $267,063
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Organization Details
Founding Year
2017
Phone
(212) 896-2925Principal Officer
Sally Jackson
Main Address
808 COLUMBUS AVENUE 10A, NEW YORK, NY, 10025
Website
www.kif1a.orgNTEE Category
Code: F01 - Mental health
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