Overview
What is Spoonbill Foundation?
The Spoonbill Foundation is a nonprofit organization based in Portland, Oregon, with its operations addressed at c/o Immix Law Group. Their primary mission is to enhance the health of individuals suffering from rare neurodegenerative disorders, specifically focusing on PKAN. They achieve this by engaging in the development of compounds, encompassing activities such as GMP compound synthesis, database support, product shipping, testing, and other clinical trial-related tasks. The foundation's ultimate goal is to collaborate with the NBIA community to deliver therapeutics for PKAN and all related disorders as swiftly and cost-effectively as possible.
Official website here: www.spoonbillfoundation.org
Is Spoonbill Foundation legitimate?
Spoonbill Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Spoonbill Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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Official website here: www.spoonbillfoundation.org
What is the mission statement of Spoonbill Foundation?
The Spoonbill Foundation's mission is centered around discovering, developing, and delivering therapeutics for a specific neurodegenerative disorder called PKAN, as well as other NBIA disorders. They aim to accomplish this mission in collaboration with the NBIA community, prioritizing speed and affordability. Their activities include synthesizing GMP compounds and providing support for clinical trial activities, such as database management, shipping of study products, testing, and more. Essentially, the foundation's goal is to bring effective treatments for these rare disorders to those who need them as quickly and cost-effectively as possible.
Official website here: www.spoonbillfoundation.org
Who is the CEO of Spoonbill Foundation?
Janet Weiner is the President of Spoonbill Foundation.
Official website here: www.spoonbillfoundation.org
What is the revenue of Spoonbill Foundation?
Spoonbill Foundation's revenue in 2022 was $18,165.
Official website here: www.spoonbillfoundation.org
Who are the executives of Spoonbill Foundation and what are their salaries?
There 6 volunteers at Spoonbill Foundation.
Here are 4 key members and their salaries:
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Official website here: www.spoonbillfoundation.org
Where can I find the form 990 for Spoonbill Foundation?
Spoonbill Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.spoonbillfoundation.org
Learn more at the official website: www.spoonbillfoundation.org
Mission Statement of Spoonbill Foundation
The Spoonbill Foundation, named for its focus on rare neurodegenerative disorders, is committed to a mission of discovery, development, and delivery. This organization strives to create therapeutics for a specific condition known as PKAN, as well as other disorders under the umbrella of NBIA (Neurodegenerative Disorders with Brain Iron Accumulation). Their objective is to achieve this goal in collaboration with the NBIA community, ensuring that the process is as swift and cost-effective as possible. The Foundation's activities extend to the synthesis of GMP (Good Manufacturing Practice) compounds and providing support for various clinical trial activities. This encompasses database management, the shipping and handling of study products, testing, and other related tasks.
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Impact
August, 2024
Spoonbill Foundation is making a significant impact in the field of medical research by developing compounds to enhance the well-being of individuals afflicted with rare neurodegenerative disorders such as PKAN. Their focus on synthesizing GMP compound and offering support for various clinical trial activities, including database management, product shipment, and testing, demonstrates a strong commitment to advancing treatment options for those affected by these challenging conditions. Headquartered in Portland, Oregon, Spoonbill Foundation is dedicated to collaborating with the NBIA community to swiftly and cost-effectively discover, develop, and deliver therapeutics for PKAN and all NBIA disorders.
This information is meant to be a general summary of Spoonbill Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $251
- Gross Receipts: $18,165
Assets and Liabilities:
- Total Assets: $784,550
- Total Liabilities: $0
- Net Assets: $784,550
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Organization Details
Founding Year
2017
Phone
(503) 802-5522Principal Officer
Janet Weiner
Main Address
c/o Immix Law Group 600 Naito Pkwy, Portland, OR, 97209
Website
www.spoonbillfoundation.orgNTEE Category
Code: H19 - Medical research
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