Overview
What is Mila's Miracle Foundation?
Mila's Miracle Foundation is a nonprofit organization based in Boulder, Colorado, with a mission to discover and fund treatments for Batten and other life-threatening neurological disorders. Through grassroots campaigns, individual donations, family foundations, and events, the foundation has been instrumental in funding research initiatives. These include an Antisense Oligonucleotide (ASO) clinical trial, a CLN7 gene therapy trial, basic science research for Batten disease, a Batten & Neurodegenerative Disease Program Clinic, and a Pediatric Cell Atlas of Batten Pathobiology and Therapeutic Response. The foundation is also dedicated to fostering the development of personalized medicines, aiming to make individualized treatments accessible to more children affected by rare diseases. Collaborating with esteemed scientists and partner organizations, Mila's Miracle Foundation hopes to enhance the prognosis of these conditions, ultimately aspiring to extend treatments from an individual, like Mila, to many others.
Official website here: www.stopbatten.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 92%, Four-Star out of Four Stars
Mila's Miracle Foundation has received a high rating of 92%, which signifies strong performance in accountability and finance. The organization has achieved a perfect score in several key areas, including having an entirely independent board of directors and a low liabilities-to-assets ratio, indicating solid financial health. The charity's commitment to transparency is further evidenced by the proper maintenance of financial documentation and policies.
The foundation shows a commendable program expense ratio of 92.48%, suggesting that a significant portion of its funds is directed towards its charitable activities. This focus on program spending is a vital strength for the organization, as it demonstrates a commitment to its mission and effective use of donor contributions. Additionally, the presence of a conflict of interest policy and documented board meeting minutes highlight the organization's governance practices.
However, there is a noted limitation in the absence of a whistleblower policy, which may raise concerns regarding internal accountability. Despite this shortcoming, the overall evaluation indicates that Mila's Miracle Foundation is a well-managed nonprofit with a strong commitment to its mission and responsible financial practices.
This AI summary has been generated from information found on Charity Navigator.
Is Mila's Miracle Foundation legitimate?
Mila's Miracle Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Mila's Miracle Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $110,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $55,000
For more financial information, click here
Official website here: www.stopbatten.org
What is the mission statement of Mila's Miracle Foundation?
The mission of Mila's Miracle Foundation is centered around finding and funding potential cures for life-threatening neurological disorders, such as Batten disease. This non-profit organization relies on the support of families within the community to raise funds and increase awareness. By collaborating with distinguished scientists and partner organizations, the foundation aims to enhance the prognosis of these debilitating conditions.
Through various fundraising initiatives, including grassroots efforts, individual donations, family foundations, and events, Mila's Miracle Foundation has concentrated on five primary program initiatives to date. These initiatives include an Antisense Oligonucleotide (ASO) clinical trial, a CLN7 gene therapy trial, basic science research for Batten disease, a Batten & Neurodegenerative Disease Program Clinic, and a Pediatric Cell Atlas of Batten Pathobiology and Therapeutic Response.
Furthermore, the foundation is dedicated to fostering the development of personalized medicines, a new field that has been inspired by Mila's story. Their ultimate goal is to transition from "Mila's case" to a more widespread impact.
Official website here: www.stopbatten.org
Who is the CEO of Mila's Miracle Foundation?
Julia Vitarello is the President of Mila's Miracle Foundation.
Official website here: www.stopbatten.org
What is the revenue of Mila's Miracle Foundation?
Mila's Miracle Foundation's revenue in 2022 was $649,623.
Official website here: www.stopbatten.org
Who are the executives of Mila's Miracle Foundation and what are their salaries?
The average compensation at Mila's Miracle Foundation during 2022 was $82,500. There are 2 employees at Mila's Miracle Foundation.
Here are 6 key members and their salaries:
- Compensation: $110,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.stopbatten.org
Where can I find the form 990 for Mila's Miracle Foundation?
Mila's Miracle Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.stopbatten.org
Learn more at the official website: www.stopbatten.org
Mission Statement of Mila's Miracle Foundation
Mila's Miracle Foundation, a nonprofit organization, is dedicated to finding and funding potential cures for life-threatening neurological disorders, such as Batten disease. Families within this community have played a significant role in raising funds and spreading awareness, collaborating with remarkable scientists and partner organizations. The organization's ultimate goal is to improve the prognosis of these diseases and expand the possibilities in the field of personalized medicines.
Through various fundraising initiatives, including grassroots efforts, individual donations, family foundations, and events, Mila's Miracle Foundation has focused on five primary program initiatives. These include an Antisense Oligonucleotide (ASO) clinical trial, a CLN7 gene therapy trial, basic science research for Batten disease, a Batten & Neurodegenerative Disease Program Clinic, and a Pediatric Cell Atlas of Batten Pathobiology and Therapeutic Response. Apart from these, the foundation is also committed to fostering the growth of personalized medicines, a new field that Mila's story has opened up.
In essence, Mila's Miracle Foundation aims to transform the lives of those affected by these debilitating diseases, striving to transition from "Mila's story" to "many Milas' stories" of hope and improved health outcomes. By leveraging funding, partnerships, and cutting-edge research, the organization is working tirelessly to bring life-changing treatments and cures to those in need.
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Impact
July, 2024
Mila's Miracle Foundation has made a significant impact in the field of medical research by funding pathways to a cure for Batten and other life-threatening neurological disorders. Through their efforts in fundraising, including grassroots initiatives, individual and family foundations, and events, the foundation has focused on several program initiatives. These include supporting an antisense oligonucleotide (ASO) clinical trial, a CLN7 gene therapy trial, basic science research for Batten disease, establishing a Batten & neurodegenerative disease program clinic, and creating a pediatric cell atlas of Batten pathobiology and therapeutic response.
Moreover, Mila's Miracle Foundation is actively working on expanding personalized medicines and revolutionizing the drug development process in collaboration with leaders in the field. Their ultimate goal is to make individualized medicines accessible to many more children across various rare diseases, aiming to transition from "Mila to millions." The foundation's efforts have not only advanced research but also provided hope and potential solutions for children and families affected by these devastating conditions.
This information is meant to be a general summary of Mila's Miracle Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$150
- Gross Receipts: $670,429
Assets and Liabilities:
- Total Assets: $640,713
- Total Liabilities: $0
- Net Assets: $640,713
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Organization Details
Founding Year
2016
Principal Officer
Julia Vitarello
Main Address
PO BOX 19675, BOULDER, CO, 80308
Website
www.stopbatten.orgNTEE Category
Code: H80 - Medical research
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