Overview
What is Andrews Firefly Fund?
The Andrews Firefly Fund is a nonprofit organization dedicated to eradicating neurodegenerative genetic diseases in children, with a particular focus on NPC. They channel their funds towards both research and advocacy initiatives, aiming to find a cure for these debilitating conditions. The organization's mission is clear and impactful, addressing a crucial need in the healthcare sector for children suffering from these diseases.
Official website here: www.fireflyfund.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 73% (Two-Star out of Four Star rating)
The Andrews Firefly Fund has received a rating of 73%, which translates to a Two-Star rating, indicating that while the organization demonstrates certain strengths in accountability and finances, there are areas for improvement. The charity has a solid program expense ratio of 78.16%, showing that a significant portion of its resources is dedicated to programmatic activities. In terms of governance, it boasts a majority independent board with 66% of its members being independent, which generally contributes to better oversight and decision-making.
However, several critical governance policies are either missing or lacking. Notably, the charity does not have a whistleblower or document retention policy in place, which are essential for ensuring transparency and protecting stakeholders. Additionally, the organization has not posted its tax form on its website, which could limit access to important financial information for donors and the public.
Despite the strengths in financial management and board independence, the absence of key policies raises concerns about overall governance practices. Prospective donors and stakeholders should weigh these factors when considering their support for the Andrews Firefly Fund.
This AI summary has been generated from information found on Charity Navigator.
Is Andrews Firefly Fund legitimate?
Andrews Firefly Fund is a legitimate nonprofit organization registered as a 501(c)(3) entity. Andrews Firefly Fund submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.fireflyfund.org
What is the mission statement of Andrews Firefly Fund?
The Andrews Firefly Fund is dedicated to funding research and advocacy efforts aimed at curing neurodegenerative genetic diseases in children, with a specific focus on NPC. Their mission is to contribute significantly to finding a cure for these conditions, thereby improving the lives of affected children. The organization supports scientific research, raising awareness, and advocating for policies that prioritize these diseases, with the ultimate goal of eradicating them. By investing in innovative studies and collaborations, the Andrews Firefly Fund aims to accelerate progress in understanding and treating neurodegenerative genetic diseases in children.
Official website here: www.fireflyfund.org
Who is the CEO of Andrews Firefly Fund?
Beryl Pamela Andrews is the Executive Director of Andrews Firefly Fund.
Official website here: www.fireflyfund.org
What is the revenue of Andrews Firefly Fund?
Andrews Firefly Fund's revenue in 2022 was $38,267.
Official website here: www.fireflyfund.org
Who are the executives of Andrews Firefly Fund and what are their salaries?
Here are 6 key members and their salaries:
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- Compensation: $95,000
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Official website here: www.fireflyfund.org
Where can I find the form 990EZ for Andrews Firefly Fund?
Andrews Firefly Fund's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.fireflyfund.org
Learn more at the official website: www.fireflyfund.org
Mission Statement of Andrews Firefly Fund
The Andrews Firefly Fund is an organization dedicated to funding research and advocacy efforts aimed at curing neurodegenerative genetic diseases in children. With a specific focus on NPC (Niemann-Pick Disease Type C), this nonprofit is committed to making a significant impact in the lives of affected children and their families. The mission of Andrews Firefly Fund is to support scientific advancements and raise awareness about these debilitating conditions, ultimately working towards finding a cure.
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Impact
August, 2024
The impact of Andrews Firefly Fund is in funding research and advocacy efforts to find a cure for neurodegenerative genetic diseases in children, with a focus on NPC (Niemann-Pick type C disease). Through their work, Andrews Firefly Fund is contributing towards advancements in the understanding and treatment of these devastating illnesses, and offering hope to affected families for a brighter future.
This information is meant to be a general summary of Andrews Firefly Fund. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $38,267
Assets and Liabilities:
- Total Assets: $292,418
- Total Liabilities: $0
- Net Assets: $292,418
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Organization Details
Phone
(512) 750-1609Principal Officer
Beryl Pamela Andrews
Main Address
PO BOX 92616, AUSTIN, TX, 78709
Website
www.fireflyfund.orgNTEE Category
Code: G80 - Disease
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