Overview
What is The Chronic Disease Coalition?
The Chronic Disease Coalition is a nonprofit organization situated in Portland, Oregon, specifically at 6605 S Macadam Avenue 200. Their primary mission is to safeguard the rights of chronic disease patients, ensuring they are not subjected to discriminatory policies, practices, or attitudes in various settings like the workplace or school. The coalition strives to provide patients with adequate healthcare networks and financial support programs. They have undertaken several initiatives, such as advocating for patient protection bills nationwide, engaging more than 1,000 patients in letter-writing campaigns to lawmakers. The Chronic University, a free educational webinar series focused on chronic disease advocacy, hosted 10 sessions engaging both patients and experts. The team of Patient Ambassadors advised the CDC on policy and lifestyle issues, and met with legislators in their home states. The coalition has a significant online presence, with over 10,000 followers, and they curate content and followers meticulously to ensure the right messages reach the right people. In addition to their patient education and engagement work, they have convened experts on complex issues like Medigap and PBM reform. The Chronic Disease Coalition also developed a "Patient Access Scorecard" to evaluate the accessibility of state legislatures to chronic disease patients.
Official website here: www.chronicdiseasecoalition.org
Is The Chronic Disease Coalition legitimate?
The Chronic Disease Coalition is a legitimate nonprofit organization registered as a 501(c)(6) entity. The Chronic Disease Coalition submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.chronicdiseasecoalition.org
What is the mission statement of The Chronic Disease Coalition?
The Chronic Disease Coalition (CDC) is committed to safeguarding the rights of individuals with chronic diseases against discriminatory policies, practices, and attitudes in various settings, including the workplace and educational institutions. The organization aims to ensure that patients with conditions such as diabetes, kidney disease, multiple sclerosis, psoriasis, cancer, and others have access to adequate healthcare networks and financial support programs.
The CDC engages in educating patients and policy-makers on issues affecting chronic disease patients, empowering them to voice their concerns. Their direct and grassroots advocacy efforts have supported patient protection bills across the country, with over 1,000 patient letters being sent to lawmakers.
The CDC's educational webinar series, Chronic University, offered 10 sessions focusing on chronic disease advocacy, engaging both patients and experts. Additionally, their team of patient ambassadors met with legislators in their home states and provided advice on policy and lifestyle issues to the CDC at regular meetings.
With over 10,000 followers across various platforms, the CDC curates content and engages followers to ensure the right messages reach the right people. The organization has also convened experts on complex issues such as Medigap and PBM reform, and developed a "Patient Access Scorecard" to evaluate the accessibility of state legislatures to chronic disease patients.
Official website here: www.chronicdiseasecoalition.org
Who is the CEO of The Chronic Disease Coalition?
Mary K Clunies-Ross is the President of The Chronic Disease Coalition.
Official website here: www.chronicdiseasecoalition.org
What is the revenue of The Chronic Disease Coalition?
The Chronic Disease Coalition's revenue in 2022 was $507,500.
Official website here: www.chronicdiseasecoalition.org
Who are the executives of The Chronic Disease Coalition and what are their salaries?
There 43 volunteers at The Chronic Disease Coalition.
Here are 10 key members and their salaries:
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Official website here: www.chronicdiseasecoalition.org
Where can I find the form 990 for The Chronic Disease Coalition?
The Chronic Disease Coalition's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.chronicdiseasecoalition.org
Learn more at the official website: www.chronicdiseasecoalition.org
Mission Statement of The Chronic Disease Coalition
The Chronic Disease Coalition (CDC) is committed to safeguarding the rights of individuals living with chronic diseases from discriminatory policies, practices, and attitudes in various settings such as the workplace, school, or other organizations. This nonprofit organization aims to ensure that people with conditions like diabetes, kidney disease, multiple sclerosis, psoriasis, cancer, and others have access to adequate healthcare networks and financial support programs that cater to their needs.
In pursuit of its mission, the Chronic Disease Coalition educates both patients and policymakers on issues affecting chronic disease patients. It advocates for patient protection bills across the country, sending over a thousand patient letters to lawmakers. The coalition also hosts a free educational webinar series called Chronic University, which engages patients and experts in chronic disease advocacy. Furthermore, the CDC's team of patient ambassadors meets with legislators in their home states and provides advice on policy and lifestyle issues at monthly meetings. The CDC's efforts in patient education and engagement, along with its platform, have amassed over 10,000 followers, with a dedicated team curating content to reach the right audience.
In addition to its patient education and engagement work, the Chronic Disease Coalition convenes experts to address complex issues such as Medigap and PBM reform. It has also developed a "Patient Access Scorecard" that evaluates the accessibility of state legislatures to chronic disease patients. The Chronic Disease Coalition's mission is a testament to its dedication to advocating for the rights and needs of individuals with chronic diseases, ensuring they have access to the care and support they deserve.
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Impact
October, 2024
The Chronic Disease Coalition significantly impacts the lives of chronic disease patients by advocating for their rights and ensuring equitable access to healthcare resources. Through education initiatives, the organization informs both patients and policymakers about critical issues affecting those with chronic illnesses like diabetes, kidney disease, multiple sclerosis, and cancer.
One notable achievement is their grassroots advocacy, which has resulted in over 1,000 letters sent to lawmakers, supporting the enactment of patient protection bills nationwide. Their "Chronic University" series has provided valuable educational opportunities, fostering engagement between patients and experts in advocacy.
The Coalition empowers patients to articulate their needs by mobilizing a network of patient ambassadors who meet with legislators, ensuring that patient voices are heard in the legislative process. Additionally, their development of the "Patient Access Scorecard" assesses how accessible state legislatures are to chronic disease patients, driving further awareness and improvement.
With a robust online presence, attracting more than 10,000 followers, the Coalition continuously curates content that resonates with both its community and decision-makers. Overall, the Coalition's multifaceted approach creates a supportive environment that seeks to dismantle discriminatory practices and promote the rights and access of chronic disease patients to the care they need.
This information is meant to be a general summary of The Chronic Disease Coalition. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $507,500
Assets and Liabilities:
- Total Assets: $62,974
- Total Liabilities: $50,728
- Net Assets: $12,246
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Organization Details
Founding Year
2015
Phone
(503) 546-5909Principal Officer
Mary K Clunies-Ross
Main Address
6605 S MACADAM AVENUE 200, PORTLAND, OR, 97239
NTEE Category
Code: S41 - Community improvement
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