Overview
What is Glioblastoma Foundation Inc?
Glioblastoma Foundation Inc, established in Durham, North Carolina, is a distinguished nonprofit organization with a mission to combat glioblastoma, a rare and severe grade 4 brain cancer. Their primary objective is to fund cutting-edge research for a potential cure, provide essential patient support resources, and raise awareness about this debilitating disease. In 2022, they continued their funding for targeted treatments, such as the combination drug therapy of Lomustine and Temozolomide for newly diagnosed patients, and conducted research on patient and caregiver quality of life after diagnosis. Additionally, they launched a targeted study on glioblastoma cancer cell metabolism processes and drugs to inhibit cell growth. The organization also aims to manufacture Lomustine at a reduced rate for patients through a partnership with Continuity Pharma. Their patient programs offer clinical trial matching after diagnosis and support groups, like the award-winning Glioblastoma Support Circle. With a team of dedicated professionals, the Glioblastoma Foundation Inc is committed to enhancing the lives of those affected by this brain cancer.
Official website here: www.glioblastomafoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 81%, Three-Star out of Four Star rating.
The Glioblastoma Foundation Inc has received an 81% rating from Charity Navigator, indicating a solid level of financial health and organizational effectiveness. With a strong Culture & Community score of 100, the foundation demonstrates its commitment to fostering a positive environment and engaging with the community, which is essential for a nonprofit focused on such a challenging health issue.
In terms of financial accountability, the organization has a Program Expense Ratio of 74.31%, suggesting that a significant portion of its budget is directed towards programmatic activities rather than administrative expenses. The foundation boasts a low liabilities to assets ratio of 0.00% and has a high percentage of independent board members, enhancing its governance and operational integrity. Additionally, it has established policies for conflicts of interest and whistleblowing, which contribute to its transparency and ethical practices.
However, the foundation's Leadership & Adaptability score is lower at 10%, indicating potential areas for improvement in these categories. While it excels in gathering and utilizing feedback, the overall leadership effectiveness might need further attention to enhance its adaptability to changing circumstances. Despite this limitation, the foundation's strong community involvement and financial practices position it positively in the nonprofit sector.
This AI summary has been generated from information found on Charity Navigator.
Is Glioblastoma Foundation Inc legitimate?
Glioblastoma Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Glioblastoma Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $192,826
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.glioblastomafoundation.org
What is the mission statement of Glioblastoma Foundation Inc?
The Glioblastoma Foundation Inc, being the pioneer and leading national nonprofit organization dedicated to glioblastoma, works towards three primary objectives. Firstly, it funds cutting-edge research to discover a cure for glioblastoma, a rare and severe grade 4 brain cancer. Secondly, it provides patient support resources, offering assistance to families and individuals diagnosed with this condition. Lastly, it raises awareness about this brain cancer to ensure adequate understanding and support for those affected. In 2022, the foundation continued funding research on targeted treatments for glioblastoma, patient quality of life after diagnosis, and glioblastoma cancer cell metabolism processes. Additionally, the foundation partnered with Continuity Pharma to manufacture Lomustine at a reduced rate for patients, aiming to make this vital medication more affordable.
Official website here: www.glioblastomafoundation.org
Who is the CEO of Glioblastoma Foundation Inc?
Madan Kwatra is the President of Glioblastoma Foundation Inc. The CEO's salary of Glioblastoma Foundation Inc is $202,250 and their total compensation is $221,249.
Official website here: www.glioblastomafoundation.org
What is the revenue of Glioblastoma Foundation Inc?
Glioblastoma Foundation Inc's revenue in 2022 was $1,471,550.
Official website here: www.glioblastomafoundation.org
Who are the executives of Glioblastoma Foundation Inc and what are their salaries?
The average compensation at Glioblastoma Foundation Inc during 2022 was $38,565. There are 5 employees and 10 volunteers at Glioblastoma Foundation Inc.
Here are 3 key members and their salaries (Glioblastoma Foundation Inc's CEO's salary is $202,250 and their total compensation is $221,249):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $202,250
- Related: $0
- Other: $18,999
Official website here: www.glioblastomafoundation.org
Where can I find the form 990 for Glioblastoma Foundation Inc?
Glioblastoma Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.glioblastomafoundation.org
Learn more at the official website: www.glioblastomafoundation.org
Mission Statement of Glioblastoma Foundation Inc
The Glioblastoma Foundation, serving as the first and leading national nonprofit dedicated to glioblastoma, is committed to funding leading-edge research aimed at discovering a cure for this rare, grade 4 brain cancer. Beyond research, the foundation provides patient support resources and raises awareness about this often misunderstood condition. In 2022, their research initiatives focused on funding targeted treatments for glioblastoma, improving patient and caregiver quality of life, and exploring glioblastoma cancer cell metabolism processes and drugs to inhibit cell growth. Additionally, the Glioblastoma Foundation is working on a project to manufacture Lomustine at a reduced rate for patients, in partnership with Continuity Pharma, in an effort to make this vital medication more affordable. Furthermore, the foundation offers clinical trial matching services for patients diagnosed with glioblastoma and hosts the Glioblastoma Support Circle, an award-winning support group for patients and their caregivers.
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Impact
July, 2024
Glioblastoma Foundation Inc's impact in 2022 included continuing funding for cutting-edge research into targeted treatments for glioblastoma, providing patient support resources for families and patients facing this diagnosis, and raising awareness of this rare grade 4 brain cancer. Specifically, they funded research on the combination drug therapy of lomustine and temozolomide for newly diagnosed glioblastoma patients, examined patient and caregiver quality of life after diagnosis, and conducted a targeted study on glioblastoma cancer cell metabolism processes and drugs to halt cell growth. They also progressed towards manufacturing lomustine at a reduced rate for patients by partnering with Continuity Pharma to produce lomustine active pharmaceutical ingredient, aiming to make the drug more affordable for patients. Additionally, they continued providing clinical trials matching for patients post-diagnosis and hosted their acclaimed support group for patients and caregivers, known as the Glioblastoma Support Circle.
This information is meant to be a general summary of Glioblastoma Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$41,832
- Gross Receipts: $1,966,854
Assets and Liabilities:
- Total Assets: $1,781,399
- Total Liabilities: $0
- Net Assets: $1,781,399
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Organization Details
Founding Year
2016
Phone
(919) 309-1489Principal Officer
Madan Kwatra
Main Address
2451 CROASDAILE FARM PARKWAY 109, DURHAM, NC, 27705
NTEE Category
Code: H30 - Medical research
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