Overview
What is Pura Syndrome Foundation?
The Pura Syndrome Foundation is a nonprofit organization that focuses on fostering collaboration among medical and research professionals, as well as interested individuals worldwide. To achieve this, they invest in various expenses such as website and software development, conferences, taxes and licenses, insurance, office essentials, and other related costs. The foundation's primary mission is to facilitate the exchange of ideas and information, which they accomplish by organizing gatherings where professionals and enthusiasts can network and discuss their findings related to Pura Syndrome. The organization's activities span beyond borders, contributing to the collective understanding and advancement of knowledge about this condition.
Official website here: www.purasyndrome.org
Is Pura Syndrome Foundation legitimate?
Pura Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pura Syndrome Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.purasyndrome.org
What is the mission statement of Pura Syndrome Foundation?
The Pura Syndrome Foundation's mission involves fostering a collaborative environment for medical and research professionals, as well as interested individuals, from various parts of the globe. Their primary goal is to facilitate the sharing of information and ideas related to Pura Syndrome. By doing so, they aim to advance the understanding and potential treatments for this condition. The foundation also invests in various expenses, including website and software expenses, conference expenses, taxes and licenses, insurance, office expenses, and other miscellaneous costs, to support their mission.
Official website here: www.purasyndrome.org
Who is the CEO of Pura Syndrome Foundation?
Amanda Shanks is the President of Pura Syndrome Foundation.
Official website here: www.purasyndrome.org
What is the revenue of Pura Syndrome Foundation?
Pura Syndrome Foundation's revenue in 2022 was $69,881.
Official website here: www.purasyndrome.org
Who are the executives of Pura Syndrome Foundation and what are their salaries?
Here are 9 key members and their salaries:
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Official website here: www.purasyndrome.org
Where can I find the form 990EZ for Pura Syndrome Foundation?
Pura Syndrome Foundation's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.purasyndrome.org
Learn more at the official website: www.purasyndrome.org
Mission Statement of Pura Syndrome Foundation
The Pura Syndrome Foundation, a dedicated organization, focuses its efforts on advancing understanding and support for individuals and families affected by Pura Syndrome. While the mission description is not explicitly provided, the information suggests that the foundation invests in various expenses related to its operations and events. Notably, the foundation spent funds on website and software expenses, conference expenses, taxes and licenses, insurance, office expenses, and other miscellaneous expenses. Moreover, the organization hosted a gathering, inviting medical and research professionals, as well as interested attendees from different parts of the world, to engage in information sharing and idea exchange. This event underscores the foundation's commitment to fostering collaboration and knowledge exchange within the Pura Syndrome community.
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Impact
August, 2024
The Pura Syndrome Foundation's impact includes providing support and resources for individuals with Pura Syndrome and their families. The foundation also facilitates collaboration and information sharing among medical and research professionals to further understand and find treatments for this rare genetic disorder. Through hosting conferences and gatherings, they create opportunities for networking and knowledge exchange among stakeholders from around the world.
This information is meant to be a general summary of Pura Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $31
- Gross Receipts: $69,881
Assets and Liabilities:
- Total Assets: $390,060
- Total Liabilities: $15,059
- Net Assets: $375,001
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Organization Details
Phone
(512) 413-2460Principal Officer
Amanda Shanks
Main Address
3 Little Harbor Road, Berwick, ME, 03901
Website
www.purasyndrome.orgNTEE Category
Code: H11 - Medical research
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