Overview
What is Tatton Brown Rahman Syndrome Community Inc?
Tatton Brown Rahman Syndrome Community Inc, situated in Stanfordville, New York, is a compassionate nonprofit organization dedicated to supporting families impacted by Tatton Brown Rahman Syndrome (TBRS) and driving research towards potential interventions. They have established a robust Patient-Led TBRS Collaborative Research Network, involving over 200 scientists, to collaborate on patient-focused research agendas, primarily focused on treatment development and cures for TBRS. The organization actively engages with their patient community through various programs, such as the TBRS Education and Outreach Series, a parent and caregiver support group, a social group, and TBRS Cares Program. Regular conferences are also organized to disseminate information and encourage collaboration within the scientific community.
Official website here: www.tbrsyndrome.org
What do the Facebook reviews say about Tatton Brown Rahman Syndrome Community Inc?
With three reviews currently available, users express a strong sense of community and support provided by the Tatton Brown Rahman Syndrome Community Inc. One reviewer highlights that the organization feels like family, emphasizing the emotional connection and solidarity among members.
Additionally, the nonprofit is praised for funding research, demonstrating its commitment to not only support families but also to advance knowledge and understanding of the syndrome. This dual focus on emotional and scientific aspects appears to resonate well with those involved. Overall, the sentiment reflects a positive impression, indicating a real dedication to the welfare of families affected by Tatton Brown Rahman Syndrome.
This AI summary has been generated from reviews found on Facebook.
Is Tatton Brown Rahman Syndrome Community Inc legitimate?
Tatton Brown Rahman Syndrome Community Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Tatton Brown Rahman Syndrome Community Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $78,134
Professional Fundraising Fees: $0
Other Salaries and Wages: $16,073
For more financial information, click here
Official website here: www.tbrsyndrome.org
What is the mission statement of Tatton Brown Rahman Syndrome Community Inc?
The Tatton Brown Rahman Syndrome Community Inc is committed to assisting families impacted by Tatton Brown Rahman Syndrome (TBRS). Their primary objective is to foster research aimed at developing interventions for TBRS. To achieve this, they have established the Patient-Led TBRS Collaborative Research Network, which brings together over 200 scientists. These researchers utilize the resources and tools provided by the TBRS Community to create research agendas focused on treatment advancements and cures for TBRS.
The organization also hosts conferences, such as the TBRS Family Conference and the TBRS Collaborative Research Network Conferences, to disseminate information and encourage collaboration among families and the scientific community. Furthermore, the Tatton Brown Rahman Syndrome Community Inc directly supports its patient community through various initiatives, including the TBRS Education and Outreach Series, TBRS Parent and Caregiver Support Group, TBRS Social Group, and TBRS Cares Program.
Official website here: www.tbrsyndrome.org
Who is the CEO of Tatton Brown Rahman Syndrome Community Inc?
Jill Kiernan is the Executive Director of Tatton Brown Rahman Syndrome Community Inc.
Official website here: www.tbrsyndrome.org
What is the revenue of Tatton Brown Rahman Syndrome Community Inc?
Tatton Brown Rahman Syndrome Community Inc's revenue in 2022 was $165,360.
Official website here: www.tbrsyndrome.org
Who are the executives of Tatton Brown Rahman Syndrome Community Inc and what are their salaries?
The average compensation at Tatton Brown Rahman Syndrome Community Inc during 2022 was $47,104. There are 2 employees and 30 volunteers at Tatton Brown Rahman Syndrome Community Inc.
Here are 6 key members and their salaries:
- Compensation: $78,134
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.tbrsyndrome.org
Where can I find the form 990 for Tatton Brown Rahman Syndrome Community Inc?
Tatton Brown Rahman Syndrome Community Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.tbrsyndrome.org
Learn more at the official website: www.tbrsyndrome.org
Mission Statement of Tatton Brown Rahman Syndrome Community Inc
Tatton Brown Rahman Syndrome Community Inc, an organization dedicated to supporting families affected by Tatton Brown Rahman Syndrome (TBRS), has a mission to advance research and develop interventions for this condition. Their primary goal is to bring together a network of over 200 scientists through the Patient-Led TBRS Collaborative Research Network. This network utilizes research tools and resources established by the organization to create patient-centric research agendas, focusing on treatment development and potential cures for TBRS.
In addition to their research initiatives, Tatton Brown Rahman Syndrome Community Inc engages directly with their patient community. They host conferences, such as the TBRS Family Conference and the TBRS Collaborative Research Network Conferences, to provide families with information and support. Furthermore, they offer various programs to support their community, including the TBRS Education and Outreach Series, TBRS Parent and Caregiver Support Group, TBRS Social Group, and TBRS Cares Program. These initiatives aim to provide families with the necessary resources and a sense of community, fostering a supportive environment during their journey with TBRS.
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Impact
October, 2024
Tatton Brown Rahman Syndrome Community Inc has made a significant impact by supporting families affected by Tatton Brown Rahman Syndrome (TBRS) and fostering research aimed at developing effective treatments.
The organization has successfully built the Patient-Led TBRS Collaborative Research Network, which encompasses over 200 scientists dedicated to creating research agendas that prioritize the needs and experiences of patients. This collaborative effort emphasizes the development of effective treatments and potential cures for TBRS.
Moreover, the community has hosted events such as the TBRS Family Conference and TBRS Collaborative Research Network Conferences. These gatherings serve as platforms for disseminating vital information, facilitating support for families, and encouraging collaborative efforts among scientists in the field.
In addition to research initiatives and conferences, Tatton Brown Rahman Syndrome Community Inc provides direct support to families through various educational and outreach programs. These include the TBRS Education and Outreach Series, TBRS Parent and Caregiver Support Group, TBRS Social Group, and the TBRS Cares Program, each designed to assist and empower those affected by TBRS.
Through these multifaceted efforts, the organization significantly enhances the lives of families impacted by TBRS while pushing forward the frontier of research to find viable interventions.
This information is meant to be a general summary of Tatton Brown Rahman Syndrome Community Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $165,360
Assets and Liabilities:
- Total Assets: $832,865
- Total Liabilities: $8,658
- Net Assets: $824,207
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Organization Details
Founding Year
2017
Principal Officer
Jill Kiernan
Main Address
122 Hunns Lake Road, Stanfordville, NY, 12581
Website
www.tbrsyndrome.orgNTEE Category
Code: G20 - Disease
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