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Project Lyme

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 811138289 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Project Lyme?

Project Lyme is a nonprofit organization based in New York, specifically at 229 E 85TH STREET SUITE 38, committed to eradicating the epidemic of Lyme disease and other tick-borne illnesses. They achieve this goal through various means, including spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for effective solutions. Since 2016, Project Lyme has challenged misconceptions about diagnosis and treatment, advocated for patients' rights, and fostered a community for Lyme patients and their loved ones. The organization primarily invests in research, focusing on improving diagnostics and treatments, given the unreliability of current Lyme testing and the lack of effective treatments for chronic cases. With a team of two dedicated individuals, Project Lyme aims to alleviate the suffering caused by these diseases.


Official website here: www.projectlyme.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 93%, Four-Star out of Four Star Rating

Project Lyme has achieved a commendable Four-Star rating from Charity Navigator, reflecting its strong performance in accountability and finance. With an overall score of 93%, the organization demonstrates a robust commitment to transparency and sound financial management, as evidenced by its impressive metrics across several critical areas.

The organization is led by an entirely independent board, which ensures impartial governance and ethical decision-making. Project Lyme scored full points across various criteria, including conflict of interest and whistleblower policies, which reinforces its dedication to maintaining high standards of integrity. Additionally, the charity has a favorable liabilities to assets ratio of 0.00%, indicating it has no outstanding debts in relation to its assets.

While the program expense ratio stands at 67.93%, indicating that a significant portion of funds is allocated to direct programs, it is slightly below the typical threshold of 75%. This aspect may warrant further scrutiny for potential improvement, though it still reflects a strong commitment to the charity's mission. Overall, Project Lyme's financial health and governance structure position it as a trustworthy organization in the nonprofit sector.


This AI summary has been generated from information found on Charity Navigator.

Is Project Lyme legitimate?

Project Lyme is a legitimate nonprofit organization registered as a 501(c)(3) entity. Project Lyme submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $106,460
Professional Fundraising Fees: $0
Other Salaries and Wages: $28,800

For more financial information, click here


Official website here: www.projectlyme.org

What is the mission statement of Project Lyme?

Project Lyme's mission is centered around eliminating the epidemic of Lyme disease and other tick-borne illnesses. They accomplish this by spreading awareness, providing educational resources, financing peer-reviewed research, and supporting advocacy efforts to find solutions that alleviate suffering. Since its inception in 2016, Project Lyme has actively combated misconceptions about diagnosis and treatment, advocated for patients' rights, and established a supportive community for Lyme disease patients and their loved ones.


Official website here: www.projectlyme.org

Who is the CEO of Project Lyme?

Noah Johnston is the Executive Director of Project Lyme.


Official website here: www.projectlyme.org

What is the revenue of Project Lyme?

Project Lyme's revenue in 2022 was $790,982.


Official website here: www.projectlyme.org

Who are the executives of Project Lyme and what are their salaries?

The average compensation at Project Lyme during 2022 was $67,630. There are 2 employees and 30 volunteers at Project Lyme.


Here are 14 key members and their salaries:


Noah Johnston (Executive Director)
  • Compensation: $106,459
  • Related: $0
  • Other: $0
David Roth (Executive Committee Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Weis (Board Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nan Kurzman (Board Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mark Weber (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kim Dickstein (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Bell (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nina Levene (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Isabel Rose (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Goldenberg (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bob Forester (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kathleen Katzmann (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Heidi Schecter (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kristen Farrell (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.projectlyme.org

Where can I find the form 990 for Project Lyme?

Project Lyme's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.projectlyme.org

Learn more at the official website: www.projectlyme.org

Mission Statement of Project Lyme

Project Lyme, a nonprofit organization established in 2016, is committed to eliminating the epidemic of Lyme disease and other tick-borne illnesses. They accomplish this mission by disseminating awareness about these diseases, offering educational resources, funding peer-reviewed research, and advocating for solutions to alleviate the suffering of individuals affected. Project Lyme has been instrumental in challenging misconceptions surrounding diagnosis and treatment, advocating for patients' rights, and fostering a supportive community for Lyme disease patients and their loved ones.

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Impact




July, 2024

Project Lyme's impact can be seen in its efforts to challenge misinformation about the diagnosis and treatment of Lyme disease, advocate for patients' rights, and build a supportive community for those affected by the illness. Additionally, the organization invests in research focused on improving diagnostics and therapeutics for Lyme disease, addressing the current shortcomings in testing and treatment effectiveness. These initiatives aim to contribute to the eradication of the Lyme disease epidemic and improve outcomes for patients suffering from tick-borne illnesses.




This information is meant to be a general summary of Project Lyme. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$790,982 (2022)
Expenses
$778,653 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $929,500

Assets and Liabilities:

  • Total Assets: $981,327
  • Total Liabilities: $0
  • Net Assets: $981,327

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Organization Details

Founding Year

2015

Principal Officer

Noah Johnston

Main Address

229 E 85TH STREET SUITE 38, NEW YORK, NY, 10028

NTEE Category

Code: G80 - Disease

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