Overview
What is Sickle Cell Transplant Advocacy And Research Alliance?
The Sickle Cell Transplant Advocacy and Research Alliance is a nonprofit organization committed to improving the bone marrow transplant process for individuals with Sickle Cell disease. They accomplish this by funding Project Sickle Cure's cognitive testing, specifically by providing I-Pads to STAR-member hospitals. Additionally, they have contributed to funding a clinical trial exploring the potential of early bone marrow transplant as a treatment for Sickle Cell Disease, conducted at Children's Hospital of Atlanta. The Alliance's mission is to advance research and advocacy in this field, ultimately aiming to improve the lives of those affected by Sickle Cell Disease.
Official website here: www.curesicklenow.org
Is Sickle Cell Transplant Advocacy And Research Alliance legitimate?
Sickle Cell Transplant Advocacy And Research Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Sickle Cell Transplant Advocacy And Research Alliance submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.curesicklenow.org
What is the mission statement of Sickle Cell Transplant Advocacy And Research Alliance?
The Sickle Cell Transplant Advocacy and Research Alliance works towards enhancing the bone marrow transplant procedure for individuals with Sickle Cell disease. To achieve this, the alliance supports Project Sickle Cure by funding the acquisition of I-Pads for participating hospitals. Additionally, it contributes to the financing of a clinical trial at Children's Hospital of Atlanta, which aims to explore early bone marrow transplant as a potential treatment for Sickle Cell Disease. In essence, the alliance's mission is to improve the transplant process and advance research in the quest for better treatments for Sickle Cell Disease.
Official website here: www.curesicklenow.org
Who is the CEO of Sickle Cell Transplant Advocacy And Research Alliance?
Shaun Byrnes is the Treasurer of Sickle Cell Transplant Advocacy And Research Alliance.
Official website here: www.curesicklenow.org
What is the revenue of Sickle Cell Transplant Advocacy And Research Alliance?
Sickle Cell Transplant Advocacy And Research Alliance's revenue in 2021 was $139,591.
Official website here: www.curesicklenow.org
Who are the executives of Sickle Cell Transplant Advocacy And Research Alliance and what are their salaries?
Here are 15 key members and their salaries:
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Official website here: www.curesicklenow.org
Where can I find the form 990EZ for Sickle Cell Transplant Advocacy And Research Alliance?
Sickle Cell Transplant Advocacy And Research Alliance's most recent form 990EZ was submitted in 2021 and can be accessed here.
Official website here: www.curesicklenow.org
Learn more at the official website: www.curesicklenow.org
Mission Statement of Sickle Cell Transplant Advocacy And Research Alliance
Sickle Cell Transplant Advocacy and Research Alliance, in its mission, aims to improve the bone marrow transplant process for individuals suffering from Sickle Cell disease. One of its key initiatives is supporting Project Sickle Cure by funding the acquisition of I-Pads for participating hospitals. Additionally, the alliance has contributed to the financing of a clinical trial that investigates the use of early bone marrow transplant as a potential treatment for Sickle Cell Disease at Children's Hospital of Atlanta. Through these efforts, Sickle Cell Transplant Advocacy and Research Alliance is dedicated to advancing the medical community's understanding and treatment of Sickle Cell Disease, ultimately improving the lives of those affected by this condition.
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Impact
October, 2024
The Sickle Cell Transplant Advocacy and Research Alliance significantly impacts the treatment and management of Sickle Cell Disease through its focused efforts to improve bone marrow transplant procedures. By funding essential resources such as I-Pads for cognitive testing in STAR-member hospitals, the alliance enhances the standard of care for patients undergoing treatment.
Additionally, its financial support for clinical trials, particularly the one examining early bone marrow transplants as a viable treatment option at Children's Hospital of Atlanta, contributes to critical advancements in medical research. This dual approach not only aids in current patient care but also fosters future breakthroughs in the management of Sickle Cell Disease, ultimately improving patient outcomes and quality of life.
This information is meant to be a general summary of Sickle Cell Transplant Advocacy And Research Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2021.
- Investment Income: $21
- Gross Receipts: $139,591
Assets and Liabilities:
- Total Assets: $156,182
- Total Liabilities: $27,683
- Net Assets: $128,499
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Organization Details
Phone
(617) 383-5956Principal Officer
Shaun Byrnes
Main Address
PO BOX 96, GT BARRINGTON, MA, 01230
Website
www.curesicklenow.orgNTEE Category
Code: G80 - Disease
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