Overview
What is Cdg Care?
Cdg Care is a nonprofit organization dedicated to advancing research and support for Congenital Disorders of Glycosylation (CDG), a group of medical conditions. Based in Colorado Springs, Colorado, Cdg Care offers resources, information, and education to families affected by these disorders. Their mission includes promoting awareness, providing support, and advocating for research to develop treatment options. In 2022, they funded five research projects and two grants, totalling $100,000, to investigate drug screening and validate growth chart data for CDG patients. Additionally, they launched a patient-driven research initiative and contracted with Washington University in St. Louis to advance treatment modalities for certain CDG types. Their work is driven by a commitment to improving the lives of individuals and families affected by CDG.
Official website here: www.cdgcare.org
Is Cdg Care legitimate?
Cdg Care is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cdg Care submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
What is the mission statement of Cdg Care?
Cdg Care, a nonprofit organization established by parents, is dedicated to promoting awareness and understanding of Congenital Disorders of Glycosylation (CDG). The primary goal of Cdg Care is to provide information and support to families affected by these medical conditions. Additionally, the organization advocates for and funds scientific research to advance treatments for all types of CDGs. Their mission is to work towards enhancing the lives of individuals and families affected by these disorders. By advocating for research and supporting affected families, Cdg Care aims to contribute to the advancement of treatments and ultimately, improve the overall health and well-being of those living with CDGs.
Official website here: www.cdgcare.org
Who is the CEO of Cdg Care?
What is the revenue of Cdg Care?
Who are the executives of Cdg Care and what are their salaries?
- Andrea Miller (President) [Trustee/Director]
- Christa Thoma (Treasurer) [Trustee/Director]
- Karen Morici (Board Member) [Trustee/Director]
- Meral Omurtag (Board Member) [Trustee/Director]
- Kara Berasi (Board Member) [Trustee/Director]
- Heather Conneran (Board Member) [Trustee/Director]
- Lewis Franklin (Board Member) [Trustee/Director]
- Karen Oosterhous (Board Member) [Trustee/Director]
- Ashleigh Linthicum (Board Member) [Trustee/Director]
- Amy Dann (Board Member) [Trustee/Director]
Official website here: www.cdgcare.org
Where can I find the form 990 for Cdg Care?
The Cdg Care’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.cdgcare.org
Learn more at the official website: www.cdgcare.org
Mission Statement of Cdg Care
CdG Care, a nonprofit organization established by parents in pursuit of information and support for Congenital Disorders of Glycosylation (CDG), has a mission to raise awareness and understanding of these medical conditions. The organization's primary goal is to provide families affected by CDG with vital information and emotional support. Moreover, CdG Care advocates for and funds scientific research to advance treatments for all CDGs, aiming to improve the lives of those impacted by these disorders. By promoting awareness, offering support, and advocating for research, CdG Care strives to make a significant impact in the CDG community.
Impact
This information is meant to be a general summary of Cdg Care. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
Cdg Care's impact is significant in promoting awareness of Congenital Disorders of Glycosylation (CDG) and providing valuable support to families affected by this group of medical disorders. Additionally, Cdg Care actively advocates for and funds scientific research to advance treatments for CDG. In 2022, Cdg Care funded 2 research grants and 5 research projects aimed at furthering the understanding and treatment of CDG. These initiatives included collaborations with esteemed institutions like the University of Georgia and the University of Minnesota, focusing on critical research areas such as drug screening and development of CDG-specific growth charts for infants and children diagnosed with CDG. Moreover, Cdg Care's patient-driven research initiative has led to contracts for direct research on drug repurposing for various CDG types, furthering the potential for innovative treatment modalities. Through these efforts, Cdg Care is actively contributing to the advancement of medical research in the field of CDG and working towards improving outcomes for individuals affected by these disorders.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2014
Phone
(314) 249-4060
Principal Officer
Andrea Miller
Main Address
PO BOX 38832, COLORADO SPRINGS, CO, 80937
Website
www.cdgcare.org
NTEE Category
Code: H80 - Medical research
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