Overview
What is Pediatric Research And Advocacy Initiative?
The Pediatric Research and Advocacy Initiative (PRAI) is a nonprofit organization, headquartered at 25658 East Main Street, Onley, Virginia 23418. The primary mission of PRAI is to raise awareness about neuroimmune disorders and advocate for improved patient care. They have established collaborations with renowned institutions such as the University of Arizona, Stanford, Mass General, and the University of Washington, fostering a network for research in this field. Their most significant achievement is the creation of the International PANS/PANDAS Patient Registry, which has enrolled over 2100 participants and 1,500 consenting families in the US and Canada. The infrastructure for this registry has been developed and is now based at the University of Washington. PRAI plans to expand this registry throughout Europe in the future. PRAI's efforts are focused on data-driven research, aiming to discover effective treatments and cures for these neuroimmune disorders. They are currently working on several scientific publications to better understand these disorders, with the ultimate goal of improving the lives of affected children.
Official website here: www.praikids.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 90% (Four-Star out of Four Star Rating)
The Pediatric Research And Advocacy Initiative has achieved a commendable score of 90% from Charity Navigator, reflecting strong performance in accountability and finance. This high rating is particularly significant as it indicates effective management of resources, which is crucial for nonprofit organizations focused on pediatric advocacy and research.
The organization showcases several strengths, including having an independent board comprised entirely of independent members, which enhances its governance and accountability. Additionally, the charity exhibits a robust program expense ratio of 91.39%, indicating that a significant portion of its funds is allocated directly to its mission-driven programs. The presence of essential policies such as conflict of interest and whistleblower protections further underscores its commitment to transparency and ethical operations.
However, no specific limitations or concerns were noted in the available data, which suggests that the Pediatric Research And Advocacy Initiative maintains a positive standing in terms of financial health and organizational integrity. This strong performance positions the charity favorably for potential donors and supporters looking for trustworthy nonprofit organizations to support.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Pediatric Research And Advocacy Initiative?
100% of 12 reviewers on Facebook recommend the Pediatric Research And Advocacy Initiative. Here is a summary of their reviews:
Supporters are highly appreciative of the organization’s commitment to sharing valuable information and research related to neuroinflammatory disorders. The dissemination of articles and updates helps keep the community informed and engaged, showcasing the organization's focus on education and advocacy.
Overall, the sentiment towards the initiative is overwhelmingly positive, with users expressing gratitude for the resources provided and the organization's efforts in raising awareness about these significant health issues.
This AI summary has been generated from reviews found on Facebook.
Is Pediatric Research And Advocacy Initiative legitimate?
Pediatric Research And Advocacy Initiative is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pediatric Research And Advocacy Initiative submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.praikids.org
What is the mission statement of Pediatric Research And Advocacy Initiative?
The Pediatric Research And Advocacy Initiative (PRAI) is dedicated to spreading awareness about neuroimmune disorders and advocating for improved patient care. They support data-driven research with the ultimate goal of discovering effective treatments and cures for these conditions. PRAI has established collaborations with renowned institutions such as the University of Arizona, Stanford, Mass General, and the University of Washington, fostering a network for research in this field. The organization has successfully built and managed the International PANS/PANDAS Patient Registry in the United States and Canada, enrolling over 2100 participants and 1500 consented families. Future plans involve expanding this registry in Europe and publishing epidemiological scientific studies to better comprehend these pediatric neuroimmune disorders.
Official website here: www.praikids.org
Who is the CEO of Pediatric Research And Advocacy Initiative?
Jessica Gavin is the Executive Director of Pediatric Research And Advocacy Initiative.
Official website here: www.praikids.org
What is the revenue of Pediatric Research And Advocacy Initiative?
Pediatric Research And Advocacy Initiative's revenue in 2022 was $2,725.
Official website here: www.praikids.org
Who are the executives of Pediatric Research And Advocacy Initiative and what are their salaries?
There 6 volunteers at Pediatric Research And Advocacy Initiative.
Here are 6 key members and their salaries:
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Official website here: www.praikids.org
Where can I find the form 990 for Pediatric Research And Advocacy Initiative?
Pediatric Research And Advocacy Initiative's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.praikids.org
Learn more at the official website: www.praikids.org
Mission Statement of Pediatric Research And Advocacy Initiative
The Pediatric Research and Advocacy Initiative (PRAI) is dedicated to raising awareness about neuroimmune disorders, advocating for improved patient care, and promoting data-driven research aimed at discovering effective treatments and cures for these conditions. By fostering collaborative relationships with clinical and scientific professionals from esteemed institutions such as the University of Arizona, Stanford, Mass General, and the University of Washington, PRAI has established a robust network for research in this field. One of their significant accomplishments is the development and operation of the International PANS/PANDAS Patient Registry in both the United States and Canada. This registry has enrolled over 2100 fully participating patients and garnered the consent of 1500 families, serving as a valuable resource for ongoing research. With future projects planned to expand the registry throughout Europe, PRAI continues to demonstrate its commitment to advancing understanding and treatment options for pediatric neuroimmune disorders.
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Impact
August, 2024
Pediatric Research And Advocacy Initiative's impact includes spreading awareness of neuroimmune disorders, advocating for patient care, and supporting data-driven research for effective treatments and cures. They have made significant strides in fostering relationships with clinicians and scientists at renowned institutions such as the University of Arizona, Stanford, Mass General, and the University of Washington. The International PANS/PANDAS Patient Registry in the US and Canada, which had 2100 fully enrolled participants and 1,500 consented families, has provided a strong foundation for further research. Their collaborative network has laid the groundwork for future projects, including expanding the registry throughout Europe. Additionally, PRAI is actively working on several epidemiological scientific publications to better characterize these pediatric neuroimmune disorders, paving the way for improved understanding and treatment options.
This information is meant to be a general summary of Pediatric Research And Advocacy Initiative. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $5
- Gross Receipts: $2,725
Assets and Liabilities:
- Total Assets: $44,499
- Total Liabilities: $22
- Net Assets: $44,477
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Organization Details
Founding Year
2016
Phone
(804) 615-5377Principal Officer
Jessica Gavin
Main Address
25658 East Main Street, Onley, VA, 23418
Website
www.praikids.orgNTEE Category
Code: H20 - Medical research
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