Overview
What is The Sickle Cell Association Of New Jersey?
The Sickle Cell Association of New Jersey is a nonprofit organization, located in Newark, New Jersey, with a focus on supporting individuals and families affected by sickle cell disease. Their mission involves providing education, advocacy, and various programs aimed at enhancing the quality of life for those affected. One of their significant initiatives is the Newborn Screening Grant, which aims to reduce the number of individuals with sickle cell disease who are "lost to follow-up" by bolstering sickle cell disease education and service coordination efforts. This program has served approximately 400 individuals to date. The organization, with a team of eight dedicated employees, is committed to its mission, offering vital assistance to the New Jersey community.
Is The Sickle Cell Association Of New Jersey legitimate?
The Sickle Cell Association Of New Jersey is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Sickle Cell Association Of New Jersey submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $96,233
Professional Fundraising Fees: $0
Other Salaries and Wages: $43,203
For more financial information, click here
What is the mission statement of The Sickle Cell Association Of New Jersey?
The Sickle Cell Association of New Jersey's mission is focused on aiding individuals and families affected by sickle cell disease. Through various initiatives, they strive to enhance their quality of life. This is accomplished by providing education, support, and advocacy, as well as implementing programs that aim to improve overall well-being. One of their initiatives is the Newborn Screening Grant, which aims to decrease the number of individuals with sickle cell disease who are "lost to follow-up" by supporting sickle cell disease education and service coordination, serving approximately 400 individuals.
Who is the CEO of The Sickle Cell Association Of New Jersey?
Mary Bentley Lamar is the Executive Director of The Sickle Cell Association Of New Jersey.
What is the revenue of The Sickle Cell Association Of New Jersey?
The Sickle Cell Association Of New Jersey's revenue in 2022 was $323,191.
Who are the executives of The Sickle Cell Association Of New Jersey and what are their salaries?
The average compensation at The Sickle Cell Association Of New Jersey during 2022 was $17,430. There are 8 employees and 100 volunteers at The Sickle Cell Association Of New Jersey.
Here are 7 key members and their salaries:
- Compensation: $50,000
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- Other: $0
- Compensation: $46,233
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- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Where can I find the form 990 for The Sickle Cell Association Of New Jersey?
The Sickle Cell Association Of New Jersey's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of The Sickle Cell Association Of New Jersey
The Sickle Cell Association of New Jersey is dedicated to aiding individuals and families who are grappling with sickle cell disease. Their mission is multifaceted, encompassing education, support, advocacy, and the implementation of various programs designed to enhance the quality of life for those affected. Through their efforts, they aim to support and assist these individuals and families in navigating the challenges associated with sickle cell disease. The association's mission is instrumental in providing a comprehensive approach to addressing the needs of those affected, with the ultimate goal of improving their overall well-being.
One of the ways the Sickle Cell Association of New Jersey fulfills its mission is through a program known as the Newborn Screening Grant. This initiative is designed to enhance the care of individuals with sickle cell disease, particularly those who may have fallen out of regular medical follow-up. By supporting sickle cell disease education and service coordination, the association aims to reduce the number of such individuals and improve their overall care. This program, which serves approximately 400 individuals, underscores the association's commitment to improving the lives of those affected by sickle cell disease.
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Impact
October, 2024
The Sickle Cell Association of New Jersey significantly enhances the lives of individuals and families impacted by sickle cell disease. Through comprehensive educational programs and advocacy, the organization empowers patients with knowledge about their condition, fostering a supportive community that promotes better health outcomes.
A vital initiative, the Newborn Screening Grant program, addresses the critical issue of individuals with sickle cell disease who become "lost to follow-up." By focusing on education and service coordination, this program improves care delivery and ensures that approximately 400 individuals benefit from necessary medical support.
Based in Newark, NJ, the agency is dedicated to improving the quality of life for those affected by sickle cell disease, providing invaluable resources and advocacy that resonate throughout the community.
This information is meant to be a general summary of The Sickle Cell Association Of New Jersey. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1
- Gross Receipts: $323,191
Assets and Liabilities:
- Total Assets: $116,219
- Total Liabilities: $1,528
- Net Assets: $114,691
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Organization Details
Founding Year
2009
Phone
(973) 482-9070Principal Officer
Mary Bentley Lamar
Main Address
PO Box 9501, Newark, NJ, 07104
NTEE Category
Code: G20 - Disease
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