Overview
What is Trisomy 18 Support Inc?
Trisomy 18 Support Inc is a dedicated nonprofit organization based in Michigan, offering comprehensive services and advocacy for families and medical providers impacted by Trisomy 18. Their programs include direct support calls, workshops, public presentations, educational materials, and technology-enabled peer support. Additionally, they engage constituents in research and health policy-making processes at federal and state levels, advocating for initiatives that affect families with Trisomy 18. The organization also supports national awareness campaigns, aiming to make Trisomy 18 a preventable and treatable condition. Volunteers are encouraged to organize special events and fundraisers, fostering philanthropic partnerships and progress towards treatments and improved health outcomes for children diagnosed with Trisomy 18. Overall, Trisomy 18 Support Inc is committed to accelerating research into the causes and treatments of Trisomy 18 while providing support to all families impacted by this diagnosis.
Official website here: www.trisomy18.org
Is Trisomy 18 Support Inc legitimate?
Trisomy 18 Support Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Trisomy 18 Support Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $94,080
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.trisomy18.org
What is the mission statement of Trisomy 18 Support Inc?
Trisomy 18 Support Inc is committed to advancing research into the causes and treatments of Trisomy 18 and providing support to families affected by this diagnosis. Their mission involves both accelerating scientific discoveries and offering assistance to those impacted. They achieve this through various programs, including direct service calls, workshops, public presentations, educational materials, and technology-enabled peer support. Moreover, they engage in research advocacy and public policy-making, influencing legislative and regulatory initiatives at federal and state levels that impact families with children diagnosed with Trisomy 18. Trisomy 18 Support Inc also supports volunteers in organizing special awareness and fundraising events across the United States, which help develop philanthropic partnerships and ultimately accelerate progress towards treatments and improved health outcomes for children with Trisomy 18.
Official website here: www.trisomy18.org
Who is the CEO of Trisomy 18 Support Inc?
Kristine A Shaughnessy is the Executive Director of Trisomy 18 Support Inc.
Official website here: www.trisomy18.org
What is the revenue of Trisomy 18 Support Inc?
Trisomy 18 Support Inc's revenue in 2023 was $133,234.
Official website here: www.trisomy18.org
Who are the executives of Trisomy 18 Support Inc and what are their salaries?
The average compensation at Trisomy 18 Support Inc during 2023 was $47,040. There are 2 employees and 60 volunteers at Trisomy 18 Support Inc.
Here are 2 key members and their salaries:
- Compensation: $82,080
- Related: $0
- Other: $0
- Compensation: $1,250
- Related: $0
- Other: $0
Official website here: www.trisomy18.org
Where can I find the form 990 for Trisomy 18 Support Inc?
Trisomy 18 Support Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.trisomy18.org
Learn more at the official website: www.trisomy18.org
Mission Statement of Trisomy 18 Support Inc
Trisomy 18 Support Inc is committed to advancing research into the causes and potential treatments of Trisomy 18, a genetic disorder. Their primary focus is on providing support to families affected by this diagnosis. This nonprofit organization takes a proactive approach, aiming to accelerate research in this field.
Beyond research, Trisomy 18 Support Inc offers educational and support programs for both families affected and medical professionals treating individuals with Trisomy 18. They utilize direct service calls, workshops, public presentations, educational materials, and technology-enabled peer support programs to educate and assist those in need.
In addition to their research and educational initiatives, Trisomy 18 Support Inc also engages in advocacy and public outreach. They involve their constituents in the research and health policy-making process at both federal and state levels, working on legislative and regulatory initiatives that impact the lives of families affected by Trisomy 18. This advocacy work extends to national awareness campaigns, aimed at making Trisomy 18 a preventable and treatable condition, ultimately reducing the number of families impacted by this condition. Volunteers are encouraged to host special awareness and fundraising events across the United States, which help develop and expand philanthropic partnerships to accelerate progress towards treatments and improved health outcomes for children diagnosed with Trisomy 18.
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Impact
October, 2024
Trisomy 18 Support Inc has a profound impact on families affected by Trisomy 18 by providing essential support and education. This organization embraces a dual approach focused on both immediate family needs and broader research initiatives.
Through nationally recognized education and support programs, Trisomy 18 Support Inc ensures that families receive direct assistance via calls to support staff, workshops, and access to educational materials. They empower medical providers with vital information to improve treatment and care for affected children, fostering a collaborative environment where families and healthcare professionals can work together effectively.
Their research advocacy and public engagement initiatives play a critical role in influencing health policy and legislative measures that affect families with Trisomy 18. By mobilizing public awareness campaigns, the organization strives to transform the perception of Trisomy 18, aiming for it to become a preventable and treatable condition. Volunteer-led events enhance community involvement, driving funds while creating partnerships to expand research and improve health outcomes for children diagnosed with this condition.
Overall, Trisomy 18 Support Inc serves as a beacon of hope, informing and supporting families while advocating for advancements in medical research and treatment strategies. Their actions not only provide immediate aid but also strive to change the landscape of care for future generations.
This information is meant to be a general summary of Trisomy 18 Support Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $8
- Gross Receipts: $133,234
Assets and Liabilities:
- Total Assets: $112,940
- Total Liabilities: $5,434
- Net Assets: $107,506
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Organization Details
Founding Year
2003
Phone
(703) 878-7013Principal Officer
Kristine A Shaughnessy
Main Address
PO BOX 320, FLUSHING, MI, 484330320
Website
www.trisomy18.orgNTEE Category
Code: G25 - Disease
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