Overview
What is American Fibromyalgia Syndrome Association Inc?
American Fibromyalgia Syndrome Association Inc, based in Tucson, Arizona, is a nonprofit organization dedicated to advancing our understanding of fibromyalgia. They achieve this by funding research projects, with a primary goal of uncovering the physiology of the condition to pave the way for improved treatments. The association is renowned as one of the few nonprofits funding biomedical studies on fibromyalgia. Despite delays caused by COVID-19, they have successfully completed one research project and anticipate completing another in early 2023. Their research awards program plays a crucial role in driving progress in the field.
Official website here: www.afsafund.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 56%, One-Star out of Four Stars
The American Fibromyalgia Syndrome Association Inc has received a One-Star rating from Charity Navigator, reflecting a score of 56%. This rating is primarily influenced by their Accountability & Finance Score, which stands at a low 36%. While the organization has a strong Leadership & Adaptability Score of 100, indicating effective governance with 100% independent board members, other areas such as missing conflict of interest and whistleblower policies have raised concerns.
Despite the financial accountability issues, the organization demonstrates significant strength in its Impact & Measurement Score of 91. This suggests that they have effective strategies for measuring their outcomes, particularly in program planning and development. Their strategic goals focus on accelerating medical discoveries related to fibromyalgia, attracting new researchers, and empowering patients with information to improve their care.
However, the organization has a low Program Expense Ratio of 18.61%, which implies that a relatively small portion of its expenses is directed toward programs versus administrative costs. This, combined with an absence of publicly available financial documents on their website, indicates that potential donors may need to exercise caution and seek additional information before contributing.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about American Fibromyalgia Syndrome Association Inc?
92% of 9 reviewers on Facebook recommend the American Fibromyalgia Syndrome Association Inc. Here is a summary of their reviews:
Many users appreciate the organization as a valuable resource for information related to fibromyalgia. One individual highlighted the Association's commitment to providing accurate answers and guidance, emphasizing their extensive knowledge on the subject. This indicates that the nonprofit effectively supports those seeking help and information regarding fibromyalgia.
Overall, it seems that the American Fibromyalgia Syndrome Association Inc. is recognized for its dedication to assisting individuals and helping them navigate the challenges of living with fibromyalgia. The organization appears to be a trusted source for both information and support within the fibromyalgia community.
This AI summary has been generated from reviews found on Facebook.
Is American Fibromyalgia Syndrome Association Inc legitimate?
American Fibromyalgia Syndrome Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. American Fibromyalgia Syndrome Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.afsafund.org
What is the mission statement of American Fibromyalgia Syndrome Association Inc?
The American Fibromyalgia Syndrome Association Inc's primary mission, as stated, is to fund high-quality, scientific research on fibromyalgia syndrome. This condition, known for its intense pain, fatigue, and debilitating effects, is the focus of their efforts. Through research grants, the association supports talented scientists, who in turn, contribute to a deeper understanding of fibromyalgia. The association's main research goal is to fund projects aimed at explaining the physiology of fibromyalgia, with the ultimate aim of developing better treatment options. As of now, AFSA is one of the few nonprofits consistently funding biomedical studies on this condition. Regrettably, due to COVID-related delays, the results from the last two funded projects have not been published yet. The first project is complete, and the second is expected to be finished in early 2023.
Official website here: www.afsafund.org
Who is the CEO of American Fibromyalgia Syndrome Association Inc?
Kristin Thorson is the President of American Fibromyalgia Syndrome Association Inc.
Official website here: www.afsafund.org
What is the revenue of American Fibromyalgia Syndrome Association Inc?
American Fibromyalgia Syndrome Association Inc's revenue in 2022 was $57,608.
Official website here: www.afsafund.org
Who are the executives of American Fibromyalgia Syndrome Association Inc and what are their salaries?
There 4 volunteers at American Fibromyalgia Syndrome Association Inc.
Here are 4 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
Official website here: www.afsafund.org
Where can I find the form 990 for American Fibromyalgia Syndrome Association Inc?
American Fibromyalgia Syndrome Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.afsafund.org
Learn more at the official website: www.afsafund.org
Mission Statement of American Fibromyalgia Syndrome Association Inc
The American Fibromyalgia Syndrome Association Inc is dedicated to advancing the understanding of fibromyalgia syndrome, a painful and debilitating condition, through funding superior quality scientific studies. Their primary mission is to support research projects designed to explain the physiology of fibromyalgia, with the ultimate goal of developing better treatments. The organization, which is one of the few nonprofits funding biomedical studies on this condition, has provided research grants to talented scientists, contributing significantly to the field. Despite two projects being delayed due to COVID-19, the association's commitment to funding fibromyalgia research remains unwavering. The completion of one study and the expected completion of another in early 2023 underscores the American Fibromyalgia Syndrome Association Inc's role as a crucial player in the quest for improved treatments and a deeper understanding of fibromyalgia syndrome.
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Impact
August, 2024
The American Fibromyalgia Syndrome Association Inc's impact lies in funding superior quality scientific studies on fibromyalgia syndrome. By providing research grants to talented scientists, AFSA is advancing the understanding of fibromyalgia, a condition that is extremely painful, fatiguing, and often debilitating. AFSA's primary research goal is to support projects that explain the physiology of fibromyalgia, with the aim of developing better treatments for the condition. As one of the few nonprofits funding biomedical studies on fibromyalgia, AFSA's awards program is crucial for progress in the field. Despite delays caused by COVID-19, recent projects are nearing completion, and once their results are published, AFSA will continue to support research proposals in this important area of medical research.
This information is meant to be a general summary of American Fibromyalgia Syndrome Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $32
- Gross Receipts: $57,608
Assets and Liabilities:
- Total Assets: $978,928
- Total Liabilities: $0
- Net Assets: $978,928
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Organization Details
Founding Year
1993
Phone
(520) 733-1570Principal Officer
Kristin Thorson
Main Address
PO Box 32698, Tucson, AZ, 857512698
Website
www.afsafund.orgNTEE Category
Code: H99Z - Medical research
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