Overview
What is The Scleroderma Foundation Of California?
The Scleroderma Foundation of California is a nonprofit organization dedicated to supporting individuals affected by Scleroderma, an autoimmune disease, in California. With a team of three employees, they offer patient support and education through over 23 community support groups. These groups provide a platform for patients, caregivers, family, and friends to share experiences, offer peer support, and gain information about the disease. In-person and online meetings are available, allowing the foundation to reach over 2000 individuals in 2022. Their mission is to empower the Scleroderma community to live better lives, achieving this through support services, education, and research. They also aim to help medical professionals diagnose the disease early and provide resources for patients to cope and thrive with Scleroderma.
Official website here: www.myscleroderma.org
Is The Scleroderma Foundation Of California legitimate?
The Scleroderma Foundation Of California is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Scleroderma Foundation Of California submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $121,491
Professional Fundraising Fees: $0
Other Salaries and Wages: $65,449
For more financial information, click here
Official website here: www.myscleroderma.org
What is the mission statement of The Scleroderma Foundation Of California?
The Scleroderma Foundation of California's mission is centered around empowering individuals affected by scleroderma to live better lives. This is achieved through a commitment to support, education, and research. In the realm of support, the foundation offers patient services and resources, including local community and peer-led support groups, as well as one-on-one professional guidance. The education aspect focuses on helping medical professionals diagnose scleroderma earlier and providing patients with tools to cope and thrive. Lastly, the foundation funds research projects to advance the search for a cure for scleroderma.
Official website here: www.myscleroderma.org
What is the revenue of The Scleroderma Foundation Of California?
The Scleroderma Foundation Of California's revenue in 2023 was $274,776.
Official website here: www.myscleroderma.org
Who are the executives of The Scleroderma Foundation Of California and what are their salaries?
The average compensation at The Scleroderma Foundation Of California during 2023 was $93,470. There are 2 employees and 68 volunteers at The Scleroderma Foundation Of California.
Here are 17 key members and their salaries:
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- Compensation: $114,019
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- Other: $7,472
Official website here: www.myscleroderma.org
Where can I find the form 990 for The Scleroderma Foundation Of California?
The Scleroderma Foundation Of California's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.myscleroderma.org
Learn more at the official website: www.myscleroderma.org
Mission Statement of The Scleroderma Foundation Of California
The Scleroderma Foundation of California is dedicated to improving the lives of individuals affected by scleroderma. Their mission, in essence, is to empower this community. They accomplish this through various programs that focus on support, education, and research.
In the realm of support, the foundation inspires its community by providing patient support services and resources. This encompasses 23 volunteer-driven local community and peer-led support groups, as well as staff-driven one-on-one professional guidance, enabling patients to thrive.
When it comes to education, the foundation aims to equip medical professionals with the knowledge to understand and diagnose scleroderma early. For patients, they offer tools to help them cope and live fulfilling lives with the condition.
In terms of research, the foundation funds projects that hold the potential to lead to a cure for scleroderma. By investing in these initiatives, they are contributing to the advancement of medical understanding and treatment options for those affected by this condition.
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Impact
October, 2024
The Scleroderma Foundation of California plays a vital role in empowering individuals affected by scleroderma, enhancing their quality of life through robust support, education, and research initiatives. This organization reaches over 2,000 patients, caregivers, and family members annually, fostering a sense of community and providing critical resources to those impacted by this challenging disease.
By facilitating 23 community support groups that meet bi-monthly, the foundation creates a vital space for sharing experiences, concerns, and peer encouragement. These meetings feature knowledgeable speakers on scleroderma-related topics, ensuring participants gain valuable insights while feeling supported and understood. All support group sessions are offered free of charge, making them accessible to anyone involved in the scleroderma journey.
In addition to providing peer support, the foundation prioritizes education for both patients and healthcare professionals. By enhancing medical professionals’ understanding of the disease, the foundation aims to promote early diagnosis and improve patient outcomes. Moreover, the commitment to funding research projects underscores their dedication to finding effective treatments and ultimately a cure for scleroderma.
The collective efforts of The Scleroderma Foundation of California significantly elevate awareness, support systems, and research in the fight against scleroderma, creating a more informed and connected community.
This information is meant to be a general summary of The Scleroderma Foundation Of California. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Gross Receipts: $352,650
Assets and Liabilities:
- Total Assets: $365,330
- Total Liabilities: $14,546
- Net Assets: $350,784
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Organization Details
Founding Year
1989
Principal Officer
Laura Fuhrman
Website
www.myscleroderma.orgNTEE Category
Code: G46Z - Disease
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