Overview
What is American Partnership For Eosinophilic Disorders?
The American Partnership for Eosinophilic Disorders (APFED) is a dedicated nonprofit organization situated in Atlanta, Georgia. Their primary mission is to enhance the lives of individuals and families impacted by eosinophil-associated diseases. Through a multifaceted approach, they focus on education, awareness, research, support, and advocacy. APFED's initiatives include hosting annual conferences, launching informative websites, celebrating awareness weeks, and initiating special lighting projects to promote understanding of these conditions. They also collaborate with patient advocacy groups, international experts, and medical professionals to develop resources and patient charters. APFED contributes to medical education programs and advocates for patient needs and access to therapies. They also award scholarships, publish educational materials, and communicate unmet therapeutic needs in eosinophilic diseases.
Official website here: www.apfed.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 98%, Four-Star out of Four Stars
The American Partnership for Eosinophilic Disorders (APFED) boasts an impressive rating of 98% from Charity Navigator, reflecting strong performance in accountability and finance, with a perfect score of 100 in that category. This indicates a high level of transparency and effective management of resources, which is crucial for donor trust. The charity's independent board is composed entirely of members who do not have financial interests in the organization, further enhancing its credibility.
User reviews consistently highlight the organization's invaluable support in the eosinophilic disorders community. Many families express gratitude for the education, advocacy, and emotional backing APFED provides, describing it as a lifeline during challenging times. Events like the annual patient education conferences not only offer critical information but also foster community connections among families facing similar struggles, significantly improving the quality of life for many participants.
Some limitations noted include the need for continued efforts in outreach and research funding, particularly as eosinophilic disorders remain relatively unknown in the broader medical community. However, APFED's dedication to educating both patients and healthcare professionals positions it as a pivotal player in advancing research and treatment options for these rare conditions. Overall, APFED is recognized as an essential resource for individuals and families dealing with eosinophilic disorders.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is American Partnership For Eosinophilic Disorders legitimate?
American Partnership For Eosinophilic Disorders is a legitimate nonprofit organization registered as a 501(c)(3) entity. American Partnership For Eosinophilic Disorders submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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Professional Fundraising Fees: $0
Other Salaries and Wages: $157,370
For more financial information, click here
Official website here: www.apfed.org
What is the mission statement of American Partnership For Eosinophilic Disorders?
The American Partnership For Eosinophilic Disorders (APFED) is dedicated to improving the lives of patients and families affected by eosinophil-associated diseases. They achieve this mission through various means, including education, awareness, research, support, and advocacy. APFED hosts annual patient conferences, creates awareness campaigns, and collaborates with other organizations. They also provide educational materials such as e-newsletters, webinars, and podcasts. APFED advocates for the needs of patients and the need for access to therapies, and they contribute to medical education programs. Additionally, they co-author reports and collaborate with international patient advocates to highlight unmet needs in eosinophilic diseases.
Official website here: www.apfed.org
Who is the CEO of American Partnership For Eosinophilic Disorders?
Wendy M Book is the President of American Partnership For Eosinophilic Disorders.
Official website here: www.apfed.org
What is the revenue of American Partnership For Eosinophilic Disorders?
American Partnership For Eosinophilic Disorders's revenue in 2022 was $729,476.
Official website here: www.apfed.org
Who are the executives of American Partnership For Eosinophilic Disorders and what are their salaries?
The average compensation at American Partnership For Eosinophilic Disorders during 2022 was $52,457. There are 3 employees at American Partnership For Eosinophilic Disorders.
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Official website here: www.apfed.org
Where can I find the form 990 for American Partnership For Eosinophilic Disorders?
American Partnership For Eosinophilic Disorders's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.apfed.org
Learn more at the official website: www.apfed.org
Mission Statement of American Partnership For Eosinophilic Disorders
The American Partnership For Eosinophilic Disorders (APFED) is dedicated to passionately embracing, supporting, and improving the lives of patients and families affected by eosinophil-associated diseases. It achieves this mission through various means, including education, awareness, research, support, and advocacy.
APFED takes an active role in educating patients and their caregivers by hosting annual conferences, launching informative websites, celebrating national awareness weeks, and organizing international events. The organization also provides educational resources through podcasts, webinars, and newsletters. In the realm of research, APFED collaborates with medical experts and patient advocacy groups, contributing to medical education programs and publishing reports to raise awareness about eosinophil-associated diseases.
Moreover, APFED supports its community by offering scholarships, contributing to medical education programs, and serving as an expert resource for managed care and payer professionals. Its advocacy efforts aim to address the needs of patients and ensure access to necessary therapies. By communicating unmet needs in therapeutics for eosinophilic disorders, APFED works to improve the overall healthcare landscape for affected individuals.
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Impact
July, 2024
American Partnership For Eosinophilic Disorders (APFED) has made a significant impact through its various activities focused on education, awareness, advocacy, and support for patients and families affected by eosinophil-associated diseases. Some of the key achievements include:
- Hosting an annual patient conference both online and in San Diego.
- Launching a new website in partnership with the Allergy & Asthma Network to educate patients and caregivers about biologic medicines.
- Leading a national awareness campaign and initiating special lighting of 30 landmarks across the U.S. during National Eosinophil Awareness Week.
- Celebrating the inaugural World Eosinophilic Diseases Day with patient advocacy groups worldwide.
- Speaking at the Italian Senate about the important work carried out by patient advocacy groups.
- Producing educational podcasts and webinars to inform patients and caregivers about eosinophil-associated diseases.
- Awarding college scholarships in partnership with other organizations.
- Contributing to medical education programs and co-authoring reports on asthma, including eosinophilic asthma.
- Collaborating with international patient advocates and medical experts to develop a Patient Charter for Eosinophil Diseases.
Overall, APFED's efforts have helped raise awareness, provide valuable information, advocate for patient needs, and contribute to the advancement of research in the field of eosinophil-associated diseases.
This information is meant to be a general summary of American Partnership For Eosinophilic Disorders. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $430
- Program Service Revenue: $224,900
- Gross Receipts: $729,476
Assets and Liabilities:
- Total Assets: $786,075
- Total Liabilities: $12,358
- Net Assets: $773,717
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PATIENT EDUCATION PARTN
Revenue
$224,900
Organization Details
Founding Year
2001
Principal Officer
Wendy M Book
Main Address
PO BOX 29545, ATLANTA, GA, 30359
Website
www.apfed.orgNTEE Category
Code: H80 - Medical research
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