American Syringomyelia Alliance Project Inc

American Syringomyelia & Chiari Alliance Project Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 752245195 ✦ Longview, TX ✦ Designated as a 501(c)(3)

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Overview

What is American Syringomyelia Alliance Project Inc?

American Syringomyelia Alliance Project Inc, abbreviated as ASAP, is a nonprofit organization based in Longview, Texas. Their primary mission is to offer support and education to individuals affected by Syringomyelia and Chiari Malformation, while simultaneously promoting research towards a potential cure. They achieve this goal through various means, such as publishing newsletters, maintaining an informative website, organizing an annual medical conference, hosting support group meetings, and conducting webinars. ASAP's dedicated team of three individuals is committed to increasing awareness, early identification of patients, and understanding the symptoms, causes, and management of these disorders.


Official website here: www.asap.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 96% (Four-Star out of Four Star rating)

The American Syringomyelia Alliance Project Inc (ASAP) has achieved a commendable Four-Star rating from Charity Navigator, reflecting an impressive score of 96% in Accountability & Finance. This high score indicates strong financial health and transparency. The organization has demonstrated excellent governance practices, with a fully independent board and robust financial oversight mechanisms in place.

User reviews highlight the organization's grassroots efforts and significant impact on the community affected by Chiari and Syringomyelia. One board member noted the value of annual conferences that facilitate connections among patients, caregivers, and researchers, emphasizing the organization's commitment to support and education. Furthermore, ASAP is actively involved in research funding, showcasing its dedication to advancing knowledge and treatment options for these conditions.

While the financial metrics and user feedback are overwhelmingly positive, specific details regarding the organization's program effectiveness and broader community impact could provide a more comprehensive view. Nonetheless, ASAP appears to be a responsible and impactful nonprofit dedicated to its mission and the communities it serves.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is American Syringomyelia Alliance Project Inc legitimate?

American Syringomyelia Alliance Project Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. American Syringomyelia Alliance Project Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $65,984
Professional Fundraising Fees: $0
Other Salaries and Wages: $104,025

For more financial information, click here


Official website here: www.asap.org

What is the mission statement of American Syringomyelia Alliance Project Inc?

The American Syringomyelia Alliance Project Inc's mission is centered around supporting individuals affected by Syringomyelia and Chiari Malformation, while simultaneously working towards finding a cure through research. They achieve this objective by offering support groups, disseminating information, organizing an annual medical conference, and distributing educational materials. Furthermore, the organization raises funds to provide grants for medical research. In pursuit of its mission, ASAP focuses on increasing awareness, early identification of patients, understanding symptoms, and managing the disorders, through various means such as newsletters, website updates, support group meetings, webinars, and annual conferences.


Official website here: www.asap.org

Who is the CEO of American Syringomyelia Alliance Project Inc?

Annie Chapman is the Executive Director of American Syringomyelia Alliance Project Inc.


Official website here: www.asap.org

What is the revenue of American Syringomyelia Alliance Project Inc?

American Syringomyelia Alliance Project Inc's revenue in 2022 was $1,211,738.


Official website here: www.asap.org

Who are the executives of American Syringomyelia Alliance Project Inc and what are their salaries?

The average compensation at American Syringomyelia Alliance Project Inc during 2022 was $56,670. There are 3 employees and 25 volunteers at American Syringomyelia Alliance Project Inc.


Here are 14 key members and their salaries:


Patrice Schaublin (Executive Director)
  • Compensation: $65,735
  • Related: $0
  • Other: $0
Eric Berning (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gerald Grant Md (Research Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Keating Md (Medical Advisory Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Annie Chapman (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard Simon (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Paolo Bolognese Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Caemmerer (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Molly Lichtenstein (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michele Raye (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brian Dlouhy Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeni Adair (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ilene Ruhoy Md Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Canna Vang Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.asap.org

Where can I find the form 990 for American Syringomyelia Alliance Project Inc?

American Syringomyelia Alliance Project Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.asap.org

Learn more at the official website: www.asap.org

Mission Statement of American Syringomyelia Alliance Project Inc

The American Syringomyelia Alliance Project Inc, abbreviated as ASAP, is committed to offering assistance and support to individuals affected by Syringomyelia and Chiari Malformation while simultaneously funding research to discover a cure. This nonprofit organization achieves its mission through various avenues, such as organizing support groups, disseminating informative materials, hosting an annual medical conference, and providing financial grants for medical research.

ASAP is dedicated to providing emotional and informational support to those afflicted by Syringomyelia and Chiari Malformation. They achieve this by means of newsletters, their website, support group meetings, webinars, and an annual medical conference. By offering these resources, ASAP aims to increase awareness of the disorders, facilitate early identification, and help patients understand their symptoms, causes, and management options.

In addition to supporting patients, ASAP is also instrumental in raising funds for medical research. They accomplish this through grants that enable researchers to explore potential treatments and cures for Syringomyelia and Chiari Malformation. By funding research, ASAP contributes to the advancement of medical knowledge and brings hope to those affected by these debilitating conditions.

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Impact




July, 2024

The American Syringomyelia Alliance Project Inc's impact is significant in providing support for individuals affected by Syringomyelia and Chiari Malformation. They offer valuable assistance through support groups, information dissemination, annual medical conferences, and educational materials. Additionally, they work to raise funds for medical research grants to advance the understanding and management of these disorders. Their efforts contribute to increasing awareness, providing early identification of patients, and enhancing the overall quality of life for those living with Syringomyelia and Chiari Malformation.




This information is meant to be a general summary of American Syringomyelia Alliance Project Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,211,738 (2022)
Expenses
$346,847 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: -$17,894
  • Gross Receipts: $1,223,348

Assets and Liabilities:

  • Total Assets: $3,398,622
  • Total Liabilities: $36,259
  • Net Assets: $3,362,363

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Organization Details

Founding Year

1988

Principal Officer

Annie Chapman

Main Address

PO BOX 1586, LONGVIEW, TX, 756061586

NTEE Category

Code: G90 - Disease

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