Overview
What is The Multiple System Atrophy Coalition Inc?
The Multiple System Atrophy Coalition Inc, located in McLean, Virginia, functions as a nonprofit organization dedicated to supporting individuals affected by Multiple System Atrophy (MSA). Their mission is multifaceted, incorporating emotional support, education, research funding, and fostering a sense of community. By doing so, they aim to enhance the quality of life for those living with MSA and collaboratively build hope. Their primary activity involves funding research to uncover the underlying cause of MSA and discover potential cures or therapies that could slow, halt, or reverse the progression of this debilitating condition.
Official website here: www.msacoalition.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%, Four-Star out of Four Star Rating
The Multiple System Atrophy Coalition Inc is recognized for its outstanding accountability and financial practices, as evidenced by its perfect score on the Charity Navigator rating system. This rating indicates a high level of transparency and responsible management, with the organization demonstrating an exemplary commitment to financial health and donor trust. The Coalition boasts an entirely independent board and strong oversight practices, ensuring that funds are directed effectively towards its mission.
User feedback highlights the Coalition's significant role in providing vital support, education, and resources to individuals and families affected by Multiple System Atrophy (MSA). Many users express deep gratitude for the organization’s compassionate staff, informative webinars, and annual conferences that facilitate connections among patients, caregivers, and researchers. Reviewers appreciate the comprehensive information on clinical trials and treatments, as well as the emotional support offered through various community initiatives.
While the Coalition has received overwhelmingly positive reviews for its contributions to the MSA community, user experiences also indicate a consistent need for resources, particularly for new patients navigating this complex disease. Some users noted that the organization could enhance outreach efforts to ensure even more individuals benefit from its services. Overall, the MSA Coalition is lauded as a critical resource in the fight against MSA, with a strong commitment to advocacy and research aimed at improving patient outcomes.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about The Multiple System Atrophy Coalition Inc?
96% of 61 reviewers on Facebook recommend The Multiple System Atrophy Coalition Inc. Here is a summary of their reviews:
Many individuals find this organization to be a supportive community, highlighting how it helps members feel understood and less isolated in their experiences with multiple system atrophy. The presence of others who share similar challenges is notably appreciated by those involved.
Overall, the organization is described as a valuable resource for individuals affected by this condition, providing a sense of belonging and comfort during difficult times. The positive sentiments suggest that the Coalition effectively meets the emotional and informational needs of its community.
This AI summary has been generated from reviews found on Facebook.
Is The Multiple System Atrophy Coalition Inc legitimate?
The Multiple System Atrophy Coalition Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Multiple System Atrophy Coalition Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.msacoalition.org
What is the mission statement of The Multiple System Atrophy Coalition Inc?
The Multiple System Atrophy Coalition Inc serves as a trusted source of emotional support and education for individuals living with Multiple System Atrophy. Their mission is to enhance the quality of life for these individuals and foster hope through collaborative efforts. The coalition also funds research aimed at uncovering the cause of Multiple System Atrophy and identifying potential cures or therapies that could slow, halt, or reverse its progression. By providing a sense of community, they strive to empower those affected by this condition, playing a crucial role in their journey.
Official website here: www.msacoalition.org
Who is the CEO of The Multiple System Atrophy Coalition Inc?
Dawn Rodgers-Dexter is the Treasurer of The Multiple System Atrophy Coalition Inc.
Official website here: www.msacoalition.org
What is the revenue of The Multiple System Atrophy Coalition Inc?
The Multiple System Atrophy Coalition Inc's revenue in 2022 was $1,466,979.
Official website here: www.msacoalition.org
Who are the executives of The Multiple System Atrophy Coalition Inc and what are their salaries?
There 668 volunteers at The Multiple System Atrophy Coalition Inc.
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Official website here: www.msacoalition.org
Where can I find the form 990 for The Multiple System Atrophy Coalition Inc?
The Multiple System Atrophy Coalition Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.msacoalition.org
Learn more at the official website: www.msacoalition.org
Mission Statement of The Multiple System Atrophy Coalition Inc
The Multiple System Atrophy Coalition, a reputable organization, is committed to offering emotional support, education, research funding, and a sense of community to individuals battling Multiple System Atrophy (MSA). Their mission is twofold: to enhance the quality of life for those living with MSA and collaboratively build hope for a future where the disease can be better understood and potentially cured.
The Coalition plays a crucial role in providing emotional support to MSA patients, helping them navigate the challenges associated with the condition. Additionally, they offer educational resources to those affected, ensuring they are well-informed about the disease and its management. Furthermore, the organization invests in research by funding grants, aiming to pinpoint a clear cause of MSA and identify effective therapies that can slow, halt, or even reverse its progression. This proactive approach to research is a testament to the Coalition's dedication to collaboratively building hope for a brighter future for MSA patients.
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Impact
July, 2024
The Multiple System Atrophy Coalition Inc's impact is focused on providing trusted emotional support, education, research funding, and a sense of community for people living with Multiple System Atrophy (MSA). Through their research grant program, the organization aims to pinpoint a clear cause of MSA and identify a cure or effective therapies that can slow, halt, or reverse the progression of this disease. By enhancing the quality of life for individuals with MSA and collaboratively building hope, the coalition is making a significant difference in the lives of those affected by this challenging condition.
This information is meant to be a general summary of The Multiple System Atrophy Coalition Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $72,218
- Gross Receipts: $2,578,176
Assets and Liabilities:
- Total Assets: $6,293,509
- Total Liabilities: $388,754
- Net Assets: $5,904,755
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Organization Details
Founding Year
1999
Phone
(866) 737-4999Principal Officer
Dawn Rodgers-Dexter
Main Address
1660 International Dr 600, MCLEAN, VA, 22102
Website
www.msacoalition.orgNTEE Category
Code: G80 - Disease
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