Overview
What is Hereditary Neurological Disease Centre?
Hereditary Neurological Disease Centre is a nonprofit organization dedicated to supporting patients and their families affected by Huntington disease. Through the selfless efforts of volunteer professionals, the center offers a range of services at no cost, including crisis intervention, educational programs, newsletters, support groups, and patient advocacy. Furthermore, genetic testing, DNA banking, and brain donation services are also available for those in need. The center's mission is to provide comprehensive diagnostic care and disease management for Huntington disease patients and their families, fostering a sense of community and assistance throughout their journey.
Official website here: www.huntingtonsdisease.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 29%
The Hereditary Neurological Disease Centre has received a score of 29% from Charity Navigator, resulting in a Zero-Star out of Four Star rating. This score indicates significant concerns regarding the organization's accountability and financial practices. While the charity has a fully independent board, which is a positive aspect, the absence of crucial financial documents and policies raises red flags about transparency and governance.
Strengths of the organization include a fully independent board, which provides oversight without conflicts of interest. Additionally, there are no reported material diversions of assets, suggesting responsible management of resources. However, the lack of financial statements and essential policies such as a conflict of interest and whistleblower policy highlighted in the ratings suggests a need for improvement in governance and financial transparency.
The financial health of the organization appears weak, with a program expense ratio of only 38.15%, which may indicate that a limited portion of its resources is directed toward its mission-related activities. Furthermore, the high liabilities to assets ratio points to potential financial instability. Overall, while the organization has a structure that could support effective governance, its current practices raise concerns about its operational efficiency and accountability.
This AI summary has been generated from information found on Charity Navigator.
Is Hereditary Neurological Disease Centre legitimate?
Hereditary Neurological Disease Centre is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hereditary Neurological Disease Centre submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $137,249
Professional Fundraising Fees: $0
Other Salaries and Wages: $120,512
For more financial information, click here
Official website here: www.huntingtonsdisease.com
What is the mission statement of Hereditary Neurological Disease Centre?
The Hereditary Neurological Disease Centre's mission is centered around providing diagnostic care and disease management for individuals and their families affected by Huntington's disease. This is carried out by volunteer professionals, ensuring that the service is offered at no cost to the patients or their families. The center offers a range of services, including crisis intervention, educational programs, support groups, patient advocacy, genetic testing, DNA banking, and brain donation services, all aimed at supporting those dealing with this neurological disease.
Official website here: www.huntingtonsdisease.com
Who is the CEO of Hereditary Neurological Disease Centre?
Gregory W Suter is the Chairman of Hereditary Neurological Disease Centre.
Official website here: www.huntingtonsdisease.com
What is the revenue of Hereditary Neurological Disease Centre?
Hereditary Neurological Disease Centre's revenue in 2020 was $942,281.
Official website here: www.huntingtonsdisease.com
Who are the executives of Hereditary Neurological Disease Centre and what are their salaries?
The average compensation at Hereditary Neurological Disease Centre during 2020 was $51,552. There are 5 employees and 12 volunteers at Hereditary Neurological Disease Centre.
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Official website here: www.huntingtonsdisease.com
Where can I find the form 990 for Hereditary Neurological Disease Centre?
Hereditary Neurological Disease Centre's most recent form 990 was submitted in 2020 and can be accessed here.
Official website here: www.huntingtonsdisease.com
Learn more at the official website: www.huntingtonsdisease.com
Mission Statement of Hereditary Neurological Disease Centre
The Hereditary Neurological Disease Centre, a noteworthy non-profit organization, is committed to providing diagnostic care and disease management for individuals and their families battling Huntington disease. This is accomplished through the dedicated efforts of volunteer professionals who offer their services at no cost to the patients or their families. The centre's mission is multifaceted, encompassing various services such as crisis intervention, educational programs, newsletters, support groups, and patient advocacy. These initiatives aim to provide comfort, information, and a sense of community to those affected by Huntington disease.
In addition to these crucial services, the Hereditary Neurological Disease Centre also offers genetic testing, DNA banking, and brain donation services. The genetic testing service helps in identifying the presence of the Huntington disease gene, providing families with valuable information and aiding in making informed decisions. DNA banking and brain donation services, on the other hand, contribute to medical research, fostering a deeper understanding of the disease and potential treatments in the future. This holistic approach to care and support is what makes the Hereditary Neurological Disease Centre an invaluable resource for those dealing with Huntington disease.
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Impact
July, 2024
The Hereditary Neurological Disease Centre has a direct and profound impact on individuals and families dealing with Huntington disease. By providing diagnostic care and disease management services at no cost through the dedication of volunteer professionals, the center offers critical support to those affected by this challenging condition. In addition to crisis intervention, educational programs, newsletters, support groups, and patient advocacy, the center also offers genetic testing, DNA banking, and brain donation services to those in need. Through these services, the Hereditary Neurological Disease Centre plays a vital role in improving the quality of life for patients and their families facing Huntington disease in Wichita, Kansas.
This information is meant to be a general summary of Hereditary Neurological Disease Centre. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2020.
- Investment Income: $4,280
- Gross Receipts: $942,281
Assets and Liabilities:
- Total Assets: $651,596
- Total Liabilities: $32,210
- Net Assets: $619,386
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Organization Details
Founding Year
1997
Phone
(316) 609-3020Principal Officer
Gregory W Suter
Main Address
9300 E 29TH STREET N, WICHITA, KS, 67226
Website
www.huntingtonsdisease.comNTEE Category
Code: E99Z - Health
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