Overview
What is The Chromosome 18 Registry & Research Society?
The Chromosome 18 Registry & Research Society is a nonprofit organization situated in San Antonio, Texas. Its primary mission is to disseminate information about chromosome abnormalities to medical professionals and affected families. The society actively funds research related to chromosome 18 abnormalities, aiming to empower individuals affected by these conditions to lead healthier and more productive lives. By providing education and conducting research, the Chromosome 18 Registry & Research Society works tirelessly to help individuals overcome the obstacles associated with these chromosome abnormalities. With a dedicated workforce of eight individuals, this organization plays a significant role in supporting and advocating for people with chromosome 18 abnormalities.
Official website here: www.chromosome18.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 92%, Four-Star out of Four Star rating
The Chromosome 18 Registry & Research Society has received a commendable Four-Star rating from Charity Navigator, reflecting its strong performance in accountability and finance. The organization boasts a robust financial health profile, with 82.08% of its expenses allocated to programs that directly benefit families affected by chromosome 18 conditions. Additionally, it has a 100% independent board, highlighting its commitment to transparency and governance.
User feedback reveals a significant impact on families navigating the challenges of chromosome 18 abnormalities. Many reviews express gratitude for the organization's resources, networking opportunities, and ongoing research, which provide invaluable support to both patients and healthcare providers. Families often describe the Registry as a lifeline, offering not only information but also a sense of community and belonging.
While the organization operates with a modest budget, its dedicated team and volunteers consistently deliver quality support and education. However, some users imply that increased funding could enhance their efforts even further, allowing them to expand their reach and research capabilities. Overall, the Chromosome 18 Registry & Research Society is highly regarded among its constituents for its unwavering commitment to improving the lives of those affected by chromosome 18 conditions.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is The Chromosome 18 Registry & Research Society legitimate?
The Chromosome 18 Registry & Research Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Chromosome 18 Registry & Research Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $219,041
For more financial information, click here
Official website here: www.chromosome18.org
What is the mission statement of The Chromosome 18 Registry & Research Society?
The Chromosome 18 Registry & Research Society is committed to a mission that aims to aid individuals with chromosome 18 abnormalities in overcoming the challenges they face. This is done through educational and research initiatives, enabling them to lead healthier and more productive lives. The organization disseminates information about chromosome abnormalities to medical professionals and families, and also funds research into chromosome 18 abnormalities. The ultimate goal is to provide these individuals with the necessary resources and support to lead fulfilling lives.
Official website here: www.chromosome18.org
Who is the CEO of The Chromosome 18 Registry & Research Society?
Jannine Demars Cody is the President of The Chromosome 18 Registry & Research Society.
Official website here: www.chromosome18.org
What is the revenue of The Chromosome 18 Registry & Research Society?
The Chromosome 18 Registry & Research Society's revenue in 2022 was $511,945.
Official website here: www.chromosome18.org
Who are the executives of The Chromosome 18 Registry & Research Society and what are their salaries?
The average compensation at The Chromosome 18 Registry & Research Society during 2022 was $27,380. There are 8 employees and 460 volunteers at The Chromosome 18 Registry & Research Society.
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Official website here: www.chromosome18.org
Where can I find the form 990 for The Chromosome 18 Registry & Research Society?
The Chromosome 18 Registry & Research Society's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.chromosome18.org
Learn more at the official website: www.chromosome18.org
Mission Statement of The Chromosome 18 Registry & Research Society
The Chromosome 18 Registry & Research Society is dedicated to a mission that aims to empower individuals with chromosome 18 abnormalities. This mission is twofold, focusing on both education and research. The primary objective is to help these individuals overcome the challenges they face, enabling them to live healthy and productive lives.
In pursuit of this mission, the society disseminates information about chromosome abnormalities to medical professionals and families. This knowledge sharing is crucial in fostering a better understanding of these conditions, leading to more informed and effective care. Additionally, the society invests in research related to chromosome 18 abnormalities. This research is essential in uncovering new insights and developing innovative strategies to address the unique challenges associated with these conditions.
By addressing education and research in this comprehensive manner, The Chromosome 18 Registry & Research Society seeks to pave the way for a brighter future for individuals with chromosome 18 abnormalities. Their mission is to equip them with the necessary tools and knowledge to overcome the obstacles they face, ultimately enabling them to lead fulfilling and productive lives.
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Impact
July, 2024
The Chromosome 18 Registry & Research Society has had a significant impact on individuals with chromosome 18 abnormalities by providing education and conducting research to help them overcome the obstacles they face in leading healthy and productive lives. Through the dissemination of information to physicians and families, as well as funding research in this area, the organization has contributed to advancing knowledge and support for those affected by chromosome 18 abnormalities. Their work in medical research specifically focuses on addressing the unique challenges associated with these abnormalities, ultimately making a positive difference in the lives of those impacted.
This information is meant to be a general summary of The Chromosome 18 Registry & Research Society. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$75
- Gross Receipts: $557,855
Assets and Liabilities:
- Total Assets: $165,156
- Total Liabilities: $26,101
- Net Assets: $139,055
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Organization Details
Founding Year
1990
Phone
(210) 657-4968Principal Officer
Jannine Demars Cody
Main Address
7155 OAKRIDGE DRIVE, SAN ANTONIO, TX, 78229
Website
www.chromosome18.orgNTEE Category
Code: H03 - Medical research
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