Overview
What is The Sturge-Weber Foundation?
The Sturge-Weber Foundation is a nonprofit organization, headquartered in Houston, Texas, with additional remote offices. Their primary mission is to aid families dealing with Sturge-Weber syndrome and port wine birthmark conditions. The foundation achieves this through various initiatives, including hosting international conferences every two years to offer equal opportunities for attendance, minimizing financial burdens. They also organize regional educational conferences in collaboration with Clinical Care Network (CCN) institutions to foster community building and clinical studies. The CCNs annually establish goals that drive patient care and treatment improvement. Additionally, The Sturge-Weber Foundation recently launched a task force to cultivate a volunteer network, providing knowledge and support in key areas impacting daily living and care. The organization's staff, both in Houston and remotely, work tirelessly to execute these programs and projects, ensuring strategic goals are met. The foundation's website serves as a valuable resource, offering learning opportunities and inspiring stories of hope for those diagnosed with these conditions.
Official website here: www.sturge-weber.org
What do the Facebook reviews say about The Sturge-Weber Foundation?
98% of 49 reviewers on Facebook recommend The Sturge-Weber Foundation. Here is a summary of their reviews:
Many individuals express gratitude for the support and resources provided by this nonprofit, especially during challenging times related to their children's health issues linked to Sturge-Weber syndrome. Personal stories highlight the emotional support and community connection facilitated by the foundation, which helps families navigate the difficulties of living with this condition.
Reviewers also convey appreciation for the information shared by the organization, which assists them in understanding their child's diagnosis and managing their care effectively. Overall, the foundation appears to make a significant impact on the lives of affected families, fostering hope and resilience amid adversity.
This AI summary has been generated from reviews found on Facebook.
Is The Sturge-Weber Foundation legitimate?
The Sturge-Weber Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Sturge-Weber Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $172,309
For more financial information, click here
Official website here: www.sturge-weber.org
What is the mission statement of The Sturge-Weber Foundation?
The Sturge-Weber Foundation's mission is centered around providing assistance to families affected by Sturge-Weber Syndrome and Port Wine Birthmark conditions. They achieve this mission through various initiatives, including engaging patients through diverse projects, conferences, and online support. The foundation's website serves as a valuable resource, offering inspiring stories to help cope with diagnoses. Every two years, they host an international conference to ensure fair access, minimizing financial impact. Regional educational conferences are also organized in partnership with Clinical Care Network institutions, building community and facilitating clinical studies and trials. The foundation recently initiated a task force to establish a volunteer network, providing knowledge and support in key areas impacting daily living and care. The foundation's Houston office and remote staff support these programs and projects, ensuring strategic goals are met.
Official website here: www.sturge-weber.org
Who is the CEO of The Sturge-Weber Foundation?
Karen L Ball is the President/Ce of The Sturge-Weber Foundation.
Official website here: www.sturge-weber.org
What is the revenue of The Sturge-Weber Foundation?
The Sturge-Weber Foundation's revenue in 2022 was $376,017.
Official website here: www.sturge-weber.org
Who are the executives of The Sturge-Weber Foundation and what are their salaries?
The average compensation at The Sturge-Weber Foundation during 2022 was $43,077. There are 4 employees and 26 volunteers at The Sturge-Weber Foundation.
Here are 11 key members and their salaries:
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Official website here: www.sturge-weber.org
Where can I find the form 990 for The Sturge-Weber Foundation?
The Sturge-Weber Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.sturge-weber.org
Learn more at the official website: www.sturge-weber.org
Mission Statement of The Sturge-Weber Foundation
The Sturge-Weber Foundation is committed to providing assistance to families affected by Sturge-Weber Syndrome and port wine birthmark conditions. This nonprofit organization aims to provide support to those impacted by these conditions, offering a variety of resources and projects to engage patients and their families. The foundation offers a wealth of information and inspiring stories on its website, which serves as a valuable resource for those seeking to cope with a diagnosis.
In addition to its digital offerings, The Sturge-Weber Foundation hosts an international conference every two years, rotating locations to ensure broad access and minimize financial impact for attendees. The organization also sponsors regional educational conferences, fostering community partnerships with various Clinical Care Network (CCN) institutions. These institutions facilitate clinical studies and trials, contributing to advancements in patient care and treatment. The foundation has recently launched a task force initiative to build a robust volunteer network, providing knowledge and support in key areas impacting daily living and care. Overall, The Sturge-Weber Foundation's mission is to support and empower families affected by Sturge-Weber Syndrome and port wine birthmark conditions through diverse projects, conferences, and online resources.
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Impact
October, 2024
The Sturge-Weber Foundation significantly impacts families affected by Sturge-Weber Syndrome and port wine birthmark conditions by providing comprehensive support and resources. Through a variety of initiatives, the Foundation enhances patient engagement, creating a strong community that allows individuals and families to connect and share their experiences.
The Foundation hosts an international conference biennially, strategically rotating locations to ensure accessibility and minimize the financial burden on attendees. These conferences foster collaboration and education, catering to the diverse needs of the community. Additionally, regional educational conferences are organized in partnership with clinical care network institutions, facilitating ongoing education and engagement.
Moreover, the Foundation's online platform serves as a rich repository of information and uplifting stories, offering inspirational hope to those coping with these diagnoses. The recent launch of a task force initiative aims to establish a robust volunteer network, concentrating on critical areas of daily living and care that impact families directly.
By supporting clinical studies and trials, the Foundation plays a crucial role in improving treatment and patient care, while the dedicated staff in Houston and remote locations work tirelessly to meet strategic goals and foster a supportive environment for those affected by these conditions.
This information is meant to be a general summary of The Sturge-Weber Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $12,510
- Program Service Revenue: $10,000
- Gross Receipts: $406,860
Assets and Liabilities:
- Total Assets: $522,921
- Total Liabilities: $160,457
- Net Assets: $362,464
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONSULTING
Revenue
$10,000
Organization Details
Founding Year
1987
Phone
(973) 895-4445Principal Officer
Karen L Ball
Main Address
11210 STEEPLECREST DRIVE SUITE 120, HOUSTON, TX, 77065
Website
www.sturge-weber.orgNTEE Category
Code: G80 - Disease
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