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Hemophilia Federation Of America Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 721282316 ✦ Washington, DC ✦ Designated as a 501(c)(3)

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Overview

What is Hemophilia Federation Of America Inc?

Hemophilia Federation of America Inc. is a prominent national nonprofit organization situated in Washington D.C., specifically at 999 North Capitol Street NE, 20002. This organization is committed to supporting, educating, and advocating for individuals affected by bleeding disorders. Their mission encompasses assisting the community by providing resources and fostering an environment that prioritizes the well-being of its members. Their primary focus, titled HFA Research, is a community-centric program aimed at enhancing the lives of people with bleeding disorders. Research topics are selected in collaboration with the community, with a focus on gathering data from both national and local sources, including their 50+ member organizations across the country. By collecting data online and locally, they aim to gather comprehensive insights into the needs and experiences of the bleeding disorders community. In essence, Hemophilia Federation of America Inc. serves as a beacon of support, education, and advocacy for individuals and families touched by bleeding disorders, working tirelessly to improve their quality of life. With a dedicated workforce of approximately 40 employees, they remain dedicated to their mission, offering a vital resource for the bleeding disorders community.


Official website here: www.hemophiliafed.org

What are the reviews and ratings of this charity?

87% rating from Charity Navigator indicates that the Hemophilia Federation Of America Inc has a strong performance in accountability and finance, earning a Three-Star out of Four Star rating. This score reflects the organization's commitment to transparency and effective financial management, showcasing its responsible use of resources.

The organization demonstrates significant strengths, including a fully independent board and a robust program expense ratio of 86.38%, indicating that most of its funds are directed towards its mission. Furthermore, with a fundraising efficiency of $0.12, the nonprofit effectively manages fundraising efforts, ensuring that a substantial portion of donations supports its programs.

While the overall rating is positive, it's important for potential donors to consider that a Three-Star rating, while commendable, suggests there may be further room for improvement in certain areas. However, the organization's strong scores in board governance and financial management highlight its commitment to operational integrity.


This AI summary has been generated from information found on Charity Navigator.

Is Hemophilia Federation Of America Inc legitimate?

Hemophilia Federation Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hemophilia Federation Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $333,093
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,018,268

For more financial information, click here


Official website here: www.hemophiliafed.org

What is the mission statement of Hemophilia Federation Of America Inc?

Hemophilia Federation of America Inc. serves as a national nonprofit organization, dedicated to assisting, educating, and advocating for individuals and families affected by bleeding disorders. Their mission is to improve the lives of this community through a program called HFA Research. This community-centered, community-focused, and community-driven initiative identifies research topics based on input from the community population. Data collection is conducted both nationally online and locally through their network of over 50 member organizations across the country. The goal is to utilize this collective data to advance understanding and treatments for bleeding disorders.


Official website here: www.hemophiliafed.org

Who is the CEO of Hemophilia Federation Of America Inc?

Daniel Kelsey is the Chair of Hemophilia Federation Of America Inc. The CEO's salary of Hemophilia Federation Of America Inc is $98,013 and their total compensation is $98,283.


Official website here: www.hemophiliafed.org

What is the revenue of Hemophilia Federation Of America Inc?

Hemophilia Federation Of America Inc's revenue in 2022 was $5,559,810.


Official website here: www.hemophiliafed.org

Who are the executives of Hemophilia Federation Of America Inc and what are their salaries?

The average compensation at Hemophilia Federation Of America Inc during 2022 was $58,784. There are 40 employees and 57 volunteers at Hemophilia Federation Of America Inc.


Here are 51 key members and their salaries (Hemophilia Federation Of America Inc's CEO's salary is $98,013 and their total compensation is $98,283):


Allie Ritcey (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Markowitz (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tracy Cleghorn (Past Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lucas Runion (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
George Stone (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephen Long (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Huskie (Member At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Victoria Hubbert (Member At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Mikkola (Member At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Maria Chavez (Member At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anne-Louise Wirthlin (Member At Large)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Palmatier (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Leigh Goldstein (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Monica Diaz Mattei (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephanie Krambrink (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Debra Schwartz (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carson Ouellette (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Patricia Tucker (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cheri Wakeham (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alane Foley (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jourdan Watkins (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bernadette Fox (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kim Madeiros (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nikole Schroeder (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Danielle Leitner Baxter (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Matthew Porges (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tyshawn Constantine (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Austin Holland (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Natasha Burroughs (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shari Luckey (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kristine Manns (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ronald Staake (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kasey Shade (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charlene Cowell (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jesus Escobedo-Soto (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Laura Portales (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ashley Castello (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Angela Brown (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Britnee Vieira (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jeremy Griffin (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tanya Ricchi (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carla Wells (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Katherine Mears (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Estefana Monge-Sotelo (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dena Shepard (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Taha Amir (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Carletha Gates (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Domowicz (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sharon Meyers (President & Ceo (Until 5/31))
  • Compensation: $222,810
  • Related: $0
  • Other: $12,000
Barbara Kavanaugh (Interim Ceo)
  • Compensation: $98,013
  • Related: $0
  • Other: $270
Michelle Burg (Vp Operations (Until 11/3))
  • Compensation: $110,097
  • Related: $0
  • Other: $8,808


Official website here: www.hemophiliafed.org

Where can I find the form 990 for Hemophilia Federation Of America Inc?

Hemophilia Federation Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hemophiliafed.org

Learn more at the official website: www.hemophiliafed.org

Mission Statement of Hemophilia Federation Of America Inc

Hemophilia Federation of America, a national nonprofit organization, is dedicated to assisting, educating, and advocating for individuals and families affected by bleeding disorders. Its mission is to improve the lives of this community by focusing on research. This community-centered, community-driven, and community-driven program, known as HFA Research, identifies research topics based on input from the community population. The program collects data nationally, both online and through Hemophilia Federation of America's network of over 50 member organizations across the country. This data-driven approach allows for targeted research efforts that can directly benefit the bleeding disorders community. Hemophilia Federation of America's mission is to support and empower this community, ensuring they have access to the latest research and resources to manage their conditions effectively.

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Impact




July, 2024

The Hemophilia Federation of America Inc's impact is significant in the bleeding disorders community. Through their research program, which is centered on community input and focused on improving the lives of those with bleeding disorders, they collect vital patient and community data both nationally and locally. By involving over 50 member organizations across the country, they are able to address important research topics identified by the community population. This approach ensures that their efforts are community-driven and impactful, ultimately working towards assisting, educating, and advocating for individuals with bleeding disorders on a national level.




This information is meant to be a general summary of Hemophilia Federation Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$5,559,810 (2022)
Expenses
$5,864,407 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Program Service Revenue: $1,947,269
  • Gross Receipts: $5,559,810

Assets and Liabilities:

  • Total Assets: $6,691,676
  • Total Liabilities: $383,996
  • Net Assets: $6,307,680

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

SYMPOSIUM

Revenue

$1,546,195

DATELINE ADVERTISING

Revenue

$329,000

FEE FOR SERVICE CONTRA

Revenue

$72,074

Organization Details

Founding Year

1994

Principal Officer

Daniel Kelsey

Main Address

999 NORTH CAPITOL STREET NE 301, WASHINGTON, DC, 20002

NTEE Category

Code: E70 - Health

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