Overview
What is Pachyonychia Congenita Fund?
The Pachyonychia Congenita Fund, operating under the name PC Project, is a dedicated nonprofit organization based in Holladay, Utah. Their primary mission is to combat Pachyonychia Congenita, a disease, by advocating for a cure, connecting affected individuals, and supporting research efforts. The organization maintains a website to disseminate information and updates on the disease, and they host support meetings for patients. Furthermore, they offer individualized assistance through emails, phone calls, or via PC Patient Advocates and members of their Scientific and Medical Advisory Board. The Pachyonychia Congenita Fund's activities are geared towards providing patient support, funding research, and empowering the scientific community to make strides in understanding and treating this condition.
Official website here: www.pachyonychia.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%, Four-Star out of Four Stars
The Pachyonychia Congenita Fund has achieved a perfect score of 100%, indicating exceptional accountability and financial management. This rating, based solely on their Accountability & Finance metrics, highlights the fund's commitment to transparency and effective governance, demonstrated by their fully independent board and comprehensive financial oversight.
User feedback underscores the organization's impactful work despite its small size. Donors have expressed admiration for the dedicated efforts of the organization, particularly in collaborating with leading experts to address the challenges faced by individuals with Pachyonychia Congenita. Reviewers appreciate the personal care and commitment the organization has toward its mission and the community it serves.
While the organization is recognized for its high program expense ratio of 83.01%, indicating that a significant portion of its funding goes directly to programs, there are no noted limitations in the available data. Overall, Pachyonychia Congenita Fund stands out as a highly effective nonprofit committed to making a meaningful difference in the lives of those affected by this rare skin condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Pachyonychia Congenita Fund?
94% of 22 reviewers on Facebook recommend the Pachyonychia Congenita Fund. Here is a summary of their reviews:
Many individuals express their appreciation for the nonprofit's commitment to providing gene testing for suspected cases of Pachyonychia Congenita at no cost. This service resonates positively with users, highlighting the organization's dedication to supporting those affected by this rare genetic disorder.
Overall, it appears that the Pachyonychia Congenita Fund effectively meets the needs of its community and delivers valuable resources that contribute to awareness and understanding of the condition.
This AI summary has been generated from reviews found on Facebook.
Is Pachyonychia Congenita Fund legitimate?
Pachyonychia Congenita Fund is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pachyonychia Congenita Fund submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $840
Other Salaries and Wages: $74,410
For more financial information, click here
Official website here: www.pachyonychia.org
What is the mission statement of Pachyonychia Congenita Fund?
The Pachyonychia Congenita Fund is committed to fighting against Pachyonychia Congenita, a disease, and striving for a cure. Their mission involves connecting and assisting affected patients and empowering research efforts in this field. They provide various forms of support to individuals with the disease, including funding for research, maintaining an informative website, organizing support meetings, and offering individual assistance through emails, telephone calls, or the help of patient advocates and medical advisory board members. Additional support is offered to members of the fund through the IPCRR's resources and benefits.
Official website here: www.pachyonychia.org
Who is the CEO of Pachyonychia Congenita Fund?
Janice N Schwartz is the Executive Di of Pachyonychia Congenita Fund.
Official website here: www.pachyonychia.org
What is the revenue of Pachyonychia Congenita Fund?
Pachyonychia Congenita Fund's revenue in 2022 was $654,819.
Official website here: www.pachyonychia.org
Who are the executives of Pachyonychia Congenita Fund and what are their salaries?
The average compensation at Pachyonychia Congenita Fund during 2022 was $74,410. There is 1 employee and 10 volunteers at Pachyonychia Congenita Fund.
Here are 8 key members and their salaries:
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Official website here: www.pachyonychia.org
Where can I find the form 990 for Pachyonychia Congenita Fund?
Pachyonychia Congenita Fund's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pachyonychia.org
Learn more at the official website: www.pachyonychia.org
Mission Statement of Pachyonychia Congenita Fund
The Pachyonychia Congenita Fund is committed to fighting relentlessly for a cure for Pachyonychia Congenita, a debilitating skin disease. Beyond this, the organization strives to connect and assist patients affected by this condition and empower research efforts in the quest for a solution. Through various initiatives, the Pachyonychia Congenita Fund aims to provide resources and support to patients, contribute to research, and ultimately, bring hope to those living with this disease.
In order to fulfill its mission, the Pachyonychia Congenita Fund offers several avenues of assistance. It provides funding for research projects aimed at finding a cure for the disease. Additionally, the organization maintains a comprehensive website that serves as a wealth of information and a platform for advancing research efforts. The Pachyonychia Congenita Fund also hosts support meetings for individuals dealing with the condition, offering an opportunity for patients to connect with one another and share experiences. Furthermore, the organization offers individual support to patients as needed, whether through emails, telephone calls, or via the help of PC Patient Advocates or members of the PC Scientific and Medical Advisory Board.
In essence, the Pachyonychia Congenita Fund is dedicated to supporting patients, fostering research, and advocating for a cure for this debilitating skin disease. Through its various initiatives, the organization aims to connect, empower, and ultimately, bring hope to those living with Pachyonychia Congenita.
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Impact
July, 2024
The Pachyonychia Congenita Fund has had a significant impact in the fight against Pachyonychia Congenita disease. By providing patient support, funding research efforts, and maintaining a website for information dissemination, the organization has played a crucial role in empowering both patients and researchers. Additionally, by organizing support meetings and offering individual support through various channels, the Pachyonychia Congenita Fund has made a tangible difference in the lives of individuals affected by this rare genetic disorder.
This information is meant to be a general summary of Pachyonychia Congenita Fund. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $87,130
- Gross Receipts: $1,448,737
Assets and Liabilities:
- Total Assets: $3,057,177
- Total Liabilities: $136,398
- Net Assets: $2,920,779
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Organization Details
Founding Year
2003
Phone
(801) 987-8758Principal Officer
Janice N Schwartz
Main Address
PO BOX 17850, HOLLADAY, UT, 84117
Website
www.pachyonychia.orgNTEE Category
Code: H20 - Medical research
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