Overview
What is The Als Association Oregon And Southwest Washington Chapter?
The Als Association Oregon and Southwest Washington Chapter serves as a local chapter of the national organization, dedicated to fighting against Lou Gehrig's disease (ALS). Located in Portland, Oregon, this nonprofit organization actively participates in global research efforts to find a cure for ALS. They provide substantial financial support to the national association for federal policy initiatives, aiming to improve the lives of families affected by ALS. The chapter also conducts outreach programs to raise public awareness about ALS and hosts events such as the Walk to Defeat ALS, Ski to Defeat ALS, and Ride to Defeat ALS. Additionally, they promote the National ALS Registry to gather data about the disease's prevalence in their region. The organization's mission is to empower ALS patients and their families, offering them compassionate care and support. With a team of 21 dedicated individuals, they strive to make a difference in the lives of those affected by ALS in Oregon and Southwest Washington.
Official website here: www.alsa-or.org
Is The Als Association Oregon And Southwest Washington Chapter legitimate?
The Als Association Oregon And Southwest Washington Chapter is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Als Association Oregon And Southwest Washington Chapter submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $186,936
Professional Fundraising Fees: $0
Other Salaries and Wages: $908,268
For more financial information, click here
Official website here: www.alsa-or.org
What is the mission statement of The Als Association Oregon And Southwest Washington Chapter?
The Als Association Oregon and Southwest Washington Chapter is dedicated to leading the fight against ALS (Lou Gehrig's disease) on a global scale through research and nationwide advocacy. Their mission is to empower individuals with ALS and their families, providing them with compassionate care and support to help them live fuller lives. The organization supports federal policy initiatives to improve the lives of families affected by ALS, raises public awareness about the disease, and funds significant research projects worldwide. They also contribute financially to national public policy and research efforts, and organize awareness events such as the Walk to Defeat ALS and Ski to Defeat ALS, among others, to engage the community and raise awareness about the services and resources available. Research is a critical part of their mission, with an emphasis on increasing knowledge about ALS and those affected by it.
Official website here: www.alsa-or.org
Who is the CEO of The Als Association Oregon And Southwest Washington Chapter?
Lance Christian is the Executive Dir. of The Als Association Oregon And Southwest Washington Chapter.
Official website here: www.alsa-or.org
What is the revenue of The Als Association Oregon And Southwest Washington Chapter?
The Als Association Oregon And Southwest Washington Chapter's revenue in 2023 was $3,729,208.
Official website here: www.alsa-or.org
Who are the executives of The Als Association Oregon And Southwest Washington Chapter and what are their salaries?
The average compensation at The Als Association Oregon And Southwest Washington Chapter during 2023 was $52,153. There are 21 employees and 450 volunteers at The Als Association Oregon And Southwest Washington Chapter.
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- Other: $19,940
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Official website here: www.alsa-or.org
Where can I find the form 990 for The Als Association Oregon And Southwest Washington Chapter?
The Als Association Oregon And Southwest Washington Chapter's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.alsa-or.org
Learn more at the official website: www.alsa-or.org
Mission Statement of The Als Association Oregon And Southwest Washington Chapter
The Als Association Oregon and Southwest Washington Chapter is committed to leading the fight against ALS, also known as Lou Gehrig's disease. Their mission is twofold: to advance global research aimed at treating and ultimately curing ALS, and to empower individuals with ALS and their families to live fuller lives. They achieve this by providing compassionate care and support, ensuring that those affected by the disease have the resources they need to navigate their journey.
As a chapter of the National Als Association, they contribute financially to federal public policy initiatives that aim to improve the lives of families living with ALS. They also engage in outreach efforts to raise public awareness about the disease. Their research support has funded significant projects globally, focusing on understanding the cause of ALS, its disease mechanism, genetics, biomarkers, environmental factors, and translational research. This work has resulted in over 150 research grants around the world.
In terms of advocacy, The Als Association Oregon and Southwest Washington Chapter has achieved notable accomplishments, such as online advocacy initiatives to connect people with ALS with legislators in Washington D.C. and the passage of the ACT for ALS Act. They have also provided significant financial support to national public policy and research efforts.
Awareness events, such as the Walk to Defeat ALS, Ski to Defeat ALS, Ride to Defeat ALS, and May ALS Awareness Month, are crucial to raising the profile of ALS and engaging community awareness of the services and resources available from the chapter. These events provide a platform for people with ALS and their families to find strength and support in each other's company, fostering a sense of community and hope.
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Impact
October, 2024
The ALS Association Oregon and Southwest Washington Chapter plays a vital role in addressing the challenges associated with Amyotrophic Lateral Sclerosis (ALS) in the region. By leading initiatives that promote global research and advocacy efforts, the Chapter significantly impacts the lives of individuals and families affected by this disease.
Through ongoing financial support for the National ALS Association, the chapter contributes to public policy initiatives aimed at improving the quality of life for ALS families. Their advocacy work focuses on connecting people with ALS to policymakers in Washington D.C., pushing for vital programs like the National ALS Registry and funding for ALS research.
The chapter has also funded significant research efforts, providing over $500,000 towards initiatives that support more than 150 global research grants. These investments are essential in understanding ALS's causes, mechanisms, and potential treatments, fostering critical advancements in the field.
Community awareness is a cornerstone of their outreach, exemplified by events such as the Walk to Defeat ALS, Ski to Defeat ALS, and Ride to Defeat ALS. These events not only raise vital funds but also build a supportive community where individuals affected by ALS can share experiences, find solace, and empower one another.
Additionally, activities during National Family Caregiver Month bring hope and connection, allowing caregivers and families to engage with one another and create a supportive network. By raising public awareness and engaging community participation, the chapter enhances understanding of ALS and the available resources for families living with this debilitating disease.
In summary, the ALS Association Oregon and Southwest Washington Chapter is committed to advancing research, advocating for ALS-related policies, and providing compassionate support, making a profound difference in the lives of those impacted by ALS in the region.
This information is meant to be a general summary of The Als Association Oregon And Southwest Washington Chapter. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $63,602
- Gross Receipts: $3,882,334
Assets and Liabilities:
- Total Assets: $4,982,342
- Total Liabilities: $930,566
- Net Assets: $4,051,776
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Organization Details
Founding Year
2002
Phone
(503) 238-5559Principal Officer
Lance Christian
Main Address
825 NE Multnomah St Suite 940, Portland, OR, 97232
Website
www.alsa-or.orgNTEE Category
Code: G50 - Disease
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