Lymediseaseorg

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 680214101 ✦ San roman, CA ✦ Designated as a 501(c)(3)

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Overview

What is Lymediseaseorg?

Lymediseaseorg, formerly known as CALDA, is a prominent and trusted communication network situated in San Román, California. With a dedicated team of just two individuals, this nonprofit organization raises public awareness about Lyme disease through various platforms such as blogs, digital publications, and social media. Their mission is multifaceted, encompassing efforts to amplify the patient voice, support patient-centered research, catalyze legislative change, and establish a future where Lyme patients have access to the necessary treatments for recovery. Lymediseaseorg operates with a nationwide scope, advocating for the well-being and needs of Lyme disease patients.


Official website here: www.lymedisease.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 79% (Three-Star out of Four Star rating)

Lymediseaseorg has received a commendable Three-Star rating from Charity Navigator, reflecting its strong performance in several key areas. The organization excels in leadership and adaptability, achieving a perfect score of 100 in this category, which speaks to its effective governance and strategic responsiveness. Additionally, it maintains a high program expense ratio of 85.70%, indicating that a significant portion of its resources are directed toward its mission-related programs.

The nonprofit demonstrates solid accountability and finance practices, earning a score of 77. Notably, it has a fully independent board, with all members being independent, showcasing its commitment to good governance. Other strengths include a low liabilities to assets ratio of 0.83%, highlighting financial stability, and robust policies in place regarding conflicts of interest and document retention.

While the organization showcases strong governance and financial practices, the three-star rating suggests that there may be areas for improvement in its overall accountability and finance performance. However, the high scores in leadership and adaptability indicate that the organization is well-positioned to address these challenges moving forward.


This AI summary has been generated from information found on Charity Navigator.

Is Lymediseaseorg legitimate?

Lymediseaseorg is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lymediseaseorg submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $205,265
Professional Fundraising Fees: $0
Other Salaries and Wages: $128,314

For more financial information, click here


Official website here: www.lymedisease.org

What is the mission statement of Lymediseaseorg?

Lymediseaseorg, formerly known as Calda, advocates nationwide to amplify the patient voice, support patient-centered research, promote legislative change, and work towards a future where Lyme disease patients can receive the necessary treatments to recover. Their mission is to strengthen the patient voice, support research that prioritizes patient needs, influence policy changes, and create an environment where Lyme patients have access to appropriate treatments. Additionally, Lymediseaseorg serves as a prominent communications network for Lyme disease, raising public awareness through published blogs, the Digital Lyme Times, and various digital platforms, including social media.


Official website here: www.lymedisease.org

Who is the CEO of Lymediseaseorg?

Mitchell Hoggard is the Ceo of Lymediseaseorg. The CEO's salary of Lymediseaseorg is $92,934 and their total compensation is $92,934.


Official website here: www.lymedisease.org

What is the revenue of Lymediseaseorg?

Lymediseaseorg's revenue in 2022 was $697,297.


Official website here: www.lymedisease.org

Who are the executives of Lymediseaseorg and what are their salaries?

The average compensation at Lymediseaseorg during 2022 was $166,790. There are 2 employees and 35 volunteers at Lymediseaseorg.


Here are 8 key members and their salaries (Lymediseaseorg's CEO's salary is $92,934 and their total compensation is $92,934):


Lorraine Johnson (Ceo)
  • Compensation: $92,934
  • Related: $0
  • Other: $0
Dorothy Kupcha Leland (President)
  • Compensation: $23,000
  • Related: $0
  • Other: $0
Christine Green (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mitchell Hoggard (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Erica Lehman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ron Lindorf (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Caleb Manscill (Cto)
  • Compensation: $0
  • Related: $0
  • Other: $0
Raphael Stricker Md (Medical Dire)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.lymedisease.org

Where can I find the form 990 for Lymediseaseorg?

Lymediseaseorg's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.lymedisease.org

Learn more at the official website: www.lymedisease.org

Mission Statement of Lymediseaseorg

Lymediseaseorg, formerly known as CALDA, is a national advocacy organization dedicated to amplifying the patient voice, supporting patient-centered research, advocating for legislative change, and working towards a future where Lyme disease patients can receive the necessary treatments to recover. Their mission is threefold: firstly, they strive to strengthen the patient voice, ensuring that the experiences and needs of those affected by Lyme disease are heard and considered in discussions and decisions concerning the disease. Secondly, Lymediseaseorg supports research that focuses on patients, aiming to advance understanding of Lyme disease and develop effective treatments. Lastly, they actively engage in creating legislative change, working towards a system where Lyme disease patients have access to the treatments they require to regain their health.

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Impact




July, 2024

Lymediseaseorg's impact lies in advocating nationwide to amplify the patient voice, support patient-centered research, drive legislative change, and work towards a future where Lyme disease patients can access the treatments they need to recover. Through education and communication efforts, Lymediseaseorg serves as the largest and most trusted network for Lyme disease information in the nation, raising public awareness through blogs, the digital Lyme Times, and various online platforms. By fostering a deeper understanding of Lyme disease, Lymediseaseorg is instrumental in empowering patients, influencing research, and driving policy changes that benefit those affected by this disease.




This information is meant to be a general summary of Lymediseaseorg. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$697,297 (2022)
Expenses
$619,251 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $111,182
  • Gross Receipts: $985,077

Assets and Liabilities:

  • Total Assets: $1,650,988
  • Total Liabilities: $13,790
  • Net Assets: $1,637,198

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Organization Details

Founding Year

1990

Principal Officer

Mitchell Hoggard

Main Address

PO BOX 716, SAN ROMAN, CA, 94583

NTEE Category

Code: G80 - Disease

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