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Scleroderma Research Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 680087234 ✦ San francisco, CA ✦ Designated as a 501(c)(3)

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Overview

What is Scleroderma Research Foundation?

The Scleroderma Research Foundation (SRF) is a dedicated nonprofit organization located in San Francisco, California. Their primary mission is to eradicate scleroderma, a rare disease, by funding and facilitating groundbreaking research. They achieve this by collaborating with renowned scientists and institutions worldwide, aiming to discover new treatments and ultimately, a cure. The SRF's research program is overseen by their Board of Directors and a Scientific Advisory Board, composed of leading experts in their fields. The foundation is committed to raising funds for these research investments and increasing public awareness about scleroderma. With a team of six dedicated individuals, the SRF remains steadfast in its pursuit of a cure, ensuring that patients can lead longer, better lives.


Official website here: www.sclerodermaresearch.org

What are the reviews and ratings of this charity?

Charity Navigator Rating 95% - Four-Star out of Four Stars .ating.

The Scleroderma Research Foundation (SRF) has earned a Four-Star rating from Charity Navigator, reflecting its strong performance in accountability and finance. With an impressive score of 97 in this category, the organization demonstrates effective financial oversight, independent governance, and transparency in its operations. The foundation excels in program expense ratio and fundraising efficiency, indicating that a significant portion of its funding is directed towards its mission of advancing research and finding therapies for scleroderma.

User feedback from Great Nonprofits further supports the positive assessment of the SRF. Reviewers highlight the organization's clear focus, efficiency, and effectiveness in driving research efforts. Personal testimonies from board members and donors underscore the impact the SRF has on the community, conveying a strong sense of hope for those affected by scleroderma. Many patrons feel confident that their contributions are making a difference in the fight against the disease.

While the SRF shows remarkable strengths, limitations were not highlighted in the available data. The organization appears to be well-regarded by its constituents, maintaining high scores in community engagement and feedback practices. Overall, the Scleroderma Research Foundation stands out as a dedicated and trustworthy nonprofit committed to improving the lives of those impacted by scleroderma.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Scleroderma Research Foundation legitimate?

Scleroderma Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Scleroderma Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $223,638
Professional Fundraising Fees: $0
Other Salaries and Wages: $374,035

For more financial information, click here


Official website here: www.sclerodermaresearch.org

What is the mission statement of Scleroderma Research Foundation?

The Scleroderma Research Foundation is committed to finding a cure for scleroderma by investing in promising research, fostering collaboration among leading scientists, and raising awareness about this rare disease. Their mission is to fund and facilitate the most promising, high-quality research aimed at new treatments and ultimately, a cure for scleroderma. The organization recruits top researchers to understand the causes, discover treatments, and ultimately eradicate the disease. The Scleroderma Research Foundation's mission is guided by a Board of Directors and a Scientific Advisory Board, comprised of renowned scientists, who annually meet with researchers and clinicians to select and fund the most promising scleroderma studies. The goal is to develop improved therapies to help patients live longer, fuller lives and eventually find a cure for the disease.


Official website here: www.sclerodermaresearch.org

Who is the CEO of Scleroderma Research Foundation?

Luke Evnin Phd is the Executive Dir. of Scleroderma Research Foundation.


Official website here: www.sclerodermaresearch.org

What is the revenue of Scleroderma Research Foundation?

Scleroderma Research Foundation's revenue in 2022 was $5,892,738.


Official website here: www.sclerodermaresearch.org

Who are the executives of Scleroderma Research Foundation and what are their salaries?

The average compensation at Scleroderma Research Foundation during 2022 was $99,612. There are 6 employees and 355 volunteers at Scleroderma Research Foundation.


Here are 13 key members and their salaries:


Joanne Gold (Executive Dir.)
  • Compensation: $193,724
  • Related: $0
  • Other: $12,308
Gloria Blecha (Development Mngr)
  • Compensation: $104,973
  • Related: $0
  • Other: $9,926
Luke Evnin Phd (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bob Smith (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Deann Wright (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bob Saget (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Susan Feniger (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sharon Dobie Md (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Eric Kau Md (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Knoller (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Violetta Merin (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Caryn Zucker (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Regina Hall (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.sclerodermaresearch.org

Where can I find the form 990 for Scleroderma Research Foundation?

Scleroderma Research Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.sclerodermaresearch.org

Learn more at the official website: www.sclerodermaresearch.org

Mission Statement of Scleroderma Research Foundation

The Scleroderma Research Foundation, in its mission, is dedicated to combating scleroderma by investing in crucial research funds, fostering collaboration among top-notch scientists and institutions worldwide, and increasing public awareness about this rare disease. The organization's primary goal is to fund and facilitate the most promising, superior-quality research aimed at discovering novel treatments and, ultimately, a cure for scleroderma.

The foundation's approach involves recruiting the finest researchers in the field, providing them with the necessary resources to understand the underlying causes of scleroderma, develop improved therapies, and ultimately eradicate the disease. The Scleroderma Research Foundation's Research Program is overseen by a board of directors and a volunteer Scientific Advisory Board, comprised of renowned scientists who are experts in their respective fields. This team convenes annually with researchers and clinicians from various laboratories across the nation to select and fund the most promising scleroderma studies, focused on developing improved treatments to enhance patients' quality of life and, ultimately, discover a cure for the disease.

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Impact




July, 2024

The Scleroderma Research Foundation is dedicated to finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the world's top scientists and institutions, and raising awareness about this rare disease. Through its focused efforts, the SRF aims to recruit the best and brightest researchers to understand the causes, discover treatments, and ultimately eradicate scleroderma. Research is at the core of the SRF's mission, with the organization funding and facilitating high-quality research to develop improved therapies and ultimately find a cure for this challenging disease. By supporting innovative research and bringing together key experts in the field, the Scleroderma Research Foundation is making a significant impact in the fight against scleroderma.




This information is meant to be a general summary of Scleroderma Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$5,892,738 (2022)
Expenses
$4,658,602 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $116,754
  • Program Service Revenue: $170,531
  • Gross Receipts: $6,134,816

Assets and Liabilities:

  • Total Assets: $11,143,637
  • Total Liabilities: $1,240,870
  • Net Assets: $9,902,767

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

Research collaboration

Revenue

$170,531

Organization Details

Founding Year

1987

Principal Officer

Luke Evnin Phd

Main Address

220 Montgomery St Ste 484, San Francisco, CA, 94104

NTEE Category

Code: H46Z - Medical research

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