Overview
What is Alpha-1 Foundation Alpha One Foundation?
The Alpha-1 Foundation, also known as Alpha One Foundation, is a Miami, Florida-based nonprofit organization with a mission to find a cure for Alpha1 Antitrypsin Deficiency and enhance the lives of individuals affected globally. Their primary focus is on research, with an extensive infrastructure that supports a global network of investigators. This includes a DNA & Tissue Bank, Therapeutic Development Network, and Clinical Resource Centers, which are crucial assets in their mission. The Alpha-1 Grants and Awards program is a significant part of their research activities, recognized as the leading global supporter of Alpha-1 research. Their efforts extend beyond research, with scientific meetings designed to foster collaboration, promote scientific discovery, and educate both physicians and patients on Alpha-1.
Official website here: www.alpha1.org
What are the reviews and ratings of this charity?
**Charity Navigator Rating: 98% (Four-Star out of Four Star Rating)**
The Alpha-1 Foundation is highly rated for its accountability and financial performance, achieving a 98% score with a Four-Star rating. The organization demonstrates a strong governance structure, with a fully independent board and robust financial oversight mechanisms in place. Its program expense ratio is commendably high, indicating effective allocation of resources towards its mission of curing Alpha-1 Antitrypsin Deficiency.
Its leadership and adaptability scores are also notable, reflecting a proactive approach in program development and response to challenges, such as those posed by the COVID-19 pandemic. The Foundation has made significant investments in research and community education, totaling over $81 million, which showcases its commitment to advancing understanding and treatment of Alpha-1 conditions.
While there are no user reviews available from GreatNonprofits, the organization’s high constituent feedback score indicates strong engagement and responsiveness to the community it serves. Its emphasis on collecting and utilizing feedback to improve services further demonstrates its commitment to meeting the needs of its constituents.
This AI summary has been generated from information found on Charity Navigator.
Is Alpha-1 Foundation Alpha One Foundation legitimate?
Alpha-1 Foundation Alpha One Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Alpha-1 Foundation Alpha One Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,369,894
For more financial information, click here
Official website here: www.alpha1.org
What is the mission statement of Alpha-1 Foundation Alpha One Foundation?
The Alpha-1 Foundation, dedicated to Alpha1 Antitrypsin Deficiency, is focused on finding a cure and enhancing the lives of individuals affected globally. An integral part of its mission involves supporting a global network of Alpha-1 researchers through its infrastructure, which includes the DNA & Tissue Bank, Therapeutic Development Network, and Clinical Resource Centers. The organization fosters collaboration through scientific meetings, promoting scientific discovery, and educating both physicians and patients. The Alpha-1 Grants and Awards program serves as the foundation's research backbone, leading the world in Alpha-1 research support.
Official website here: www.alpha1.org
Who is the CEO of Alpha-1 Foundation Alpha One Foundation?
Mark B Delvaux is the President And Ceo of Alpha-1 Foundation Alpha One Foundation. The CEO's salary of Alpha-1 Foundation Alpha One Foundation is $76,853 and their total compensation is $77,344.
Official website here: www.alpha1.org
What is the revenue of Alpha-1 Foundation Alpha One Foundation?
Alpha-1 Foundation Alpha One Foundation's revenue in 2022 was $10,890,084.
Official website here: www.alpha1.org
Who are the executives of Alpha-1 Foundation Alpha One Foundation and what are their salaries?
The average compensation at Alpha-1 Foundation Alpha One Foundation during 2022 was $68,495. There are 20 employees and 300 volunteers at Alpha-1 Foundation Alpha One Foundation.
Here are 17 key members and their salaries (Alpha-1 Foundation Alpha One Foundation's CEO's salary is $76,853 and their total compensation is $77,344):
- Compensation: $76,853
- Related: $0
- Other: $491
- Compensation: $129,239
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- Other: $11,915
- Compensation: $115,193
- Related: $0
- Other: $15,483
- Compensation: $187,865
- Related: $0
- Other: $3,695
- Compensation: $104,627
- Related: $0
- Other: $2,578
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Official website here: www.alpha1.org
Where can I find the form 990 for Alpha-1 Foundation Alpha One Foundation?
Alpha-1 Foundation Alpha One Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.alpha1.org
Learn more at the official website: www.alpha1.org
Mission Statement of Alpha-1 Foundation Alpha One Foundation
The Alpha-1 Foundation, dedicated to Alpha1 Antitrypsin Deficiency, is relentless in its pursuit of finding a cure and enhancing the lives of individuals affected globally. This nonprofit organization is committed to achieving these goals through various initiatives.
At the core of its mission, the Alpha-1 Foundation supports a global network of researchers through its Alpha-1 Research Infrastructure. This robust system encompasses the DNA & Tissue Bank, Therapeutic Development Network, and Clinical Resource Centers, all aimed at advancing scientific discovery and facilitating the detection of Alpha-1. The Foundation's influence extends beyond research, as it also organizes scientific meetings to engage stakeholders, promote knowledge sharing, and educate both physicians and patients about Alpha-1.
The Alpha-1 Grants and Awards program is an integral part of the Foundation's mission, serving as its research backbone. This program has solidified its position as the leading supporter of Alpha-1 research worldwide, providing essential funding and resources to drive groundbreaking discoveries in the field. In essence, the Alpha-1 Foundation is a beacon of hope for those living with Alpha1 Antitrypsin Deficiency, relentlessly working to transform their lives through innovative research and supportive initiatives.
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Impact
July, 2024
The Alpha-1 Foundation Alpha One Foundation is making a significant impact in the fight against Alpha-1 Antitrypsin Deficiency (Alpha-1). Through its dedicated efforts, the foundation is committed to finding a cure for Alpha-1 and enhancing the quality of life for individuals affected by this condition around the globe.
One of the key ways in which the Alpha-1 Foundation is driving change is through its Alpha-1 Research Network. This network facilitates collaboration among Alpha-1 investigators worldwide, supporting vital research initiatives aimed at advancing our understanding of the disease and developing effective treatments. The DNA & Tissue Bank, Therapeutic Development Network, and Clinical Resource Centers are crucial components of this infrastructure, enabling the Foundation to drive innovation and progress in the field of Alpha-1 research.
Moreover, the foundation plays a pivotal role in fostering scientific discovery and knowledge sharing through scientific meetings that bring together various stakeholders. By promoting collaboration and education, the Alpha-1 Foundation is paving the way for new approaches to detecting and managing Alpha-1, ultimately benefiting both patients and healthcare providers.
Central to its mission, the Alpha-1 Foundation's Grants and Awards program stands out as a global leader in providing support for Alpha-1 research. This program fuels groundbreaking research initiatives and empowers researchers to make meaningful advances in the understanding and treatment of Alpha-1.
Overall, the Alpha-1 Foundation Alpha One Foundation's unwavering dedication and comprehensive approach to research, education, and collaboration are driving positive change in the fight against Alpha-1 Antitrypsin Deficiency, offering hope and support to individuals impacted by this condition worldwide.
This information is meant to be a general summary of Alpha-1 Foundation Alpha One Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,460,203
- Program Service Revenue: $366,000
- Gross Receipts: $17,207,677
Assets and Liabilities:
- Total Assets: $35,496,616
- Total Liabilities: $2,623,720
- Net Assets: $32,872,896
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Publication income
Revenue
$366,000
Organization Details
Founding Year
1995
Phone
(305) 567-9888Principal Officer
Mark B Delvaux
Main Address
3300 Ponce de Leon Boulevard, Miami, FL, 331347211
Website
www.alpha1.orgNTEE Category
Code: E70 - Health
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