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Ataxia Telangiectasia Children's Project Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 650427215 ✦ Coconut creek, FL ✦ Designated as a 501(c)(3)

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Overview

What is Ataxia Telangiectasia Children's Project Inc?

Ataxia Telangiectasia Children's Project Inc, headquartered in Coconut Creek, Florida, is a dedicated nonprofit organization. Their primary focus is on conducting research and providing clinical grants to find effective therapies and potentially cure Ataxia-Telangiectasia, a genetic condition leading to muscle control issues, cancer, lung disease, and immune system problems. They prioritize innovative research strategies, aiming for definite answers rather than just explaining mechanisms. The organization supports and organizes various research initiatives, conferences, clinical teams, data platforms, and biomarkers to improve disease management, develop new treatments, and ultimately eradicate the disease. With a team of four dedicated individuals, Ataxia Telangiectasia Children's Project Inc is committed to advancing knowledge and finding solutions for this genetic disorder.


Official website here: www.atcp.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 81%, Three-Star out of Four Star rating.

Ataxia Telangiectasia Children's Project Inc has received an 81% rating from Charity Navigator, primarily reflecting its strong accountability and finance practices. The organization boasts a 90% independent board and achieves full marks in various governance areas, including financial oversight, conflict of interest policy, and document management. The program expense ratio is impressive at 85.47%, indicating that a significant portion of its funds is dedicated to its mission.

User feedback is overwhelmingly positive, with donors expressing deep appreciation for the nonprofit's impact on families affected by Ataxia Telangiectasia (A-T). One donor highlighted the organization's effectiveness in providing support and funding for A-T research and treatment facilities, underscoring the dedication of the staff and the valuable services offered to families in need. The commitment to finding a cure for A-T and maintaining specialized care facilities has resonated strongly with those who benefit from its programs.

However, while the organization is praised for its operational transparency and effective use of funds, the overall score is based solely on one beacon of accountability and finance, leaving room for inquiry into other aspects of program effectiveness and community engagement. Overall, Ataxia Telangiectasia Children's Project Inc demonstrates a strong commitment to its mission, with dedicated efforts to improve the lives of those affected by A-T.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Ataxia Telangiectasia Children's Project Inc legitimate?

Ataxia Telangiectasia Children's Project Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ataxia Telangiectasia Children's Project Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $194,300
Professional Fundraising Fees: $0
Other Salaries and Wages: $151,710

For more financial information, click here


Official website here: www.atcp.org

What is the mission statement of Ataxia Telangiectasia Children's Project Inc?

The Ataxia Telangiectasia Children's Project Inc is committed to combating Ataxia-telangiectasia (A-T), a genetic disorder that affects children and young adults, causing issues like muscle control loss, cancer, lung disease, and immune system problems. They partner with global researchers and institutions to organize innovative studies, conduct conferences, assemble clinical teams, establish data platforms, and identify biomarkers. The ultimate goal is to enhance disease management strategies, develop novel treatments, and ultimately discover a cure for A-T. By optimizing these efforts, the project aims to extend and improve the lives of those affected by this condition.


Official website here: www.atcp.org

Who is the CEO of Ataxia Telangiectasia Children's Project Inc?

Bradley A Margus is the President of Ataxia Telangiectasia Children's Project Inc.


Official website here: www.atcp.org

What is the revenue of Ataxia Telangiectasia Children's Project Inc?

Ataxia Telangiectasia Children's Project Inc's revenue in 2022 was $1,739,187.


Official website here: www.atcp.org

Who are the executives of Ataxia Telangiectasia Children's Project Inc and what are their salaries?

The average compensation at Ataxia Telangiectasia Children's Project Inc during 2022 was $86,502. There are 4 employees and 1000 volunteers at Ataxia Telangiectasia Children's Project Inc.


Here are 10 key members and their salaries:


Bradley A Margus (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amy Madison (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gregory Jehlik (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Timothy Rahall (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Feeley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elizabeth Hughes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Middlebrook (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Veldink (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Douglas Weckstein (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer Thornton (Executive Director/Director)
  • Compensation: $152,535
  • Related: $0
  • Other: $13,618


Official website here: www.atcp.org

Where can I find the form 990 for Ataxia Telangiectasia Children's Project Inc?

Ataxia Telangiectasia Children's Project Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.atcp.org

Learn more at the official website: www.atcp.org

Mission Statement of Ataxia Telangiectasia Children's Project Inc

The Ataxia Telangiectasia Children's Project Inc is committed to combating Ataxia-telangiectasia (A-T), a genetic disease that impacts children and young adults, leading to loss of muscle control, cancer, lung disease, and immune system problems. The nonprofit organization collaborates with researchers and industry investigators globally, leveraging its resources to organize and support innovative research, conferences, clinical teams, data platforms, and biomarkers. The goal is to enhance disease management strategies, develop novel treatments, and ultimately find a cure for this debilitating condition. By optimizing research efforts and partnerships, the Ataxia Telangiectasia Children's Project Inc aims to significantly improve the lives of those affected by A-T, extending their lifespans and alleviating the associated health challenges.

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Impact




July, 2024

Ataxia Telangiectasia Children's Project Inc's impact is significant in the field of scientific research and clinical care for children and young adults suffering from ataxia-telangiectasia (A-T). By organizing and supporting innovative research, conferences, clinical teams, data platforms, and biomarkers, the organization is actively working towards optimizing disease management strategies, developing new treatments, and ultimately finding a cure for A-T. Through their research and clinical grants, the A-T Children's Project funds projects that focus on finding life-improving therapies and a cure for the disease, with a particular emphasis on scientific excellence and relevance to A-T. The organization's mission is to provide hope and support to families impacted by A-T by prioritizing innovative research strategies that offer clear solutions to this complex genetic disease.




This information is meant to be a general summary of Ataxia Telangiectasia Children's Project Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,739,187 (2022)
Expenses
$1,713,346 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $2,462
  • Gross Receipts: $1,870,825

Assets and Liabilities:

  • Total Assets: $2,011,038
  • Total Liabilities: $1,504,462
  • Net Assets: $506,576

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Organization Details

Founding Year

1993

Principal Officer

Bradley A Margus

Main Address

6810 N State Road 7 125, Coconut Creek, FL, 33073

NTEE Category

Code: U50 - Science research

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