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Lymelight Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 611645660 ✦ Burlingame, CA ✦ Designated as a 501(c)(3)

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Overview

What is Lymelight Foundation?

The Lymelight Foundation is a nonprofit organization situated in Burlingame, California. Its primary mission is to offer financial aid in the form of medical grants to children and young adults diagnosed with Lyme disease. These grants, up to $10,000 cumulatively, assist eligible individuals in covering essential medical expenses such as doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to specialized healthcare providers. In 2022, the foundation awarded 226 grants, with 135 going to new recipients and 91 to existing ones. Given that many insurance companies do not cover treatment for chronic Lyme disease, families often face substantial medical debts. By providing critical treatment, Lymelight Foundation bridges a significant gap in unmet healthcare needs. Since its establishment in 2011, the organization has disbursed a total of $8,039,770 in grants to 1,148 individuals across 49 states.


Official website here: www.lymelightfoundation.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 93% (Four-Star out of Four Star rating).

The Lymelight Foundation has received an impressive Four-Star rating from Charity Navigator, indicating strong accountability and financial health. With a score of 93% in the Accountability & Finance category, the organization demonstrates a commitment to transparency and effective governance. Key strengths include a majority of independent board members and a robust audit and oversight committee, reflecting high standards in financial management.

Additionally, the foundation excels in program expenses, with 87.06% of its spending directed towards its mission-related activities. This focus on programs over administrative costs signifies a dedication to maximizing the impact of donations. The organization has also successfully implemented various policies, including conflict of interest and whistleblower protections, ensuring ethical operational practices.

In terms of culture and community, the Lymelight Foundation scores a perfect 100%, showcasing its strong engagement with stakeholders. Feedback collection and usage also receive top marks, indicating that the organization values input and continuously seeks to improve its services. Overall, the Lymelight Foundation appears to be a well-managed nonprofit focused on delivering significant benefits to its community.


This AI summary has been generated from information found on Charity Navigator.

Is Lymelight Foundation legitimate?

Lymelight Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lymelight Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $20,742
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.lymelightfoundation.org

What is the mission statement of Lymelight Foundation?

The Lymelight Foundation's mission is to assist eligible children and young adults struggling with Lyme disease by providing grants for necessary medical treatments and medications. This non-profit organization aims to bridge the gap in substantial unmet needs, as many insurance companies do not cover the treatment of chronic Lyme disease. Consequently, families often face substantial medical debts while battling the disease. Since its inception in 2011, the Lymelight Foundation has awarded grants totaling over $8 million to 1,148 individuals across 49 states, covering expenses such as doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to out-of-area physicians. The foundation's grants help these individuals receive the proper treatment, thereby raising awareness about Lyme disease.


Official website here: www.lymelightfoundation.org

Who is the CEO of Lymelight Foundation?

Scott Bedford is the Chairman of Lymelight Foundation.


Official website here: www.lymelightfoundation.org

What is the revenue of Lymelight Foundation?

Lymelight Foundation's revenue in 2022 was $931,726.


Official website here: www.lymelightfoundation.org

Who are the executives of Lymelight Foundation and what are their salaries?

The average compensation at Lymelight Foundation during 2022 was $20,742. There is 1 employee and 3 volunteers at Lymelight Foundation.


Here are 4 key members and their salaries:


Scott Bedford (Chairman)
  • Compensation: $0
  • Related: $0
  • Other: $0
Scott Forsgren (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nora Thomas (Board Member/Program Mgr.)
  • Compensation: $20,742
  • Related: $0
  • Other: $0
Phyllis Bedford (Executive Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.lymelightfoundation.org

Where can I find the form 990 for Lymelight Foundation?

Lymelight Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.lymelightfoundation.org

Learn more at the official website: www.lymelightfoundation.org

Mission Statement of Lymelight Foundation

The Lymelight Foundation, a nonprofit organization, is committed to fulfilling its mission of providing financial aid to children and young adults affected by Lyme disease who cannot afford necessary treatment and medication. This mission is driven by the belief that every eligible individual with Lyme disease deserves access to proper medical care. The foundation offers grants, ranging up to $10,000 in total, to cover expenses such as doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to out-of-area physicians. In 2022 alone, the Lymelight Foundation awarded a total of 226 grants, with 135 going to new recipients and 91 to existing ones.

The significance of the Lymelight Foundation's mission lies in the fact that many insurance companies do not cover the treatment of chronic Lyme disease, leaving families to bear the financial burden of battling the disease. This often results in enormous medical debt for affected families. By providing critical treatment, the Lymelight Foundation serves as a bridge, addressing the enormous unmet need in this area. Since its establishment in 2011, the foundation has awarded grants totaling $8,039,770 to 1,148 individuals in 49 states, thereby making a significant impact in the lives of those affected by Lyme disease.

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Impact




July, 2024

Lymelight Foundation's impact lies in providing critical medical grants to children and young adults with Lyme disease who are unable to afford necessary treatment. By offering grants of up to $10,000 to cover doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to out-of-area physicians, Lymelight Foundation fills a crucial gap in care for those battling this debilitating illness. In 2022 alone, the foundation awarded a total of 226 grants, continuing its mission to support those in need. Since its establishment in 2011, Lymelight has disbursed over $8 million in grants to 1,148 individuals across 49 states, alleviating the financial burden and ensuring access to vital medical care for those affected by Lyme disease.




This information is meant to be a general summary of Lymelight Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$931,726 (2022)
Expenses
$1,372,276 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $1,897
  • Gross Receipts: $1,037,883

Assets and Liabilities:

  • Total Assets: $2,497,590
  • Total Liabilities: $22,333
  • Net Assets: $2,475,257

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Organization Details

Founding Year

2011

Principal Officer

Scott Bedford

Main Address

1229 BURLINGAME AVENUE 205, BURLINGAME, CA, 94010

NTEE Category

Code: P20 - Human services

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