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The Desmoid Tumor Research Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 611493017 ✦ Salt lake city, UT ✦ Designated as a 501(c)(3)

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Overview

What is The Desmoid Tumor Research Foundation?

The Desmoid Tumor Research Foundation is a nonprofit organization situated in Salt Lake City, Utah. Their primary mission lies in raising funds to support medical research focused on desmoid tumors. During the recent calendar year, they distributed five research grants to distinguished cancer research facilities to further advance this specific area of study. The foundation's activities are centered around funding research, aiming to make a significant impact on understanding and addressing desmoid tumors.


Official website here: www.dtrf.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 96%, Four-Star out of Four Star rating

The Desmoid Tumor Research Foundation has achieved an impressive 96% rating from Charity Navigator, which reflects its strong performance in accountability and finance. With a notable 90% score in this category, the foundation demonstrates effective management of its resources, ensuring funds are directed towards its mission. The organization boasts a fully independent board and has scored perfectly in all aspects related to financial oversight and governance policies.

In terms of program efficiency, the foundation allocates approximately 70.89% of its expenses directly to its programs. This high program expense ratio indicates that the majority of contributions are utilized to further the foundation's goals rather than administrative costs. The organization maintains a low liabilities to assets ratio of 2.57%, showcasing its financial stability.

Additionally, the Desmoid Tumor Research Foundation excels in leadership and adaptability, scoring a perfect 100% in this aspect. This indicates strong strategic planning and effective leadership practices, which are crucial for navigating challenges and ensuring long-term sustainability. Overall, the foundation is well-regarded for its commitment to transparency and responsible financial management.


This AI summary has been generated from information found on Charity Navigator.

Is The Desmoid Tumor Research Foundation legitimate?

The Desmoid Tumor Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Desmoid Tumor Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $78,333
Professional Fundraising Fees: $0
Other Salaries and Wages: $180,754

For more financial information, click here


Official website here: www.dtrf.org

What is the mission statement of The Desmoid Tumor Research Foundation?

The Desmoid Tumor Research Foundation's primary goal is to support medical research focused on Desmoid tumors. By raising funds, the organization contributes to ongoing research efforts at renowned cancer research facilities. As of the provided information, five research grants were distributed during the year to advance Desmoid tumor research. The organization's mission is centered around providing financial backing for scientific investigations aimed at understanding and finding potential treatments for Desmoid tumors.


Official website here: www.dtrf.org

Who is the CEO of The Desmoid Tumor Research Foundation?

Jeanne Whiting is the President/Executive Direct of The Desmoid Tumor Research Foundation.


Official website here: www.dtrf.org

What is the revenue of The Desmoid Tumor Research Foundation?

The Desmoid Tumor Research Foundation's revenue in 2022 was $993,749.


Official website here: www.dtrf.org

Who are the executives of The Desmoid Tumor Research Foundation and what are their salaries?

The average compensation at The Desmoid Tumor Research Foundation during 2022 was $51,817. There are 5 employees at The Desmoid Tumor Research Foundation.


Here are 8 key members and their salaries:


Jeanne Whiting (President/Executive Direct)
  • Compensation: $78,333
  • Related: $0
  • Other: $0
Marlene Portnoy (Co-Founder And Major Gifts Officer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rachel Sitta (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jerry March (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Maria Crocitto (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nicole Zechmann Deichert (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steve Whiting (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Barara Ann Sellinger (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.dtrf.org

Where can I find the form 990 for The Desmoid Tumor Research Foundation?

The Desmoid Tumor Research Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.dtrf.org

Learn more at the official website: www.dtrf.org

Mission Statement of The Desmoid Tumor Research Foundation

The Desmoid Tumor Research Foundation is dedicated to advancing medical research in the field of desmoid tumors. Their mission is to raise funds to support this critical research, aiming to make significant strides in understanding and treating this rare condition. Throughout the year, the organization has distributed research grants to esteemed cancer research facilities to continue their work on desmoid tumor research. By providing financial support, The Desmoid Tumor Research Foundation plays a crucial role in driving progress in the understanding and treatment of desmoid tumors, ultimately benefiting those affected by this condition.

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Impact




July, 2024

The Desmoid Tumor Research Foundation's impact includes funding medical research for Desmoid tumors. This support has led to the distribution of five research grants to prestigious cancer research facilities during the calendar year, furthering the understanding and treatment of this rare condition.




This information is meant to be a general summary of The Desmoid Tumor Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$993,749 (2022)
Expenses
$712,927 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $4,908
  • Gross Receipts: $1,027,223

Assets and Liabilities:

  • Total Assets: $1,439,427
  • Total Liabilities: $37,123
  • Net Assets: $1,402,304

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Organization Details

Founding Year

2005

Principal Officer

Jeanne Whiting

Main Address

99 WEST SOUTH TEMPLE UNIT 1707, SALT LAKE CITY, UT, 84101

NTEE Category

Code: H30 - Medical research

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