Overview
What is The Joshua Frase Foundation For Congenital Myopathy Research Inc?
The Joshua Frase Foundation for Congenital Myopathy Research Inc is a nonprofit organization dedicated to advancing knowledge and support for Myotubular Myopathy and other Congenital Myopathies. Their primary mission involves conducting research, providing educational resources, and offering support to further this cause. This foundation's efforts aim to enhance our understanding of these diseases and contribute to developing improved treatment options. They also distribute informative materials to help the public and medical professionals better comprehend these conditions.
Official website here: www.joshuafrase.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement (63%, Two-Star out of Four Star rating)
The Joshua Frase Foundation for Congenital Myopathy Research Inc has received a two-star rating from Charity Navigator, indicating areas where the organization needs to improve. While it boasts a perfect score in Accountability & Finance with no material diversion of assets and a high percentage of independent board members, the foundation faces challenges in governance and transparency. Notably, the absence of a whistleblower policy and document retention procedures raises concerns about its operational practices.
The foundation allocates approximately 56.66% of its expenses directly to its programs, which suggests a commitment to its mission. However, this percentage is relatively low compared to industry standards, indicating there may be room for improvement in maximizing the impact of its financial resources. The liabilities to assets ratio is favorable at 11.93%, suggesting a stable financial position.
In summary, while The Joshua Frase Foundation demonstrates strong accountability in certain areas, significant gaps in governance policies and program expense efficiency highlight the need for improvements to enhance trust and effectiveness in fulfilling its mission.
This AI summary has been generated from information found on Charity Navigator.
Is The Joshua Frase Foundation For Congenital Myopathy Research Inc legitimate?
The Joshua Frase Foundation For Congenital Myopathy Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Joshua Frase Foundation For Congenital Myopathy Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $55,295
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.joshuafrase.org
What is the mission statement of The Joshua Frase Foundation For Congenital Myopathy Research Inc?
The Joshua Frase Foundation for Congenital Myopathy Research Inc. is committed to conducting research on Myotubular Myopathy and other Congenital Myopathies. Their mission extends beyond scientific studies, also involving the dissemination of educational information related to these conditions. Furthermore, the foundation offers support for ongoing research in this field. In essence, their objective is to advance understanding and potential treatments for these muscle disorders, while keeping the public informed.
Official website here: www.joshuafrase.org
Who is the CEO of The Joshua Frase Foundation For Congenital Myopathy Research Inc?
Alison Rocket-Frase is the Principal Officer of The Joshua Frase Foundation For Congenital Myopathy Research Inc.
Official website here: www.joshuafrase.org
What is the revenue of The Joshua Frase Foundation For Congenital Myopathy Research Inc?
The Joshua Frase Foundation For Congenital Myopathy Research Inc's revenue in 2022 was $67,138.
Official website here: www.joshuafrase.org
Who are the executives of The Joshua Frase Foundation For Congenital Myopathy Research Inc and what are their salaries?
The average compensation at The Joshua Frase Foundation For Congenital Myopathy Research Inc during 2022 was $55,295. There is 1 employee and 2 volunteers at The Joshua Frase Foundation For Congenital Myopathy Research Inc.
Here are 8 key members and their salaries:
- Compensation: $55,295
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Official website here: www.joshuafrase.org
Where can I find the form 990 for The Joshua Frase Foundation For Congenital Myopathy Research Inc?
The Joshua Frase Foundation For Congenital Myopathy Research Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.joshuafrase.org
Learn more at the official website: www.joshuafrase.org
Mission Statement of The Joshua Frase Foundation For Congenital Myopathy Research Inc
The Joshua Frase Foundation For Congenital Myopathy Research Inc is committed to advancing research in the field of Myotubular Myopathy and other Congenital Myopathies. This nonprofit organization's mission extends beyond scientific exploration, also encompassing the dissemination of educational information and providing support for ongoing research in these areas. By focusing on these aspects, The Joshua Frase Foundation aims to contribute significantly to the understanding and treatment of these genetic muscle disorders.
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Impact
August, 2024
The Joshua Frase Foundation For Congenital Myopathy Research Inc has made a significant impact in the field of research for Myotubular Myopathy and other Congenital Myopathies. Their work not only focuses on advancing scientific knowledge in these areas but also provides educational information and valuable support for ongoing research efforts. By dedicating their resources to understanding these rare diseases and supporting initiatives to improve treatment options, The Joshua Frase Foundation is playing a crucial role in enhancing the quality of life for individuals affected by these conditions.
This information is meant to be a general summary of The Joshua Frase Foundation For Congenital Myopathy Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $15
- Gross Receipts: $67,138
Assets and Liabilities:
- Total Assets: $75,171
- Total Liabilities: $8,969
- Net Assets: $66,202
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Organization Details
Founding Year
1996
Phone
(904) 821-4246Principal Officer
Alison Rocket-Frase
Main Address
P O Box 2041, Ponte Vedra Beach, FL, 32004
Website
www.joshuafrase.orgNTEE Category
Code: G50 - Disease
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