Overview
What is Xeroderma Pigmentosum Family Support Group?
The Xeroderma Pigmentosum Family Support Group is a nonprofit organization situated in Elk Grove, California. Its primary mission is to enhance the quality of life for individuals diagnosed with Xeroderma Pigmentosum and other ultraviolet light-sensitive conditions. To achieve this, the organization provides essential support, ultraviolet protective equipment, and additional assistance. Their workforce consists of one dedicated individual, demonstrating their commitment to helping those affected by these conditions. The group's activities aim to create a supportive environment, ensuring the well-being and comfort of those in need.
Official website here: www.xpfamilysupport.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 90%, Four-Star out of Four Star Rating.
The Xeroderma Pigmentosum Family Support Group has earned a high rating of 90%, indicating strong performance in accountability and finance. This score reflects their commitment to transparency and financial health, as evidenced by their excellent scores in independent board composition, material diversion of assets, and program expense ratio, which showcases their focus on utilizing funds effectively for their mission.
The organization boasts an entirely independent board and maintains a low liabilities-to-assets ratio, signifying robust financial management. Additionally, they effectively publish meeting minutes and have documented policies for conflict of interest and record retention. However, it is noted that they are missing a whistleblower policy, which could be seen as a gap in their governance practices.
Overall, the Xeroderma Pigmentosum Family Support Group demonstrates significant strengths in financial accountability and board governance, making it a reliable option for donors interested in supporting a nonprofit dedicated to providing resources and support for those affected by xeroderma pigmentosum. The absence of a whistleblower policy is a noted limitation, but it does not overshadow the organization's overall positive financial health and governance practices.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Xeroderma Pigmentosum Family Support Group?
94% of 25 reviewers on Facebook recommend the Xeroderma Pigmentosum Family Support Group. Here is a summary of their reviews:
The feedback shows a strong sense of support and appreciation for the organization. Many users express gratitude for the resources provided, highlighting the nonprofit’s dedication to assisting families affected by Xeroderma Pigmentosum. There is a communal effort seen as individuals seek help for others, indicating a compassionate and connected community around the organization.
Overall, this nonprofit appears to effectively fulfill its mission in providing support and information to families needing assistance. Reviewers appreciate the commitment to helping those in need, and the organization is regarded positively for its role in supporting affected families.
This AI summary has been generated from reviews found on Facebook.
Is Xeroderma Pigmentosum Family Support Group legitimate?
Xeroderma Pigmentosum Family Support Group is a legitimate nonprofit organization registered as a 501(c)(3) entity. Xeroderma Pigmentosum Family Support Group submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $25,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.xpfamilysupport.org
What is the mission statement of Xeroderma Pigmentosum Family Support Group?
The Xeroderma Pigmentosum Family Support Group's mission is centered around enhancing the quality of life for individuals diagnosed with Xeroderma Pigmentosum and other ultraviolet light-sensitive conditions. They achieve this by providing essential support, ultraviolet protective equipment, and various forms of assistance. The group's objective is to create an environment that caters to the unique needs of these individuals, aiming to improve their overall well-being.
Official website here: www.xpfamilysupport.org
What is the revenue of Xeroderma Pigmentosum Family Support Group?
Xeroderma Pigmentosum Family Support Group's revenue in 2023 was $78,470.
Official website here: www.xpfamilysupport.org
Who are the executives of Xeroderma Pigmentosum Family Support Group and what are their salaries?
The average compensation at Xeroderma Pigmentosum Family Support Group during 2023 was $25,000. There is 1 employee and 50 volunteers at Xeroderma Pigmentosum Family Support Group.
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- Compensation: $25,000
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Official website here: www.xpfamilysupport.org
Where can I find the form 990 for Xeroderma Pigmentosum Family Support Group?
Xeroderma Pigmentosum Family Support Group's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.xpfamilysupport.org
Learn more at the official website: www.xpfamilysupport.org
Mission Statement of Xeroderma Pigmentosum Family Support Group
The Xeroderma Pigmentosum Family Support Group is committed to enhancing the quality of life for individuals diagnosed with Xeroderma Pigmentosum and other ultraviolet light-sensitive conditions. This nonprofit organization strives to achieve this goal by providing essential support, ultraviolet protective equipment, and various forms of assistance. By doing so, the Xeroderma Pigmentosum Family Support Group aims to improve the overall well-being and living conditions of those affected by these conditions, enabling them to lead more comfortable and secure lives.
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Impact
October, 2024
The Xeroderma Pigmentosum Family Support Group significantly enhances the quality of life for individuals affected by Xeroderma Pigmentosum and other ultraviolet light-sensitive conditions. By providing crucial support and resources, they help families navigate the challenges associated with these conditions.
The group offers ultraviolet protective equipment, which is vital in preventing severe skin damage from sunlight, thus allowing individuals to engage more safely in everyday activities. Additionally, they foster a sense of community among affected families, creating networks of support that share experiences, advice, and emotional encouragement.
Their commitment to improving quality of life also extends to raising awareness and advocating for research, which is essential for the ongoing quest for better treatments and understanding of these conditions. Through these efforts, the Xeroderma Pigmentosum Family Support Group plays a pivotal role in empowering individuals and families facing the realities of living with UV-sensitive conditions.
This information is meant to be a general summary of Xeroderma Pigmentosum Family Support Group. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $59
- Gross Receipts: $86,987
Assets and Liabilities:
- Total Assets: $160,291
- Total Liabilities: $2,628
- Net Assets: $157,663
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Organization Details
Founding Year
2005
Principal Officer
Michele Milota
Website
www.xpfamilysupport.orgNTEE Category
Code: H80 - Medical research
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