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Angelman Syndrome Foundation Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 593092842 ✦ Aurora, IL ✦ Designated as a 501(c)(3)

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Overview

What is Angelman Syndrome Foundation Inc?

Angelman Syndrome Foundation Inc, located in Aurora, Illinois, is a nonprofit organization dedicated to supporting individuals and families affected by Angelman Syndrome. The foundation offers a range of educational resources, providing valuable information and assistance to those in need. In addition, they actively fund both basic science research and clinical trials, aiming to discover effective therapeutics and potentially find a cure for this condition. With a team of six dedicated employees, Angelman Syndrome Foundation Inc is committed to making a significant impact in the lives of those affected by this syndrome.


Official website here: www.angelman.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 97% (Four-Star out of Four Stars)

The Angelman Syndrome Foundation Inc has received an impressive Four-Star rating from Charity Navigator, showcasing its commitment to accountability and financial transparency. The organization excels in leadership and adaptability, with a perfect score in these areas, reflecting its strong governance and ability to respond to the needs of the community it serves. The high program expense ratio indicates a significant dedication of resources towards fulfilling its mission.

User feedback highlights the foundation's profound impact on families affected by Angelman Syndrome. Many parents express gratitude for the support and resources provided, including counseling, educational materials, and connections to specialized clinics. The ASF is praised for fostering a strong community, offering a sense of belonging and shared understanding among families navigating similar challenges.

While the ratings and reviews are overwhelmingly positive, some users note a desire for increased awareness and funding for research. Nevertheless, the overall sentiment is that the Angelman Syndrome Foundation is a lifeline for families, continuously striving to improve the lives of those affected by Angelman Syndrome and advocating for better treatments and support.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

What do the Facebook reviews say about Angelman Syndrome Foundation Inc?

96% of 358 reviewers on Facebook recommend the Angelman Syndrome Foundation Inc. Here is a summary of their reviews:

Many supporters express enthusiasm for the ongoing advancements in treatments for Angelman syndrome, highlighting the foundation's commitment to research and development. Commenters take pride in supporting the foundation's mission, emphasizing the positive impact it has on the community and their loved ones affected by the condition.

Overall, the sentiment towards the Angelman Syndrome Foundation is overwhelmingly positive, with individuals feeling hopeful and encouraged by the work being done to improve the lives of those with Angelman syndrome. The organization is perceived as a valuable resource in the pursuit of effective treatments and support for families.


This AI summary has been generated from reviews found on Facebook.

Is Angelman Syndrome Foundation Inc legitimate?

Angelman Syndrome Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Angelman Syndrome Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $495,999

For more financial information, click here


Official website here: www.angelman.org

What is the mission statement of Angelman Syndrome Foundation Inc?

The Angelman Syndrome Foundation Inc is committed to providing educational resources, information, and support to individuals affected by Angelman Syndrome. Their mission includes funding both basic science research and clinical trials to advance our understanding of the condition and potentially discover viable therapeutics and a cure. The foundation's objectives extend to supporting specific research aimed at finding solutions for Angelman Syndrome.


Official website here: www.angelman.org

Who is the CEO of Angelman Syndrome Foundation Inc?

Amanda Moore is the Ceo of Angelman Syndrome Foundation Inc. The CEO's salary of Angelman Syndrome Foundation Inc is $123,212 and their total compensation is $123,212.


Official website here: www.angelman.org

What is the revenue of Angelman Syndrome Foundation Inc?

Angelman Syndrome Foundation Inc's revenue in 2023 was $3,638,325.


Official website here: www.angelman.org

Who are the executives of Angelman Syndrome Foundation Inc and what are their salaries?

The average compensation at Angelman Syndrome Foundation Inc during 2023 was $82,666. There are 6 employees and 2500 volunteers at Angelman Syndrome Foundation Inc.


Here are 20 key members and their salaries (Angelman Syndrome Foundation Inc's CEO's salary is $123,212 and their total compensation is $123,212):


Amanda Moore (Ceo)
  • Compensation: $123,212
  • Related: $0
  • Other: $0
Marianne Benet (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anna Blanding (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rebecca Burdine (Sac Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Cecere (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Peter England (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Taylor Geathers (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dan Harvey (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Charles Winslo Iii (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mindy Mcbribe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shannon Moyer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lesley Mccullough Mccalister (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andrew Oberwager (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lia Perryman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steve Piluso (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
William Rakoczy (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kyle Rooney (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Routh (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Sugden (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Eric Wright (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.angelman.org

Where can I find the form 990 for Angelman Syndrome Foundation Inc?

Angelman Syndrome Foundation Inc's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.angelman.org

Learn more at the official website: www.angelman.org

Mission Statement of Angelman Syndrome Foundation Inc

The Angelman Syndrome Foundation Inc is committed to providing crucial educational resources, information, and support to individuals who are concerned about Angelman Syndrome. This nonprofit organization also invests in fundamental science research and clinical trials, with the ultimate goal of finding viable therapeutics and potentially curing Angelman Syndrome. By offering these resources, the Angelman Syndrome Foundation Inc aims to empower and assist those affected by this condition, contributing to a better understanding and potential solutions for the syndrome.

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Impact




July, 2024

Angelman Syndrome Foundation Inc's impact includes providing educational tools, information, and support to individuals affected by Angelman Syndrome. The foundation also supports and funds basic science research and clinical trials aimed at finding viable therapeutics and a cure for Angelman Syndrome. This support is crucial in advancing medical research and improving the quality of life for those affected by this rare genetic disorder.




This information is meant to be a general summary of Angelman Syndrome Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$3,638,325 (2023)
Expenses
$3,635,328 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $100,472
  • Program Service Revenue: $1,017,496
  • Gross Receipts: $3,638,325

Assets and Liabilities:

  • Total Assets: $2,274,369
  • Total Liabilities: $287,498
  • Net Assets: $1,986,871

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

WALK-A-THON

Revenue

$980,347

BIENNIAL CONFERENCE

Revenue

$37,149

Organization Details

Founding Year

1992

Principal Officer

Amanda Moore

Main Address

3015 E NEW YORK ST STE A2 PMB 285, AURORA, IL, 605045165

NTEE Category

Code: H90 - Medical research

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