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Lupus Research Alliance Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 582492929 ✦ New york, NY ✦ Designated as a 501(c)(3)

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Overview

What is Lupus Research Alliance Inc?

The Lupus Research Alliance Inc, based in New York, is a leading nonprofit organization dedicated to advancing lupus research worldwide. With a mission to transform treatment, they invest in innovative and synergistic research projects that aim to understand the causes of lupus, improve diagnostics, and ultimately lead to a cure. Their diverse funding model provides grants to researchers and fosters scientific talent, allocating over $245 million since inception. In 2022 alone, over $17 million was awarded for projects with the potential to significantly impact treatment and diagnosis. The organization's research strategy is guided by top scientific experts and key board members, ensuring a well-informed and strategic funding agenda.


Official website here: www.lupusresearch.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 99% (Four-Star out of Four Star rating)

The Lupus Research Alliance Inc (ALR) has received an impressive 99% rating from Charity Navigator, indicating a strong commitment to accountability and financial transparency. Notably, it boasts a perfect score of 100% in its accountability measures, ensuring that all donations are directed exclusively toward lupus research initiatives. The organization operates with a fully independent board and has implemented robust financial policies, reflecting its dedication to ethical governance.

User feedback highlights the ALR's effectiveness in raising awareness and funding for lupus research, with volunteers and patients praising the organization for its focus on medical advancements. Many reviewers emphasize that 100% of donations go directly to research, which has led to significant breakthroughs, including the development of new lupus treatments. The sense of community among supporters and volunteers contributes to a positive atmosphere, reinforcing the organization's mission and goals.

Despite the overwhelmingly positive reviews, some volunteers have expressed confusion regarding its rating on platforms like Charity Navigator, suggesting that its operational model, where board members cover all expenses, may warrant a higher score. Overall, the ALR is seen as a vital resource in the fight against lupus, garnering strong support from those directly impacted by the disease.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Lupus Research Alliance Inc legitimate?

Lupus Research Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lupus Research Alliance Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $1,882,737
Professional Fundraising Fees: $65,000
Other Salaries and Wages: $4,026,530

For more financial information, click here


Official website here: www.lupusresearch.org

What is the mission statement of Lupus Research Alliance Inc?

The Lupus Research Alliance (LRA) is a leading non-governmental, non-profit organization dedicated to advancing research and discovering next-generation diagnostics and curative treatments for lupus. With a mission to put people with lupus at the center of all they do, the LRA is the largest global funder of lupus research worldwide, committing over $245 million since inception. The organization strategically guides and drives the research funding agenda with a board of directors and scientific advisory board comprised of top scientific experts and key lay members. In 2022, the LRA awarded over $17 million in highly innovative grants to support research projects, unraveling lupus heterogeneity, bridging research and clinical efforts, and identifying molecular pathways and druggable targets for new or improved therapies. The LRA's unique funding model supports promising research efforts and aims to translate research results from the bench to the bedside as quickly as possible.


Official website here: www.lupusresearch.org

Who is the CEO of Lupus Research Alliance Inc?

Albert T Roy is the Principal Officer of Lupus Research Alliance Inc. The CEO's salary of Lupus Research Alliance Inc is $336,203 and their total compensation is $420,326.


Official website here: www.lupusresearch.org

What is the revenue of Lupus Research Alliance Inc?

Lupus Research Alliance Inc's revenue in 2022 was $22,699,491.


Official website here: www.lupusresearch.org

Who are the executives of Lupus Research Alliance Inc and what are their salaries?

The average compensation at Lupus Research Alliance Inc during 2022 was $93,798. There are 63 employees and 500 volunteers at Lupus Research Alliance Inc.


Here are 35 key members and their salaries (Lupus Research Alliance Inc's CEO's salary is $336,203 and their total compensation is $420,326):


Ira Akselrad (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard K Descherer (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph Mauriello (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brenda Blackmon (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bishop Rudy V Carlton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Willie Colon (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas O Daniel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennie Descherer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Katey Driscoll (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sir Marc Feldmann (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Moti Ferder (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joe Germanotta (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Kies (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Lavecchia (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anna Fisch (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Veronica Vargas Lupo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Molly Mccabe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nadeem Meghji (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
William J Mulvihill (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Seder Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel J Wallace (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
William Wolfe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julius Williams (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Spencer Zwick (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Albert Roy (Ceo And President)
  • Compensation: $336,203
  • Related: $0
  • Other: $84,123
Kenneth M Farber (Ceo And President (Past))
  • Compensation: $406,576
  • Related: $0
  • Other: $62,583
Debra Rose (Vp And Chief Finance Officer)
  • Compensation: $226,160
  • Related: $0
  • Other: $49,285
Teodora Staeva (Vp And Chief Scientific Officer)
  • Compensation: $319,513
  • Related: $0
  • Other: $68,628
Andrea O'Neill (Vp And Chief Development Officer)
  • Compensation: $278,423
  • Related: $0
  • Other: $51,244
Penelope Mitchell (Vp Of Communications)
  • Compensation: $186,455
  • Related: $0
  • Other: $39,042
Jonathan Marks (Director Of Corporate Development)
  • Compensation: $148,131
  • Related: $0
  • Other: $51,381
Devon Kelly (Lupus Nexus Director)
  • Compensation: $159,801
  • Related: $0
  • Other: $37,410
Dorey Neilinger (Senior Director Of Philanthropy)
  • Compensation: $177,429
  • Related: $0
  • Other: $40,693
Diane Gross (National Director Of Advocacy)
  • Compensation: $145,081
  • Related: $0
  • Other: $47,054
Ebony Scott (Health Equity Director)
  • Compensation: $136,879
  • Related: $0
  • Other: $34,036


Official website here: www.lupusresearch.org

Where can I find the form 990 for Lupus Research Alliance Inc?

Lupus Research Alliance Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.lupusresearch.org

Learn more at the official website: www.lupusresearch.org

Mission Statement of Lupus Research Alliance Inc

The Lupus Research Alliance, a leading non-governmental organization, dedicates itself to the heart of every lupus battle. With a mission to put people with lupus at the forefront of all they do, this research-driven alliance pushes the boundaries of discovery and development, aiming to fund the most innovative lupus research worldwide.

Through strategic guidance from its Research Committee of the Board of Directors and Scientific Advisory Board, the Lupus Research Alliance transforms treatment by funding next-generation diagnostics and curative therapies. Their commitment to advancing research, fostering diverse scientific talent, and driving discovery towards improved diagnostics and ultimately a cure has seen over $245 million invested since their inception.

In 2022 alone, over $17 million was awarded in grants for highly innovative projects, including three Global Team Science Awards worth $9 million over two years, seven Lupus Innovation Award Grants totaling over $2 million, and four Lupus Mechanisms and Targets Awards amounting to $2.4 million. The organization's initiatives, such as the Diversity in Lupus Research Program, aim to foster a diverse community of researchers and clinicians in the field of lupus, providing opportunities for underrepresented minorities to develop their research experiences and become independent investigators.

The Lupus Research Alliance's unique funding model supports promising research efforts, translating results from the research bench to the bedsides as quickly as possible. With a peer-review process in place, the organization's board of directors covers the administrative and fundraising expenses, ensuring that 100% of all other contributions go directly towards supporting their lupus research programs.

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Impact




October, 2024

Lupus Research Alliance Inc plays a pivotal role in revolutionizing the landscape of lupus research, positioning itself as the largest non-governmental, non-profit funder of lupus research globally. With over $245 million committed to research projects since its inception, the organization has made measurable strides toward transforming diagnosis and treatment.

In 2022 alone, the alliance awarded over $17 million in grants aimed at fostering innovative research that not only enhances understanding of lupus but also develops improved therapies. Among these initiatives, the Global Team Science Awards have facilitated multidisciplinary collaborations that seek to unravel the complexities of lupus, paving the way for personalized treatment approaches.

The organization recognizes and supports exceptional creativity and early-stage ideas through its Lupus Innovation Award grants, which bolster groundbreaking solutions to key challenges in lupus research. Additionally, targeted funding has been provided to enhance diversity within the field, ensuring that underrepresented minority scientists establish themselves in lupus research through dedicated career development and fellowship opportunities.

Lupus Research Alliance’s Distinguished Innovator Award program provides substantial support for researchers investigating the underlying causes of lupus, further driving the quest for a cure. The organization has also established partnerships aimed at finding common mechanisms in autoimmune diseases, underscoring its collaborative approach to research.

By implementing a competitive peer-review funding model, the Lupus Research Alliance accelerates the translation of research findings into clinical applications, all while dedicating 100% of contributions directly to lupus research programs. Its commitment to putting individuals living with lupus at the forefront of its mission exemplifies the alliance's drive to create meaningful change in the lives of those affected by this complex disease.




This information is meant to be a general summary of Lupus Research Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$22,699,491 (2022)
Expenses
$32,373,925 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $2,452,805
  • Program Service Revenue: $1,232,995
  • Gross Receipts: $32,841,344

Assets and Liabilities:

  • Total Assets: $98,907,292
  • Total Liabilities: $35,375,707
  • Net Assets: $63,531,585

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

LUCIN CONSULTING REVENUE

Revenue

$1,232,995

Organization Details

Founding Year

1999

Principal Officer

Albert T Roy

Main Address

270 MADISON AVENUE SUITE 300, NEW YORK, NY, 10016

NTEE Category

Code: H11 - Medical research

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