Overview
What is Lymphatic Education & Research Network Inc (Le&Rn)?
Lymphatic Education & Research Network Inc (Le&Rn) is a dedicated nonprofit organization based in New York City, aiming to combat lymphatic diseases and lymphedema through education, research, and advocacy. Their mission is to expedite the prevention, treatment, and cure of lymphatic disorders by fostering collaboration between patients and medical professionals. In 2022, Le&Rn carried out various activities, including expanding their patient registry, supporting young investigators, and conducting educational outreach programs. They also organized virtual symposiums, published scientific developments in a journal, secured funding for lymphatic research, and established scholarships for lymphedema therapy. Le&Rn also advocated for policies at both the state and federal levels, hosted summits, and expanded their Centers of Excellence program. Their efforts led to increased support from Congress and private foundations, ultimately advancing progress in the field of lymphatic diseases.
Official website here: www.lymphaticnetwork.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96% (Four-Star out of Four Star Rating)
The Lymphatic Education & Research Network Inc (LE&RN) has received a commendable Four-Star rating from Charity Navigator, indicating a strong performance in accountability and finance. This rating reflects the organization's commitment to transparency and effective management, with a high score of 100% for having an entirely independent board and robust financial oversight structures. Their program expense ratio is also impressive at 83.45%, showcasing effective allocation of resources towards their mission.
User feedback presents a mixed picture. Many professionals and individuals affected by lymphedema appreciate LE&RN's significant contributions to advocacy, education, and research, highlighting their role in raising awareness and providing essential resources for patients. Positive testimonials emphasize their commitment to improving care standards and collaborating with healthcare professionals, which many believe has transformed the approach to lymphatic diseases.
Conversely, some users express concerns regarding the organization's financial practices, particularly noting the high compensation for the CEO and associated expenses. Critics argue that a substantial portion of the budget is directed towards administrative costs rather than research funding, leading to questions about the stewardship of donor funds. This feedback indicates a significant division in public perception, where while many commend its efforts, others call for greater financial accountability and transparency in impact reporting.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Lymphatic Education & Research Network Inc (Le&Rn) legitimate?
Lymphatic Education & Research Network Inc (Le&Rn) is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lymphatic Education & Research Network Inc (Le&Rn) submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $260,349
Professional Fundraising Fees: $25,666
Other Salaries and Wages: $346,116
For more financial information, click here
Official website here: www.lymphaticnetwork.org
What is the mission statement of Lymphatic Education & Research Network Inc (Le&Rn)?
Lymphatic Education & Research Network Inc (Le&Rn) is committed to combating lymphatic diseases and lymphedema. Their mission involves education, research, and advocacy, aiming to accelerate the prevention, treatment, and potential cure of these conditions. The organization brings together patients and medical professionals to address the unmet needs surrounding lymphatic disorders. During 2022, Le&Rn continued various initiatives, such as expanding their patient registry, supporting lymphatic research, providing educational outreach, and hosting virtual symposiums. They also offer scholarships for lymphedema therapy, an "Ask the Experts" feature, and collaborate with renowned authorities in the field. Le&Rn also secures funding for lymphatic research and promotes awareness campaigns, including World Lymphedema Day and the creation of Centers of Excellence in lymphatic disease diagnosis and treatment.
Official website here: www.lymphaticnetwork.org
Who is the CEO of Lymphatic Education & Research Network Inc (Le&Rn)?
William Repicci is the Director of Lymphatic Education & Research Network Inc (Le&Rn). The CEO's salary of Lymphatic Education & Research Network Inc (Le&Rn) is $260,350 and their total compensation is $313,831.
Official website here: www.lymphaticnetwork.org
What is the revenue of Lymphatic Education & Research Network Inc (Le&Rn)?
Lymphatic Education & Research Network Inc (Le&Rn)'s revenue in 2022 was $1,462,533.
Official website here: www.lymphaticnetwork.org
Who are the executives of Lymphatic Education & Research Network Inc (Le&Rn) and what are their salaries?
The average compensation at Lymphatic Education & Research Network Inc (Le&Rn) during 2022 was $86,638. There are 7 employees at Lymphatic Education & Research Network Inc (Le&Rn).
Here are 7 key members and their salaries (Lymphatic Education & Research Network Inc (Le&Rn)'s CEO's salary is $260,350 and their total compensation is $313,831):
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- Compensation: $260,350
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- Other: $53,481
Official website here: www.lymphaticnetwork.org
Where can I find the form 990 for Lymphatic Education & Research Network Inc (Le&Rn)?
Lymphatic Education & Research Network Inc (Le&Rn)'s most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.lymphaticnetwork.org
Learn more at the official website: www.lymphaticnetwork.org
Mission Statement of Lymphatic Education & Research Network Inc (Le&Rn)
Lymphatic Education & Research Network Inc, or Le&Rn, is an organization committed to combating lymphatic diseases and lymphedema. Their mission is multifaceted, focusing on education, research, and advocacy to prevent, treat, and potentially cure these conditions. Le&Rn aims to bring patients and medical professionals together, addressing the unmet needs surrounding lymphatic disorders.
The organization's mission is to accelerate progress in the field of lymphatic diseases. Le&Rn achieves this by conducting research, supporting clinical trials and drug development, and advocating for policies that prioritize lymphatic health. Their activities include operating a national patient registry, providing biological materials for research, and offering grants to young investigators in the field.
Le&Rn also places a strong emphasis on education and awareness. They engage with academia, government, industry, and medical and patient communities to spread knowledge about lymphatic diseases. Through their monthly virtual symposium series, they connect patients, families, and professionals with leading authorities in the field. Le&Rn also publishes an international, peer-reviewed journal and produces educational materials to promote understanding of lymphatic science and medicine.
In addition to research and education, Le&Rn advocates for policies that support lymphatic health. They secure Congressional and National Institutes of Health support for lymphatic research, promote legislation, and collaborate with other organizations to raise awareness about lymphatic diseases. Le&Rn's efforts have resulted in the establishment of Centers of Excellence in the diagnosis and treatment of lymphatic diseases and the inclusion of lymphedema and lymphatic diseases as research categories in the Department of Defense's Peer Reviewed Medical Research Program.
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Impact
July, 2024
Lymphatic Education & Research Network Inc (Le&Rn) has made a significant impact in the fight against lymphatic diseases and lymphedema. Through a multifaceted approach encompassing education, research, and advocacy, the organization has accelerated efforts to prevent, treat, and ultimately find a cure for these conditions.
Some key activities of Le&Rn in 2022 included expanding programs to align with their mission, maintaining the International Lymphatic Disease and Lymphedema Registry and Biorepository to support research and clinical trials, offering grants for young investigators in lymphatic research, organizing educational symposiums with leading experts, updating their website and engaging in social media outreach, producing a scientific journal focused on lymphatic science, securing support from government and healthcare institutions for lymphatic research, providing scholarships for therapists seeking lymphedema certification, and hosting events to raise awareness and support for lymphatic diseases.
Moreover, the organization has actively engaged notable figures like spokesperson Kathy Bates and expanded its network of advocates to further push for advancements in lymphatic research and treatment. Le&Rn's impact is also evident in its successful initiatives such as establishing World Lymphedema Day, creating Centers of Excellence for the Diagnosis & Treatment of Lymphatic Diseases, promoting legislation for lymphedema materials in hospitals, and collaborating with various institutions to drive progress in this field.
Overall, Le&Rn's efforts have contributed significantly to improving the understanding, treatment, and support for individuals affected by lymphatic diseases and lymphedema, marking a substantial impact on the medical research landscape.
This information is meant to be a general summary of Lymphatic Education & Research Network Inc (Le&Rn). Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $29,306
- Gross Receipts: $1,467,934
Assets and Liabilities:
- Total Assets: $3,910,350
- Total Liabilities: $292,175
- Net Assets: $3,618,175
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Organization Details
Founding Year
1998
Phone
(516) 625-9675Principal Officer
William Repicci
Main Address
154 West 14th Street 2nd Floor, NEW YORK, NY, 10011
Website
www.lymphaticnetwork.orgNTEE Category
Code: H90 - Medical research
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