Overview
What is North East Als Consortium Inc?
North East Als Consortium Inc, based in Boston, Massachusetts, is a nonprofit organization dedicated to accelerating the development of treatments for Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND). They serve as a hub for academic research and a resource for the ALS community, fostering open scientific communication and collaboration. By hosting the annual NEALS Meeting, they bring together leading scientists, government sponsors, academic partners, and pharmaceutical companies to discuss potential treatments and share updates. NEALS maintains a substantial ALS sample repository and trial databases, making these resources widely available to researchers. Their mission is to translate scientific advancements into clinical research and new treatments for ALS and MND as swiftly as possible, upholding principles such as open communication, peer review, and full disclosure.
Official website here: www.neals.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 84%, Three-Star out of Four Star Rating
North East Als Consortium Inc has received a score of 84%, which indicates a solid performance in terms of accountability and financial health. The organization has a fully independent board, which is a strong point, as it helps ensure unbiased decision-making. Additionally, they have demonstrated effective financial management with a low liabilities to assets ratio and a high program expense ratio, suggesting that a significant portion of their funds is directed towards their programs.
However, there are some notable gaps in governance practices. The organization lacks a conflict of interest policy, a whistleblower policy, and a document retention and destruction policy, which are all important for maintaining transparency and ethical standards. Furthermore, they have not posted their tax form on their website, which could limit public access to key financial information.
Overall, while North East Als Consortium Inc shows strengths in financial accountability and the independence of its board, addressing its governance shortcomings would enhance its credibility and reliability in the eyes of donors and stakeholders.
This AI summary has been generated from information found on Charity Navigator.
Is North East Als Consortium Inc legitimate?
North East Als Consortium Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. North East Als Consortium Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.neals.org
What is the mission statement of North East Als Consortium Inc?
The North East ALS Consortium Inc's mission is centered around translating scientific advancements into new treatments for individuals with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as swiftly as possible. To achieve this goal, the organization functions as an academic research consortium and a resource for the ALS community, adhering to principles such as open scientific communication, peer review, full disclosure of potential conflicts of interest, and democratic governance of its activities. The annual NEALS Meeting serves as a platform for researchers to engage with leading ALS and MND scientists, government sponsors, academic partners, and pharmaceutical companies, discussing potential treatments, reviewing current research activities, and sharing scientific updates. The NEALS Science Advisory Board provides guidance to the NEALS Executive Committee and members on the scientific basis of their research activities. The consortium has also established an extensive ALS sample repository and maintained several trial databases, making these resources widely available to investigators conducting research in ALS, demonstrating a spirit of collaboration.
Official website here: www.neals.org
Who is the CEO of North East Als Consortium Inc?
James Berry is the Sab, Chair of North East Als Consortium Inc.
Official website here: www.neals.org
What is the revenue of North East Als Consortium Inc?
North East Als Consortium Inc's revenue in 2022 was $1,108,820.
Official website here: www.neals.org
Who are the executives of North East Als Consortium Inc and what are their salaries?
There 11 volunteers at North East Als Consortium Inc.
Here are 12 key members and their salaries:
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Official website here: www.neals.org
Where can I find the form 990 for North East Als Consortium Inc?
North East Als Consortium Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.neals.org
Learn more at the official website: www.neals.org
Mission Statement of North East Als Consortium Inc
North East ALS Consortium Inc, a renowned organization, is dedicated to accelerating the translation of scientific advancements into new treatments for individuals suffering from Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND). The consortium's primary objective is to expedite the process of turning these discoveries into clinical research and ultimately, new treatments for these debilitating conditions. The North East ALS Consortium firmly believes in open scientific communication, peer review, full disclosure of potential conflicts of interest, and democratic governance of its activities and operations.
In pursuit of its mission, North East ALS Consortium organizes an annual meeting, which serves as a platform for its researchers to engage with leading ALS and MND scientists, government sponsors, academic partners, and pharmaceutical companies. This gathering is an opportunity to discuss potential treatments, review current research activities, and share scientific updates. The consortium also has an active Science Advisory Board that advises the Executive Committee and members of the consortium on the scientific basis of their research activities.
Furthermore, North East ALS Consortium has established an extensive ALS sample repository and maintains several trial databases. This resource-sharing approach, rooted in collaboration, makes these valuable resources widely accessible to investigators conducting research in ALS. In this manner, the consortium plays a vital role in advancing the understanding and treatment of Amyotrophic Lateral Sclerosis and Motor Neuron Disease.
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Impact
July, 2024
North East ALS Consortium Inc is at the forefront of translating scientific advances into clinical research and new treatments for individuals living with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as quickly as possible. Through its academic research consortium and resource tools, NEALS facilitates collaboration among leading ALS and MND scientists, government sponsors, academic partners, and pharmaceutical companies. By providing a platform for researchers to discuss potential treatments, review current research activities, and share scientific updates at events like the annual NEALS meeting, the organization is driving progress in the field of ALS research.
Moreover, NEALS plays a key role in advising its executive committee and members on the scientific basis of research activities through its Science Advisory Board. By maintaining extensive ALS sample repositories and trial databases, NEALS ensures that valuable resources are widely accessible to researchers conducting ALS-related studies, fostering a culture of collaboration and knowledge sharing in the scientific community. The organization's commitment to principles such as open scientific communication, peer review, transparency, and democratic governance reflects its dedication to advancing ALS research and ultimately improving the lives of those affected by the disease.
This information is meant to be a general summary of North East Als Consortium Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Program Service Revenue: $1,102,034
- Gross Receipts: $1,108,820
Assets and Liabilities:
- Total Assets: $1,089,210
- Total Liabilities: $58,570
- Net Assets: $1,030,640
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SPONSORSHIP
Revenue
$397,200
INFRASTRUCTURE SUPPORT
Revenue
$216,000
GRANT INCOME
Revenue
$192,269
ANNUAL CONFERENCE - FE
Revenue
$170,200
MEMBERSHIP DUES
Revenue
$126,365
Organization Details
Founding Year
2005
Phone
(617) 858-4277Principal Officer
James Berry
Main Address
200 PORTLAND STREET 5TH FLOOR, BOSTON, MA, 02114
Website
www.neals.orgNTEE Category
Code: H80 - Medical research
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