Overview
What is Restless Legs Syndrome Foundation?
The Restless Legs Syndrome Foundation is a dedicated nonprofit organization based in Austin, Texas. Their primary mission is to raise awareness, educate, and support research into causes and cures for Restless Legs Syndrome (RLS), also known as Willis-Ekбом Disease. They achieve this through various means, including publications, webinars, an informative website, social media platforms, and direct communications. Their publications cater to both individuals and healthcare providers, addressing topics like general information, child-specific cases, and specialist guides for medical professionals. Thousands participate in their webinars, and their online resources attract a substantial number of visitors annually. The foundation also has a significant social media presence and a YouTube channel, further disseminating information. Additionally, they execute a public policy initiative program to advocate for increased medical research funding and improved treatment access for RLS patients.
Official website here: www.rls.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96%, Four-Star out of Four Star Rating
The Restless Legs Syndrome Foundation (RLS Foundation) has earned a commendable 96% rating from Charity Navigator, indicating strong performance across various metrics related to accountability, finance, and community engagement. The foundation scored exceptionally well with 100% in accountability and finance, reflecting robust financial practices and transparency. Additionally, it has demonstrated a commitment to impact and measurement with an 84% score, showcasing its effectiveness in making a difference for those suffering from RLS.
User feedback consistently highlights the RLS Foundation's crucial role in providing education, support, and community for individuals affected by restless legs syndrome. Many reviewers express deep gratitude for the foundation's resources, which have significantly improved their quality of life by helping them navigate their condition. The foundation's efforts in raising awareness among healthcare professionals and advocating for research funding are particularly appreciated, as these initiatives contribute to better understanding and treatment options for RLS.
While the data points to numerous strengths, such as a highly independent board and effective leadership, some users indicate a desire for even more comprehensive outreach and resources for RLS sufferers. Nevertheless, overall feedback is overwhelmingly positive, with many noting that the foundation has been a lifeline during their struggles with this often-misunderstood condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Restless Legs Syndrome Foundation?
92% of 46 reviewers on Facebook recommend the Restless Legs Syndrome Foundation. Here is a summary of their reviews:
Many users express gratitude for the organization's support, highlighting how it has been instrumental in their understanding and management of Restless Legs Syndrome (RLS). One reviewer recalls discovering the foundation in their late twenties and feeling validated when they learned more about their condition, signifying the emotional relief it provided.
The personal engagement from the organization's leadership is particularly appreciated, as one user mentioned receiving replies to their emails, which reflects a commitment to connecting with the community. Overall, the foundation appears to provide valuable resources and fosters a sense of hope among those affected by RLS, with users feeling optimistic about the organization’s mission to find a cure.
This AI summary has been generated from reviews found on Facebook.
Is Restless Legs Syndrome Foundation legitimate?
Restless Legs Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Restless Legs Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $98,788
Professional Fundraising Fees: $36,483
Other Salaries and Wages: $67,005
For more financial information, click here
Official website here: www.rls.org
What is the mission statement of Restless Legs Syndrome Foundation?
The Restless Legs Syndrome Foundation's mission is centered around raising awareness, educating the public, and supporting research into better treatments and potential cures for the Willis-Ekbom Disease, commonly known as Restless Legs Syndrome (RLS). The organization aims to encourage and provide funding for research that could lead to solutions for this condition. Furthermore, the foundation offers support to individuals affected by RLS, serving as a leading resource for information on various aspects of the disease, its treatments, and potential cures. The board of the foundation has the authority to designate other activities related to RLS, its treatments, and potential cures whenever necessary.
Official website here: www.rls.org
Who is the CEO of Restless Legs Syndrome Foundation?
Karla Dzienkowski is the Executive Di of Restless Legs Syndrome Foundation.
Official website here: www.rls.org
What is the revenue of Restless Legs Syndrome Foundation?
Restless Legs Syndrome Foundation's revenue in 2022 was $944,438.
Official website here: www.rls.org
Who are the executives of Restless Legs Syndrome Foundation and what are their salaries?
The average compensation at Restless Legs Syndrome Foundation during 2022 was $41,448. There are 4 employees and 93 volunteers at Restless Legs Syndrome Foundation.
Here are 13 key members and their salaries:
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Official website here: www.rls.org
Where can I find the form 990 for Restless Legs Syndrome Foundation?
Restless Legs Syndrome Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.rls.org
Learn more at the official website: www.rls.org
Mission Statement of Restless Legs Syndrome Foundation
The Restless Legs Syndrome Foundation is committed to raising awareness, educating the public, and promoting research to identify better treatments and potentially discover cures for Restless Legs Syndrome (RLS), also known as the Willis-Ekbom Disease. With a mission to serve as a leading authority on the disease, the organization aims to increase scientific understanding of RLS and encourage funding for research that could lead to effective treatments.
Beyond research, the Restless Legs Syndrome Foundation is dedicated to supporting individuals suffering from the condition. By providing resources and information, the organization seeks to become the go-to source for all aspects of RLS, including its causes, treatments, and potential cures. In addition to this, the foundation is committed to carrying out various activities related to the disease, as directed by its board of directors. Overall, the Restless Legs Syndrome Foundation is dedicated to advancing knowledge, supporting those affected, and working towards finding solutions for this debilitating condition.
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Impact
July, 2024
The Restless Legs Syndrome Foundation has made a significant impact by raising awareness about Restless Legs Syndrome (RLS), also known as Willis-Ekbom Disease. Through educational initiatives, publications, webinars, and direct communications, the foundation provides trusted and unbiased information about RLS to both individuals and healthcare providers.
With a wide range of resources such as brochures, guides, handouts, newsletters, and webinars, the foundation has reached a large audience and engaged over 5,395 participants in RLS-related topics. The organization's website, social media platforms, and YouTube channel attract tens of thousands of visitors, creating a strong online presence for information dissemination.
Furthermore, the foundation's public policy initiative program aims to raise awareness, provide education, and advocate for increased medical research funding and appropriate treatment access for individuals with RLS. By serving as a leading center for information on RLS and supporting those affected by the disease, the Restless Legs Syndrome Foundation plays a crucial role in advancing scientific understanding and improving the lives of individuals with RLS.
This information is meant to be a general summary of Restless Legs Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $7,016
- Gross Receipts: $1,030,451
Assets and Liabilities:
- Total Assets: $795,669
- Total Liabilities: $58,751
- Net Assets: $736,918
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Organization Details
Founding Year
1993
Phone
(512) 366-9109Principal Officer
Karla Dzienkowski
Main Address
3006 BEE CAVE RD D-206, AUSTIN, TX, 78746
Website
www.rls.orgNTEE Category
Code: H99Z - Medical research
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