Overview
What is Solve Me Cfs Initiative Inc?
Solve Me Cfs Initiative Inc, based in Glendale, California, is a prominent organization dedicated to addressing Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Established in 1987, this nonprofit has been at the forefront of understanding, diagnosing, and treating these conditions. In December 2020, they launched the You Me Registry and Biobank, an open-source research tool, to further advance diagnostics and treatments. They provide research updates to around 28,000 constituents and continue to expand the registry, creating the world's largest longitudinal ME/CFS and Long COVID database with nearly 5,000 participants. The organization also grants funds for scientific research to find causes and treatments for post-infection diseases like ME/CFS and Long COVID. In 2022, they awarded Ramsay Research Grants to seven scientists worldwide through a blind peer review process. With a workforce of 20, Solve Me Cfs Initiative Inc remains committed to its mission of eradicating ME/CFS.
Official website here: www.solvecfs.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 99% (Four-Star out of Four Stars)
Solve ME/CFS Initiative Inc. (SMCI) demonstrates exceptional performance in both accountability and finance, as evidenced by its high score of 100 in these categories. The organization has an independent board comprised entirely of members, which enhances its governance structure. Furthermore, the high program expense ratio of 71.53% indicates that a significant portion of donations is directed towards its mission, rather than administrative costs.
User reviews highlight the organization's effective advocacy and support for individuals suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Many reviewers express gratitude for the organization’s efforts to fund research and provide hope through innovative projects aimed at better understanding and treating the illness. The feedback underscores the deep connection and positive impact SMCI has had on patients and their families, as well as its role in raising awareness about the condition.
However, some criticisms have been noted, particularly regarding the organization’s past naming conventions and the perception that it may not fully represent all patient experiences, particularly those of severe ME patients. Despite these criticisms, the prevailing sentiment remains overwhelmingly positive, with many users emphasizing the importance of SMCI's work in driving forward research and providing essential support to the ME/CFS community.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Solve Me Cfs Initiative Inc legitimate?
Solve Me Cfs Initiative Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Solve Me Cfs Initiative Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $303,416
Professional Fundraising Fees: $0
Other Salaries and Wages: $909,568
For more financial information, click here
Official website here: www.solvecfs.org
What is the mission statement of Solve Me Cfs Initiative Inc?
Solve Me CFS Initiative Inc, established in 1987, is a leading organization dedicated to Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Their mission is to eradicate these conditions, working tirelessly towards making ME/CFS understood, diagnosable, and treatable. The organization envisions a world free of these diseases and is committed to this goal.
One of their significant initiatives is the You Me Registry and Biobank, an open-source research tool launched in December 2020. This tool aims to advance research and development of diagnostics and treatments for ME/CFS. The organization provides curated research updates to its constituents and continues to expand the registry, creating the world's largest long-term ME/CFS and Long COVID database with nearly 5,000 participants.
Additionally, Solve Me CFS Initiative Inc provides scientific research grants to scientists and doctors worldwide. These grants are aimed at finding the causes and ways to treat and cure post-infection diseases like ME/CFS and Long COVID. In 2022, the organization awarded Ramsay Research Grants to seven scientists at organizations in the U.S., Australia, the U.K., and Canada, selected through a blinded peer review process.
Official website here: www.solvecfs.org
Who is the CEO of Solve Me Cfs Initiative Inc?
Emily Taylor See Sch O is the CEO of Solve Me Cfs Initiative Inc The CEO's salary of Solve Me Cfs Initiative Inc is $136,027 and their total compensation is $142,024.
Official website here: www.solvecfs.org
What is the revenue of Solve Me Cfs Initiative Inc?
Solve Me Cfs Initiative Inc's revenue in 2024 was $1,947,106.
Official website here: www.solvecfs.org
Who are the executives of Solve Me Cfs Initiative Inc and what are their salaries?
The average compensation at Solve Me Cfs Initiative Inc during 2024 was $80,866. There are 15 employees and 16 volunteers at Solve Me Cfs Initiative Inc.
Here are 21 key members and their salaries (Solve Me Cfs Initiative Inc's CEO's salary is $136,027 and their total compensation is $142,024):
- Compensation: $157,754
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- Other: $9,992
- Compensation: $142,472
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- Other: $2,944
- Compensation: $136,027
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- Other: $5,997
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- Other: $11,346
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Official website here: www.solvecfs.org
Where can I find the form 990 for Solve Me Cfs Initiative Inc?
Solve Me Cfs Initiative Inc's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.solvecfs.org
Learn more at the official website: www.solvecfs.org
Mission Statement of Solve Me Cfs Initiative Inc
Solve Me CFS Initiative Inc, established in 1987, is recognized as a leading organization in the fight against Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS). The organization's mission is to envision a world free from ME/CFS, working tirelessly to ensure that this debilitating disease is better understood, diagnosable, and treatable. Solve Me CFS Initiative Inc is dedicated to making significant strides in the research, diagnosis, and treatment of ME/CFS, with a particular focus on post-infection diseases like Long COVID.
To achieve its mission, Solve Me CFS Initiative Inc has launched several initiatives. In December 2020, the organization introduced the You Me Registry and Biobank, an open-source research tool designed to advance the development of diagnostics and treatments for ME/CFS. This tool has been instrumental in providing updated research to approximately 28,000 constituents and expanding the registry, creating the world's largest long-term ME/CFS and Long COVID database, with nearly 5,000 participants enrolled. These participants have contributed over 2.4 million data points, offering a valuable resource for researchers seeking diagnoses and treatments.
Additionally, Solve Me CFS Initiative Inc provides scientific research grants for scientists and doctors worldwide to explore the causes and potential treatments for post-infection diseases such as ME/CFS and Long COVID. In 2022, the organization awarded Ramsay Research Grants to seven scientists from organizations in the US, Australia, the UK, and Canada, following a rigorous blind peer review process. By investing in research and supporting the scientific community, Solve Me CFS Initiative Inc is actively working towards a future where ME/CFS is no longer a barrier to living a healthy, fulfilling life.
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Impact
July, 2024
Solve Me CFS Initiative Inc is making a significant impact in the fight against Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Through their research programs, such as the You ME Registry and Biobank, they are actively working to advance the research and development of diagnostics and treatments for ME/CFS. By providing curated research updates to approximately 28,000 constituents and creating the world's largest longitudinal ME/CFS and Long COVID database with nearly 5,000 participants, they are contributing valuable data for researchers seeking solutions for these debilitating diseases.
Additionally, the organization awards scientific research grants to enable scientists and doctors to study the causes and potential treatments for post-infection diseases like ME/CFS and Long COVID. In 2022, they awarded Ramsay Research Grants to 7 scientists through a blinded peer review process, supporting research efforts in the US, Australia, the UK, and Canada.
Overall, Solve Me CFS Initiative Inc is dedicated to making ME/CFS understood, diagnosable, and treatable, with a vision of a world free from these conditions. Their commitment to research, data collection, and grant funding is helping to drive progress in the field and provide hope for those affected by ME/CFS and Long COVID.
This information is meant to be a general summary of Solve Me Cfs Initiative Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $35,579
- Gross Receipts: $1,947,106
Assets and Liabilities:
- Total Assets: $3,950,139
- Total Liabilities: $430,039
- Net Assets: $3,520,100
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Organization Details
Founding Year
1987
Principal Officer
Oved Amitay
Website
www.solvecfs.orgNTEE Category
Code: G80 - Disease
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