The Als Association North Carolina Chapter

The Als Association North Carolina

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 561609591 ✦ Raleigh, NC ✦ Designated as a 501(c)(3)

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Overview

What is The Als Association North Carolina Chapter?

The Als Association North Carolina Chapter is a dedicated nonprofit organization situated in Raleigh, North Carolina. Their mission is to discover treatments and ultimately find a cure for ALS, while simultaneously supporting, advocating for, and empowering individuals afflicted by the condition to live fulfilling lives. They offer a wide range of services, including a program called Care Services, which extends support to families affected by ALS across all 100 counties in North Carolina. Despite the challenges posed by the COVID-19 pandemic, they have managed to preserve all essential programs and services. The Als Association North Carolina Chapter maintains partnerships with ALS clinics throughout the state, offers a medical equipment loan program, and hosts monthly support groups. They also provide financial aid to families, focusing on alleviating the financial stress related to medical treatments and services for ALS, as identified in their survey titled "Understanding Insurance Needs and Financial Burdens." In the 2023 fiscal year, they organized 104 support group meetings, provided equipment loans, funded over 3,300 hours of in-home care, and supported multidisciplinary clinics serving over 1,000 patients. Their team, consisting of 21 dedicated individuals, remains committed to their mission, working tirelessly to make a positive impact on the lives of those affected by ALS in North Carolina.


Official website here: www.alsnc.org

Is The Als Association North Carolina Chapter legitimate?

The Als Association North Carolina Chapter is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Als Association North Carolina Chapter submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $593,092
Professional Fundraising Fees: $0
Other Salaries and Wages: $616,576

For more financial information, click here


Official website here: www.alsnc.org

What is the mission statement of The Als Association North Carolina Chapter?

The mission of The Als Association North Carolina Chapter is centered around two primary objectives. Firstly, they strive to discover treatments and find a cure for ALS. Secondly, they aim to serve, advocate for, and empower individuals affected by ALS, enabling them to live their lives to the fullest. This organization provides essential support services to families living with ALS in all 100 counties of North Carolina, despite the challenges posed by the COVID-19 pandemic. Despite disruptions, they did not make any cuts to critical programs or services. Additionally, they support ALS clinics, maintain a medical equipment loan program, host monthly support groups, and offer financial assistance to families to alleviate the stress of medical treatment costs.


Official website here: www.alsnc.org

Who is the CEO of The Als Association North Carolina Chapter?

David Shore is the President&Ce of The Als Association North Carolina Chapter.


Official website here: www.alsnc.org

What is the revenue of The Als Association North Carolina Chapter?

The Als Association North Carolina Chapter's revenue in 2023 was $2,274,184.


Official website here: www.alsnc.org

Who are the executives of The Als Association North Carolina Chapter and what are their salaries?

The average compensation at The Als Association North Carolina Chapter during 2023 was $57,603. There are 21 employees and 75 volunteers at The Als Association North Carolina Chapter.


Here are 14 key members and their salaries:


Jerry Dawson (President&Ce)
  • Compensation: $188,723
  • Related: $0
  • Other: $18,803
David Shore (President &)
  • Compensation: $125,707
  • Related: $0
  • Other: $13,668
Jana Antos (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sarah Boyce (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Beth Christina (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kathryn Foster (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christy Hall (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Denise Kirkland (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Miller (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Douglas Noreen (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Linda Shuford-Reeves (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Darvis Simms (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ann White (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Robert Whited (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.alsnc.org

Where can I find the form 990 for The Als Association North Carolina Chapter?

The Als Association North Carolina Chapter's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.alsnc.org

Learn more at the official website: www.alsnc.org

Mission Statement of The Als Association North Carolina Chapter

The Als Association North Carolina Chapter is dedicated to two primary goals: discovering treatments and ultimately finding a cure for ALS, and serving, advocating for, and empowering individuals affected by ALS to live their lives to the fullest. This nonprofit organization strives to make a significant impact in the lives of those battling ALS, providing care services that extend to families living with the disease across all 100 counties in North Carolina.

Despite the challenges posed by the ongoing COVID-19 pandemic, The Als Association North Carolina Chapter has remained steadfast in its commitment to its mission. The organization has continued to support ALS clinics, maintain a medical equipment loan program, host monthly support groups, and offer financial aid to alleviate the stress related to medical treatment and service costs for ALS patients. In the 2023 fiscal year alone, they held 104 support group meetings, loaned 501 pieces of durable medical equipment, provided over 3,300 hours of in-home care, and supported multidisciplinary clinics that served more than 1,000 patients.

In essence, The Als Association North Carolina Chapter is a beacon of hope for individuals and families affected by ALS. It is an organization that is relentless in its pursuit of a cure while simultaneously providing vital care services, support, and financial assistance to those in need.

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Impact




October, 2024

The ALS Association North Carolina Chapter has a profound impact on individuals and families affected by ALS across the state. Its Care Services program reaches families in all 100 counties of North Carolina, providing essential support to help them navigate the challenges of this debilitating disease.

Despite the disruptions caused by the COVID-19 pandemic, the chapter maintained and even expanded its crucial services. In the 2023 fiscal year, they facilitated 104 support group meetings, helping individuals connect and share experiences, while fostering a sense of community. Their durable medical equipment loan program offered 501 pieces of equipment, ensuring that families had access to necessary tools for daily living. Furthermore, the association provided funding for more than 3,300 hours of in-home care, alleviating some of the burdens associated with medical treatments.

The ALS Association North Carolina Chapter also offers financial support to families, directly addressing the challenges highlighted in the "Understanding Insurance Needs and Financial Burdens" survey. Their ongoing collaboration with ALS clinics ensures that more than 1,000 patients receive multidisciplinary care, enhancing the quality of life for those affected by ALS.

Through advocacy and empowerment, the chapter is dedicated to discovering treatments and a cure for ALS, while ensuring that individuals can live their lives to the fullest despite the difficulties they face.




This information is meant to be a general summary of The Als Association North Carolina Chapter. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,274,184 (2023)
Expenses
$2,836,951 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $84,469
  • Program Service Revenue: $11,750
  • Gross Receipts: $3,132,849

Assets and Liabilities:

  • Total Assets: $3,182,521
  • Total Liabilities: $775,169
  • Net Assets: $2,407,352

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

CAREGIVERS CONFERENCE

Revenue

$11,750

Organization Details

Founding Year

1988

Principal Officer

David Shore

Main Address

4 N BLOUNT STREET SUITE 200, RALEIGH, NC, 27601

NTEE Category

Code: G50 - Disease

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