Overview
What is The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc, based in Sarasota, Florida, is a nonprofit organization with a mission to support, educate, and advance research for Waldenstrom's Macroglobulinemia. Their activities encompass offering encouragement and resources to the affected community, providing informative and educational programs, and financially backing research aimed at improving treatments and ultimately curing the disease. Specifically, they have funded 15 different research grants, focusing on areas such as targeted therapies, immunotherapy, and understanding the disease at a cellular level. With a staff of 9 individuals, the foundation is committed to making strides in the fight against Waldenstrom's Macroglobulinemia.
Official website here: www.iwmf.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The International Waldenstrom's Macroglobulinemia Foundation Inc is recognized for its exceptional performance, achieving a Four-Star rating from Charity Navigator. This high score highlights the organization’s strong accountability and financial management, which received a perfect score of 100%. The foundation has a fully independent board, effective oversight mechanisms, and no reported issues with asset diversion, showcasing a commitment to transparency and responsible governance.
Financially, the foundation demonstrates robust program expense ratios, with nearly 85% of its expenses going directly to programs. Additionally, its fundraising efficiency is notably high, with only $0.05 spent to raise each dollar. This efficient use of resources suggests that the organization is well-positioned to maximize its impact in supporting individuals affected by Waldenstrom's macroglobulinemia.
The Leadership & Adaptability score also reflects the organization's strong strategic direction and effective leadership. With perfect scores in all evaluated areas, it indicates a well-structured organization capable of responding to the needs of its community and stakeholders. Overall, the foundation stands out as a financially sound and well-managed nonprofit dedicated to its mission.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The International Waldenstrom's Macroglobulinemia Foundation Inc?
94% of 36 reviewers on Facebook recommend The International Waldenstrom's Macroglobulinemia Foundation Inc. Here is a summary of their reviews:
Many individuals are expressing deep gratitude for the support and services provided by the foundation. They appreciate the organization for the help it offers, reflecting a strong sense of community and assistance for those affected by Waldenstrom's Macroglobulinemia. The positive sentiments indicate that the foundation is valued for its mission and dedication to patients and their families.
Overall, the reviews highlight a satisfied user base that feels supported and informed through the resources offered by the nonprofit. This level of endorsement suggests that the organization is making a meaningful impact in the lives of those it serves.
This AI summary has been generated from reviews found on Facebook.
Is The International Waldenstrom's Macroglobulinemia Foundation Inc legitimate?
The International Waldenstrom's Macroglobulinemia Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The International Waldenstrom's Macroglobulinemia Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $140,547
Professional Fundraising Fees: $0
Other Salaries and Wages: $513,909
For more financial information, click here
Official website here: www.iwmf.com
What is the mission statement of The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc is committed to supporting and educating everyone affected by Waldenstrom's Macroglobulinemia. Their mission objectives include offering support and encouragement to the Waldenstrom's Macroglobulinemia community, providing information and educational programs to address patients and caregivers' concerns, and supporting research leading to better treatments and ultimately a cure. To achieve these objectives, the foundation has provided financial support to various research initiatives, including studies on targeted therapies, microenvironment responses, and immunotherapies, among others. Their efforts aim to improve the understanding and treatment of Waldenstrom's Macroglobulinemia, ultimately benefiting those affected by the disease.
Official website here: www.iwmf.com
Who is the CEO of The International Waldenstrom's Macroglobulinemia Foundation Inc?
Carl Lisman is the Board Chair of The International Waldenstrom's Macroglobulinemia Foundation Inc. The CEO's salary of The International Waldenstrom's Macroglobulinemia Foundation Inc is $140,546 and their total compensation is $147,478.
Official website here: www.iwmf.com
What is the revenue of The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc's revenue in 2022 was $4,169,452.
Official website here: www.iwmf.com
Who are the executives of The International Waldenstrom's Macroglobulinemia Foundation Inc and what are their salaries?
The average compensation at The International Waldenstrom's Macroglobulinemia Foundation Inc during 2022 was $72,717. There are 9 employees and 210 volunteers at The International Waldenstrom's Macroglobulinemia Foundation Inc.
Here are 14 key members and their salaries (The International Waldenstrom's Macroglobulinemia Foundation Inc's CEO's salary is $140,546 and their total compensation is $147,478):
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- Compensation: $140,546
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- Other: $6,932
Official website here: www.iwmf.com
Where can I find the form 990 for The International Waldenstrom's Macroglobulinemia Foundation Inc?
The International Waldenstrom's Macroglobulinemia Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.iwmf.com
Learn more at the official website: www.iwmf.com
Mission Statement of The International Waldenstrom's Macroglobulinemia Foundation Inc
The International Waldenstrom's Macroglobulinemia Foundation Inc is committed to supporting and educating everyone affected by Waldenstrom's Macroglobulinemia, a specific type of cancer, while simultaneously working towards discovering a cure. In line with its mission objectives, the organization offers support and encouragement to the Waldenstrom's Macroglobulinemia community and those with an interest in the disease. It achieves this by providing information and educational programs that address patients' and caregivers' concerns, ensuring they are well-informed about the disease and its management.
Furthermore, The International Waldenstrom's Macroglobulinemia Foundation Inc is actively involved in supporting research aimed at improving treatments and ultimately finding a cure for Waldenstrom's Macroglobulinemia. The organization has funded several research grants, including studies on rational targeted therapy, direct targeting of the MYD88 L265P driver mutation, the immune microenvironment response, and the origins and immunotherapy of the disease, among others. These research efforts are crucial in advancing our understanding of Waldenstrom's Macroglobulinemia and in developing more effective treatments for those affected by this disease.
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Impact
July, 2024
The International Waldenstrom's Macroglobulinemia Foundation Inc is making a significant impact by supporting and educating everyone affected by Waldenstrom's Macroglobulinemia while advancing the search for a cure. This organization has provided payments towards several grants to further research in Waldenstrom's Macroglobulinemia, focusing on areas such as targeted therapy, immune responses, functional characterization of WM cells, immunotherapy, and more. Their mission objectives include offering support, providing information and educational programs, and supporting research to improve treatments and find a cure for Waldenstrom's Macroglobulinemia.
This information is meant to be a general summary of The International Waldenstrom's Macroglobulinemia Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $30,904
- Program Service Revenue: $205,000
- Gross Receipts: $4,169,452
Assets and Liabilities:
- Total Assets: $9,055,891
- Total Liabilities: $195,634
- Net Assets: $8,860,257
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
EDUCATION FORUM
Revenue
$205,000
Organization Details
Founding Year
1998
Phone
(941) 927-4963Principal Officer
Carl Lisman
Main Address
6144 CLARK CENTER AVENUE, SARASOTA, FL, 34238
Website
www.iwmf.comNTEE Category
Code: G80 - Disease
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