Overview
What is International Society For Mannosido And Related Diseases?
The International Society for Mannosido and Related Diseases (ISMRD) is a globally focused nonprofit organization, situated in San Jose, California. Their primary mission is to advocate for families affected by glycoprotein storage diseases, such as alpha mannosidosis, aspartylglucosaminuria, beta-mannosidosis, fucosidosis, galactosialidosis, mucolipidosis II (I-cell disease), mucolipidosis III (pseudo-Hurier polydystrophy), Schindler disease, and sialidosis. These conditions, considered ultra-rare within the broader category of lysosomal storage diseases, currently lack effective treatments beyond symptomatic care. Committed to breaking down barriers of borders, language, race, and religion, ISMRD's advocacy efforts strive to support and empower affected families worldwide.
Official website here: www.ismrd.org
Is International Society For Mannosido And Related Diseases legitimate?
International Society For Mannosido And Related Diseases is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Society For Mannosido And Related Diseases submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.ismrd.org
What is the mission statement of International Society For Mannosido And Related Diseases?
The International Society for Mannosido and Related Diseases is an internationally focused organization with a mission to advocate for families affected by certain glycoprotein storage diseases. These diseases, including Alpha Mannosidosis, Aspartylglucosaminuria, Beta-Mannosidosis, Fucosidosis, Galactosialidosis, Mucolipidosis II (I-Cell Disease), Mucolipidosis III (Pseudo-Hurier Polydystrophy), Schindler Disease, and Sialidosis, are considered ultra-orphans within the lysosomal storage disease family, which encompasses over 40 similar disorders. Currently, treatments beyond symptomatic care are limited for these diseases. The Society's advocacy efforts are not confined by borders, language, race, or religion, demonstrating a commitment to supporting affected families globally.
Official website here: www.ismrd.org
Who is the CEO of International Society For Mannosido And Related Diseases?
Danielle Forsman is the President of International Society For Mannosido And Related Diseases.
Official website here: www.ismrd.org
What is the revenue of International Society For Mannosido And Related Diseases?
International Society For Mannosido And Related Diseases's revenue in 2022 was $10,535.
Official website here: www.ismrd.org
Who are the executives of International Society For Mannosido And Related Diseases and what are their salaries?
Here are 10 key members and their salaries:
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Official website here: www.ismrd.org
Where can I find the form 990 for International Society For Mannosido And Related Diseases?
International Society For Mannosido And Related Diseases's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.ismrd.org
Learn more at the official website: www.ismrd.org
Mission Statement of International Society For Mannosido And Related Diseases
The International Society for Mannosido and Related Diseases, abbreviated as ISMRD, is an internationally focused organization with a mission to advocate for families impacted by one of the glycoprotein storage diseases. These diseases include alpha mannosidosis, aspartylglucosaminuria, beta-mannosidosis, fucosidosis, galactosialidosis, mucolipidosis II (I-cell disease), mucolipidosis III (pseudo-Hurler polydystrophy), Schindler disease, and sialidosis. These disorders, known as the ultra-orphans of the lysosomal storage disease family, currently have limited treatment options beyond symptomatic care, as they affect fewer than 200 individuals worldwide.
ISMRD's advocacy efforts are not bound by borders, language, race, or religion. The organization works tirelessly to support families affected by these rare diseases, providing them with resources, information, and a sense of community. By advocating on their behalf, ISMRD aims to raise awareness of these conditions, encourage research and development of new treatments, and advocate for policies that improve the lives of those affected. Their mission is driven by a deep commitment to supporting families and advocating for a brighter future for those living with glycoprotein storage diseases.
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Impact
August, 2024
The International Society for Mannosidosis and Related Diseases (ISMRD) plays a crucial role in advocating for families affected by glycoprotein storage diseases globally. These diseases, such as Alpha Mannosidosis, Aspartylglucosaminuria, and others, are rare and often overlooked in medical research and funding. ISMRD's efforts are not limited by borders, language, race, or religion, emphasizing their commitment to inclusivity and support for all affected families. By raising awareness, providing resources, and advocating for research and treatments, ISMRD is making a significant impact in advancing the understanding and care of these ultra-orphan diseases.
This information is meant to be a general summary of International Society For Mannosido And Related Diseases. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $10,535
Assets and Liabilities:
- Total Assets: $90,703
- Total Liabilities: $0
- Net Assets: $90,703
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Organization Details
Founding Year
2021
Phone
(856) 693-3258Principal Officer
Danielle Forsman
Main Address
3150 ALMADEN EXPRESSWAY SUITE 103, SAN JOSE, CA, 95126
Website
www.ismrd.orgNTEE Category
Code: H80 - Medical research
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