Overview
What is Friedreich's Ataxia Research Alliance?
The Friedreich's Ataxia Research Alliance (FARA) is a nationwide, nonprofit organization, classified as a 501(c)(3), dedicated to spearheading scientific research aimed at discovering treatments and a potential cure for Friedreich's ataxia. This committed group works tirelessly to fund research, raise public awareness, and forge collaborations with various entities, such as scientists, patients, clinicians, government agencies, and pharmaceutical companies, all with the shared goal of conquering Friedreich's ataxia and related disorders. FARA's mission is to pool and direct the necessary resources and connections to cure this condition.
Official website here: www.curefa.org
What are the reviews and ratings of this charity?
**Friedreich's Ataxia Research Alliance (FARA) - Rating: 100% (Four-Star out of Four Stars)**
The Friedreich's Ataxia Research Alliance has received a Four-Star rating from Charity Navigator, indicating exceptional performance in Accountability and Finance, Impact and Measurement, as well as Leadership and Adaptability. With a perfect score of 100% across these categories for the most recent fiscal year, FARA demonstrates a strong commitment to transparency and effective use of resources, showcasing a program expense ratio of 95.38% and a notable fundraising efficiency.
Strengths of the organization include an independent board with 100% of its members being independent, a robust conflict of interest policy, and a clear commitment to strategic goals. FARA's dedication to advancing research, with over $9 million in funding and an emphasis on collaboration within the scientific community, further highlights its impactful mission to cure Friedreich's ataxia. The organization's adaptability during the COVID-19 pandemic, transitioning many of its activities to a virtual format, reflects its resilience and forward-thinking approach.
While the data does not provide specific user reviews from GreatNonprofits, the overall metrics featured in Charity Navigator suggest that FARA is highly regarded in terms of both financial health and operational effectiveness. Overall, the organization appears well-equipped to advance its mission while maintaining stakeholder trust and engagement.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Friedreich's Ataxia Research Alliance?
98% of 21 reviewers on Facebook recommend the Friedreich's Ataxia Research Alliance. Here is a summary of their reviews:
Many individuals express their appreciation for FARA's commitment to raising funds dedicated to researching a cure for Friedreich's Ataxia (FA). Supporters feel positively about being part of an organization that serves as a vital resource for those affected by FA, highlighting its role in advancing research efforts.
Overall, the sentiment is overwhelmingly supportive, with reviewers recognizing FARA as a crucial ally in the fight against FA. The organization’s focus on research and community support resonates strongly, providing hope and encouragement for those impacted by the condition.
This AI summary has been generated from reviews found on Facebook.
Is Friedreich's Ataxia Research Alliance legitimate?
Friedreich's Ataxia Research Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Friedreich's Ataxia Research Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $327,439
Professional Fundraising Fees: $0
Other Salaries and Wages: $700,894
For more financial information, click here
Official website here: www.curefa.org
What is the mission statement of Friedreich's Ataxia Research Alliance?
The Friedreich's Ataxia Research Alliance (FARA) aims to treat and eradicate Friedreich's Ataxia (FA) by propelling research, awareness, and collaborations. Their mission is to amass and direct the necessary resources and connections to cure FA by securing funds for research, advocating for public awareness, and uniting scientists, patients, healthcare professionals, government entities, pharmaceutical companies, and other organizations committed to curing FA and related disorders. They strive to advance research in the field of FA with the ultimate goal of discovering treatments and a definitive cure.
Official website here: www.curefa.org
Who is the CEO of Friedreich's Ataxia Research Alliance?
Jennifer Farmer is the President/Director of Friedreich's Ataxia Research Alliance. The CEO's salary of Friedreich's Ataxia Research Alliance is $150,000 and their total compensation is $155,228.
Official website here: www.curefa.org
What is the revenue of Friedreich's Ataxia Research Alliance?
Friedreich's Ataxia Research Alliance's revenue in 2022 was $11,042,911.
Official website here: www.curefa.org
Who are the executives of Friedreich's Ataxia Research Alliance and what are their salaries?
The average compensation at Friedreich's Ataxia Research Alliance during 2022 was $64,271. There are 16 employees and 500 volunteers at Friedreich's Ataxia Research Alliance.
Here are 21 key members and their salaries (Friedreich's Ataxia Research Alliance's CEO's salary is $150,000 and their total compensation is $155,228):
- Compensation: $110,000
- Related: $0
- Other: $3,811
- Compensation: $45,203
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- Other: $13,197
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- Compensation: $150,000
- Related: $0
- Other: $5,228
- Compensation: $250,000
- Related: $0
- Other: $7,108
- Compensation: $106,090
- Related: $0
- Other: $14,246
Official website here: www.curefa.org
Where can I find the form 990 for Friedreich's Ataxia Research Alliance?
Friedreich's Ataxia Research Alliance's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curefa.org
Learn more at the official website: www.curefa.org
Mission Statement of Friedreich's Ataxia Research Alliance
The Friedreich's Ataxia Research Alliance (FARA) is a committed, national organization with a mission to combat Friedreich's Ataxia (FA) by fostering research, awareness, and collaborations. Their primary objective is to assemble and concentrate the necessary resources and connections to eradicate FA by raising funds for scientific studies, advocating for public understanding, and coordinating scientists, patients, healthcare professionals, government agencies, and pharmaceutical companies who are devoted to curing FA and related disorders.
FARA serves as a vital catalyst in bringing together various stakeholders with a shared goal of finding a cure for FA. By harnessing financial support, amplifying public awareness, and fostering partnerships, FARA aims to drive cutting-edge research and accelerate the development of effective treatments for this debilitating neurological disorder. Their mission is to leverage their network and influence to mobilize and direct the resources required to overcome FA, ultimately leading to a much-needed breakthrough in medical science.
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Impact
July, 2024
The Friedreich's Ataxia Research Alliance has a significant impact in the field of medical research focused on treating and curing Friedreich's ataxia (FA). By raising funds for research, promoting public awareness, and aligning various stakeholders including scientists, patients, clinicians, government agencies, and pharmaceutical companies, FARA is dedicated to advancing scientific research that leads to potential treatments and ultimately a cure for FA and related disorders. Their mission is to marshal and focus resources and relationships necessary to cure FA, making a tangible contribution to the pursuit of a solution for this debilitating condition.
This information is meant to be a general summary of Friedreich's Ataxia Research Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $78,516
- Gross Receipts: $12,313,824
Assets and Liabilities:
- Total Assets: $7,260,774
- Total Liabilities: $430,349
- Net Assets: $6,830,425
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Organization Details
Founding Year
1998
Phone
(484) 879-6160Principal Officer
Jennifer Farmer
Main Address
PO BOX 1537, SPRINGFIELD, VA, 22151
Website
www.curefa.orgNTEE Category
Code: H99 - Medical research
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